13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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merrygirl
Frequent Contributor (1K+ posts)
Member # 12041
posted
Thats crap!
Posts: 3905 | From USA | Registered: May 2007
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Aniek
Frequent Contributor (1K+ posts)
Member # 5374
posted
Who does the appeal go to? At some point, does the Attorney General's office get involved?
-------------------- "When there is pain, there are no words." - Toni Morrison Posts: 4711 | From Washington, DC | Registered: Mar 2004
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CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
Sickening, just sickening.
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
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posted
He needs a jury! He can get that at federal, can't he? I was talking with my lawyer friend about it the other night - it sounds like federal means jury.
I hope that would be better, except that half the world is very ignorant about Lyme also.
But, I think that it is ludicrous thatg these rigged and biased medical "panels" of "experts" have the right to determine his future. It is so sickening!
Posts: 588 | From Rhode Island | Registered: Jun 2006
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quote:Originally posted by luvdogs: He needs a jury! He can get that at federal, can't he? I was talking with my lawyer friend about it the other night - it sounds like federal means jury.
My understanding after reading up on CT law is that after appeal to the medical board it would go to state superior court (no jury), and then state appellate court if necessary. Never goes to federal.
CRIMINALS. Posts: 621 | From US | Registered: Jun 2006
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disturbedme
Frequent Contributor (1K+ posts)
Member # 12346
posted
!!!!!!!!!!
-------------------- One can never consent to creep when one feels an impulse to soar. ~ Helen Keller
My Lyme Story Posts: 2965 | From Land of Confusion (bitten in KS, moved to PA, now living in MD) | Registered: Jun 2007
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posted
And they don't give a flip about the children who will be doomed to a lifetime of misery when they have no doctors to help them.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
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sometimesdilly
Frequent Contributor (1K+ posts)
Member # 9982
posted
sickening for sure, but totally unsurprising, and i have to think not a surprise to Jones' legal team.
as difficult as it may be face, this medical board has ALWAYS been very clear in their intent to bring Dr. Jones to his knees, and nothing but a higher legal- or political- authority, if that, will stop them.
please don't just walk away mad or despair at this news- DO SOMETHING TO HELP DR JONES!!!!
dilly
Posts: 2507 | From lost in the maze | Registered: Aug 2006
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posted
$^$*&$@#!$@##@#@ !!!!!
Posts: 983 | From The sky | Registered: Feb 2005
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
Dilly is right; this next step in Superior Court is a good shot for him.
We need to donate all we can to his legal fund.
We are very disappointed this did not work, after all the excitement and hope that it brought about. We can only hope it will bear some significance in the appeal.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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Beverly
Frequent Contributor (5K+ posts)
Member # 1271
posted
Posts: 6638 | From Michigan | Registered: Jun 2001
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bettyg
Unregistered
posted
hog wash! ducks win 1 more round!!
the nice guys finish last again! *********************************
your other icons i totally agree with BS!
yes, MORE ACTIVISM and $$ !!! as if we are NOT paying enough as is:
out of pocket lyme treatments, labs, body testings, IVs, going to other states to get help, travel expenses: GAS $$$, lodging, food, another driver, etc.
THOSE OF YOU WITH PRESIDENTIAL CANDIDATES COMING TO YOUR STATES .... GET OUT IN FORCE! **************************************
HAVE YOUR LETTERS ABOUT YOUR SITUATION READY! `````````````````````````````````````````````
GET ANYONE NOT SIGNED ON AS "CO-SPONSOR" OF OUR LYME BILL ... MC CAIN possibly only one left to sign!!
cosponsors signed on still left in race are:
HILLARY AND OBAMA !! ******************* THANK hillary and obama for their support!! get them to discuss lyme IF possible!!
