lymeladyinNY
Frequent Contributor (1K+ posts)
Member # 10235
posted
Last fall I went through sheer hell with meningitis and then complications with the PICC (blood clots, doxy burn in veins).
I was hoping against hope that I would never live through it again but yesterday my neck froze, I had a severe headache from my eyes all the way down to the middle of my back, and I had nausea and gagging.
I was given torodol (sp?) in the ER and it unfroze my neck but today I feel like a train hit me.
I've been going downhill for about a month now, anyway. All my bartonella symptoms came back (muscle spasms, abdominal pain) so my LLMD put me on levaquin again. I'm also taking biaxin/plaquenil.
Is it true that bartonella lives in the meninges? Could that be why I have such awful neck/back pain and stiffness? Is this just a herx?
I suffered from post-traumatic stress after last fall's fiasco and I had an anxiety attack in the ER yesterday as I lay on the bed waiting for the doctor.
Frankly, I'm scared to death and feel like I AM dying. My LLMD wants me to get a port for more IV. The thought has me in tears!!
I feel like I'm losing it - I'm in the pit again. Sorry to be so negative but that's where I am right now!!!
Thanks for listening, Lymelady
-------------------- I want to be free Posts: 1170 | From Endicott, NY | Registered: Sep 2006
| IP: Logged |
feelfit
Frequent Contributor (1K+ posts)
Member # 12770
posted
Gosh Lymelady, I feel very bad for you. I know how scary those symptoms can be and the anxiety that they produce....
I have made myself so anxious in ER that I have trembled uncontrollably almost levitating from the gurney.
I hope that you are given some relief soon. I have read your past posts about your eyes rolling etc....you have a right to feel frightened. This is a scary disease for some of us.
Just wanted to let you know that I am thinking about you and sending prayers your way...I have no other answers.
Feelfit
Posts: 3975 | From usa | Registered: Aug 2007
| IP: Logged |
posted
have you noticed this gets worse with season changes? just noted that it was fall and now in spring...is that a pattern for you?????
may be nothing, just noted in reading...
-------------------- Seeking renewed health & vitality. --------------------------------- Do not take anything I say as medical advice - I am NOT a dr! Posts: 830 | From TN | Registered: Aug 2007
| IP: Logged |
bettyg
Unregistered
posted
....SO SORRY lymelady to read about what is happening again to you.
how is meningitus diagnosed? i don't know honestly and curious to find out too since i have 24/7 neck pain from childhood injury.
best wishes to you. PRAYING that you can overcome this!
IP: Logged |
posted
lymelady... Ive gone through meningitis and encephalitis, so I know how scarey it can be. But the best course of action for your health is to calm down, think logically, and talk with your doctors.
If it is a recurrance of meningitis, then I would suspect that they would run blood tests, and probably talk about a spinal tap to look at your spinal fluid for bacteria, fungals, elevated proteins, high wbc, etc.
To ease your mind, talk with your doctor, have them run the normal tests to test for meningitis. Seeing a LLMD would help on the lyme front, but seeing a neurologist would help on the meningitis front. A neuro you can trust (I know, neurologist is often a dirty word around here), but a good neuro can order up mris/cts of your brain, look for inflammation, lesions, and other tests to sort out if it is indeed meningitis.
But you need to calm down and sort it out. The more frantic you become, the more anxiety will flare up, and that just makes all the symptoms amplified.
Posts: 514 | From . | Registered: Apr 2008
| IP: Logged |
lymeladyinNY
Frequent Contributor (1K+ posts)
Member # 10235
posted
Thanks for the comments/thoughts. I am doing better though still not as well as I'd like.
Happily, the stiff neck has not returned. It's hard to be rational when you're in severe pain. Thank God, I'm not there anymore (for now). In fact, I think I was having a herx.
Thanks again for being there.
- Lymelady
-------------------- I want to be free Posts: 1170 | From Endicott, NY | Registered: Sep 2006
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[group hug]](graemlins/grouphug.gif)
![[kiss]](graemlins/kissing.gif)
Printer-friendly view of this topic