sparkle7
Frequent Contributor (5K+ posts)
Member # 10397
posted
Is there a reason why people have to be so aggressively negative about alternative protocols, medicine, supplements, etc.?
A number of people, practicioners, etc. have posted information that could be of use & they were blackballed as if there was some kind of witchhunt going on.
Some of these posts were not overt advertisements. They were just offering alternative information about products or techniques.
Drugs are also products. Why don't people get into a frothing frenzy every time Plaquenil, Rocephin, or some other brand name is posted?
The drug companies make huge profits off of these "products" -more so than any alternative product.
Many people have very good results with alternative protocols.
In effect, the people who are negative about these alternative therapies are imposing a sensor on the entire flow of information that may be useful to people.
Maybe there should be a separate heading for alternative therapies?
I just don't think it's reasonable for people who aren't interested in an alternative approach to be fascistic about what treatments may help people.
I think many of us are intelligent enough to decide what forms of treatment we may want to pursue.
It doesn't need to be forced down our throats that antibiotics are the only way to get well.
They obviously don't work for everyone.
This is a great forum for information. I don't see why people are so intimidated by information about alternative solutions to this problem of Lyme.
I've wasted way more money on drugs & doctors who were mis-informed than on supplements or herbal protocols.
Who are you trying to "protect" by imposing your will on everyone's right to information & to choose what is best for themselves?
What may work for "you", personally, may not be effective for another person. I don't see why everyone with a different opinion should be ridiculed or accused of trying to sell some product.
Even if people do sell products... they may also have some insight to offer.
Posts: 7772 | From Northeast, again... | Registered: Oct 2006
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posted
i think people should try antibiotics first, and strong ones, and many different combos FIRST.
if that doesn't work, and after a few years they give up and try alternatives, then fine.
but I tried all these alternatives, was never even given the option of antibiotics, and for 10, maybe 20 years was left to get worse and worse while the disease ruined my body
I must have spent 2-3 thousand a year for 4 years on all kinds of alternatives: supplements, minerals, herbs, transfer factor, IV vitamin C, everything you can imagine
was never given antibiotics. I wasted all that money, I should have been treating the bacterial infections with antibiotics before they were left to ravage my body
that is why I personally am against the treatments and dont want new people to make the same mistake I made.
Posts: 615 | From maryland | Registered: Oct 2007
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cantgiveupyet
Frequent Contributor (1K+ posts)
Member # 8165
posted
i think maybe a separate forum would be good for this.
My bladder doesnt let me do most supplements, but most LLMD push them on me. SO, for me often I feel taken advantage of at the office visit. Ive spent a fortune on stuff I only used one pill of, and cannot return.
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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posted
Yes, roro, but I've never seen you personally assault someone on the board. It's one thing to think abx are the best option and to state your opinion as such, it's another thing to hijack a thread with bantering over the intentions of the original poster. You don't fall into the category of poster that Sparkle is talking about.
I'm tired of it, too.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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posted
I think the main advice should be to follow your doctor's advice. Develope a partnership with him/her. If you don't trust you're doctor you need to find another one you can.
-------------------- We keep the best of that which we give away. Posts: 5 | From Philadelphia | Registered: May 2008
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posted
I agree with you sparkle, there is no way harrassing and ridiculing remarks should be made toward people posting here just because someone is suspicious, without any evidence, that the person "may" have ulterior motives of selling something.
I'm tired of the nastiness and the rush to judgement (paranoia?) that I've seen here from a few here when someone new posts information about a product or treatment they think might be helpful.
Even if you're skeptical, you should be able to express your concerns in a civil manner. In the end all it does is diminish people's respect for the one doing the attacking.
I don't have a medical source where I can obtain long-term antibiotics so I am happy to have found other options and I am improving on them.
The greatest damage to my health that I've experienced is from misdiagnosis from incompetent doctors for years on end.
Posts: 590 | From Canada | Registered: Oct 2007
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cantgiveupyet
Frequent Contributor (1K+ posts)
Member # 8165
posted
i must have missed something. will have to read some of the posts.
I do notice more negativity lately, i think so many are just beyond frustrated too. It takes its toll.
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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sparkle7
Frequent Contributor (5K+ posts)
Member # 10397
posted
roro - I'm sorry that the approaches you took didn't help prior to abx. In my case, it would have been good to take abx right away but 9 years went by before I knew I even had Lyme...
I have always done better on herbal remedies or supplements. I'm not against drugs, at all.
It's just that throughout my life I've always had to research everything myself & decide the best treatment.
The remedies I pick usually help me much more than what any doctor has suggested.
I'm not saying that doctors are all bad or incompetent - but I know my body best & I trust my own judgement.
I'm doing quite well on the Cowden protocol. I'm really happy with the results. This may not be the way for everyone but it's going well for me.
Battling Lyme is a long winding road. It's good to know all the angles so you can chart a course that best suits your individual purpose.
If people don't like or agree with a specific treatment - there's no reason to ridicule or harass the person posting the info or people who might be interested in it.
I personally have no interest in the salt & vit. C protocol but it may help someone.
Just because something seems like the wrong idea for one person, doesn't mean they should be bashed & discouraged from posting.
You never know if something in that thread could be helpful to someone out there who is suffering.
Many people require many different approaches to wellness. I hope people can try to be a bit more open-minded about this.
There is no hard & fast rule on how to achieve wellness. If there was, I'd be doing something else right now...
Posts: 7772 | From Northeast, again... | Registered: Oct 2006
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