RAISE LYME QUESTIONS AT TOWN HALL MEETINGS, ETC.
sorry, yes, i'm shouting to get more involved with our FUTURE PRESIDENTS coming to your states NOW up to tsumani day, Feb. 5 !!
write more letters to your LOCAL NEWSPAPERS about your lyme, dr. jones' case where he's only 1 of 12 plus NATIONWIDE KIDS LLMDS to treat thousands of lyme kids nationwide and internationally!
i was hoping for FAIRNESS & JUSTICE TODAY; it's NOT alive and well in the USA right now!
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posted
How many judges are involved at the state superior court and the state appelate court levels? Could this case potentially go to the supreme court?
Posts: 13117 | From San Francisco | Registered: May 2006
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aklnwlf
Frequent Contributor (5K+ posts)
Member # 5960
posted
Am very sorry for Dr. Jones. It's hard to stand up against the powers that be.
Things can't remain this way forever. More and more people will be contracting these horrible diseases.
As the illnesses and deaths mount, reality won't be able to be ignored and hidden for much longer.
Those powers that be will have alot to answer for. What can we do to make it happen?
-------------------- Do not take this as medical advice. This comment is based on opinion and personal experience only.
Alaska Lone Wolf Posts: 6155 | From Columbus, GA | Registered: Jul 2004
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Areneli
Frequent Contributor (1K+ posts)
Member # 6740
posted
Since we have here a mixed issue: 1. Lyme treatment and violent opposition to Lyme treatment 2. Prescribing abx over the phone
I don't clearly see why pursuing this issue further at all cost. Are we using the Lyme community money wisely? The resources are not unlimited.
Wouldn't it be better instead to use this saved perhaps another million dollars legal fee on media campaign, research or some other noble purpose rather than defending this kind of hopeless case?
I mean I respect deeply Dr Jones and want him go clear of this absurd accusation but here the result of the appeal could be very same or similar.
What do you think money wise?
Posts: 1538 | From Planet Earth | Registered: Jan 2005
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posted
Areneli - I think it is a wise use of our money. Dr J treats the kids. He is an example of a targeted LLMD. We need to defend his right to treat and the right of all LLMDs to treat. The publicity of this case also serves the Lyme/co cause. Lots of "hopeless" cases get won in the long run historically.
Posts: 13117 | From San Francisco | Registered: May 2006
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posted
Is Dr. J taking new patients with this outcome. I tried to make an apt with him yesterday (I forgot about the ruling) and they said they would have to take my information and give me a call when they new when appointments would be open. I know it is a long wait to see him, I just thought it was strange that they wouldn't give me any idea on an appointment. They didn't call back today either. I went ahead and made an appointment with Dr C in March but had really wanted Dr J. Posts: 183 | From Texas | Registered: Nov 2007
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
Well that's what they told me too when I called a couple months ago; we played some phone tag but I didn't have an appt yet. I do believe he is still taking pts; just wanted to mention I was told the same thing.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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sometimesdilly
Frequent Contributor (1K+ posts)
Member # 9982
posted
Dr. J is human, and his staff is human.
They deal every day with a crushing load of child patients, and parents who range from very concerned to wildly desperate.
On top of that load they are all being forced to confront the additional burden of having their state's medical board crusade against their very existence and Dr. J's right to treat his patients with the knowledge he has earned from his vast experience with pediatric Lyme.
Because with Lyme the known universe turns upside down, if i were you i wouldn't expect to have the same experience you have with your run of the mill ,assembly-line duck doctor's office.
as to whoever it was who questioned throwing funds dr. j's way (sorry, no memory here)-
i don't blame you for wondering about where to put finite resources, nor for wondering if dr. j's battle is a lost cause, and thus whether it is pointless to contribute to his legal fund.
personally, i think it is way too early to assume that dr. j's situation is hopeless; i htink it will become that only if he loses the Lyme community's full support.
of course it is tough to go against the mainstream of anything, at anytime. Some of us do that some of the time.
It takes a person of extraordinary courage to not only keep swimming against the current, but at the same time to do continuous battle with folks who are intent upon absolute destruction of anyone who dares to disagree with them.
Dr.J is such a person, and i know with every cell in my being that he will be there until the bitter end for my son and for every other child with Lyme fortunate enough to have him as a physician.
The very least we can do for this man and doctor is to stand by him until that bitter end.
Personally, I'm not just standing by him but actively FIGHTING FOR HIM in any and every way I know how.
Please join in that fight. YES it is worth every penny and every minute of your time.
dilly
Posts: 2507 | From lost in the maze | Registered: Aug 2006
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
Dilly, Thank you for your eloquent response; I knew someone would do a great job addressing that post!
Having been at Dr Jone's final hearing, there is no question that this was IN NO WAY about him prescribing over the phone,.
Were that the case, this would never have taken a year and a half, nor would the state have called in Dr Shapiro to testify as an expert witness. It was all about the great Lyme controversy.
I am really disappointed about the board refusing to even consider the motion that was filed. I feel helpless but not hopeless. I hope this will be a factor in the appeal, and that we can help in some small way.
I would do anything I could for Dr Jones, and I never even met him before Dec 18th. Words cannot describe how LITTLE this all had to do with him refilling a five day prescription over the phone; it was abundantly clear to those of us who were there.
You can watch the hearing on CTN tv; if you haven't you should, then it might make a whole lot more sense.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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Aniek
Frequent Contributor (1K+ posts)
Member # 5374
posted
This will never go to the Supreme Court. Physician licensing is regulated by the states and not the federal government. The U.S. Supreme Court can only hear a case that has federal issues.
There is never a jury trial related to doctor discipline. The structure of the process is that doctors are supposed to regulate themselves.
-------------------- "When there is pain, there are no words." - Toni Morrison Posts: 4711 | From Washington, DC | Registered: Mar 2004
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bpeck
Frequent Contributor (1K+ posts)
Member # 3235
posted
There's a handfull of powerfull Docs that have their reputations at stake ( and possibly big bucks from an eventual Lyme vaccine ). They are the voice due to their lofty positions. and the "lower" status docs- the practising physicians- better follow the guidelines set forth by them- or they can be prosecuted.. its the way the system is set-up.
With the sorry state of (Lyme) testing- and all the controversy about treatment - AND ALL THE DOCs either prosecuted OR forced in to retirement (Dr. B and Dr. D) to save their careers is EASY to railroad other Docs who continue treatment to looking like Kooks. Look at what happened to Karen Dickinson (not an MD- but PHD who worked for Pfizer).. no one smarter or more intelligent - and if you followed her case- she was turned into a raving mad woman for persuing the conspiracy9And cover up) theories.-
I am usually not one to precribe to conspiracy theories.. I usually opt for IGNORANCE..well-meaning but incorrect dx... but this systematic attack on Lyme Drs. really makes me wonder.
please do a search, found at top under new post; and you can read about our MANY ATTEMPTS FOR OPRAH AND LARRY KING LIVE!
over 200 personal lyme stories are posted on OPRAH'S MESSAGE BOARD! we never heard didly squat on it.
one of our members works on oprah's staff; no luck there either.
i tried for a monthly email to larry king live without success, and those who followed my lead and sent stories too.
i also believe now in the conspiracy theory! last year members of our group and many llmds filmed for CBS OR ABC, and the show was to AIR ONE YEAR AGO, AND STILL HASN'T!!
robin123 and 3 others from calif. group filmed a 1 hr. lyme show shown on their local public broadcasting co. in san francisco; NO one would pick it up and run it!
look how long it's been in the works making lyme documentary UNDER OUR SKIN by Andy Wilson!
I do suggest for newbie's to go to oprah's message board....find DIRECT LINK on this board first and read ALL ENTRIES lymies submitted; heart-wrenching!
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posted
Maybe Andy's and Kris's documentary will reach people, once it's out. And I hear there's a film being made, called "Lymelife", starring some famous actors.
Posts: 13117 | From San Francisco | Registered: May 2006
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
What about Nancy Grace? She is my favorite, and she actually asks for people to contact her with stories.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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bettyg
Unregistered
posted
tracey, i think that may be a NEW one.
if you get a chance, do a search, found under new post
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