LymeNet Flash: Igenex results PLEASE help

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»	LymeNet Flash » Questions and Discussion » Medical Questions » Igenex results PLEASE help

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Topic: Igenex results PLEASE help

jentytib
LymeNet Contributor
Member # 14375

posted

Both of my boys were tested for Lyme becaue I am pos. Here are the results. All imput would help and thenks in advance.

Boy one
age 7 overall healthy
tested April, treated 30 days ceftin

IGG
41++

IGM
don't have the exact results but negative

Retest Sep
IGG Positive
34 ++
39 IND
41 +++

IGM
31 IND
41 IND

Currently being retreated for 30 more days ceftin
-----------------------------
Boy 2
Age 3 speech delays
Tested April, treated 30 days ceftin

IGG
41 ++

IGM
39 IND
41 IND

Retest in Sep
IGG Positive
34 ++
39 IND
41 ++

IGM
31 IND
41 IND

Currently being retreated for 30 more days ceftin

SOO, what does all this mean? Are the results better since they were neg at first, they were treated and are now IGG positive?

How do I know if this last 30 day round is going to be enough.

--------------------
http://alwaystrustyourgut.blogspot.com

Posts: 182 | From United States | Registered: Jan 2008 | IP: Logged |

Geneal
Frequent Contributor (5K+ posts)
Member # 10375

posted

Basically the Western Blot is an antibody test.

If your body is producing antibodies to Lyme, then more positive bands show.

Igenex recommends a 30 day run of antibiotics prior to testing.

To "prime" your immune system to post a response.

Thus, the probability of more positive bands showing up.

I have two children with Lyme.

One who is symptomatic...joint pain, fatigue, tremulousness, etc.

One who is more subjective with breathing difficulties at birth,

A hole in his heart at birth, very late to meet physical milestones, red pinnas, etc.

I believe both of mine to be congenital.

So... prior to taking my test results and bringing to the LLMD,

I did my homework. I went through and made a list of every possible/probable symptom.

Then off I went with them to a LLMD.

They are both doing well and have been receiving treatment for about one and a half years.

Do I think another 30 day course is enough?

No. However, my LLMD will not treat unless the child or adult has symptoms.

Regardless of the Western Blot results.

I would carefully research Lyme symptoms in toddlers and small children.

Also look for markers of symptoms of Lyme in children who may be congenital.

They both show Lyme specific bands.

Hugs,

Geneal

Posts: 6250 | From Louisiana | Registered: Oct 2006 | IP: Logged |

James Marschner
LymeNet Contributor
Member # 13073

posted

Normally, BB is highly evasive. It shields itself by hiding under pieces of the body's dead celss' membranes.

This way the body's immune cells can't bump into certain parts of teh bacteria...and subsequently doesn't make ab's to those parts of the BB.

Treatment will deters some of this activity, opening up more surface area on the bacteria for the body to recognize, and make new ab's against.

Therefore, the increase in number of (+) ab's AFTER treatment is actually a sign of slow progress.

Posts: 269 | From Valencia, CA | Registered: Aug 2007 | IP: Logged |

Lymetoo
Moderator
Member # 743

posted

Please don't stop with only 30 days!!!!

I agree with James and Geneal.

Print this out and read it several times....including all replies to the original post.

http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic;f=1;t=042077

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96223 | From Texas | Registered: Feb 2001 | IP: Logged |

James Marschner
LymeNet Contributor
Member # 13073

posted

Yes. Please keep going w/ abx.

You CAn take time off. Not like staph or strept infections where you stop abx and you get sicker in a matter of days or even hours.

Lyme is so slow growing that you can pause your abx for a month and not lose too much ground.

Ceftin doesn't do much though. I remember being on it for my 1st month (Dr. Sc-FL.) and got chronic fatigue symptoms only. Still sucked.

After that month...went to Rifampin and Zithromax. Then I started flipping out! I remember not understanding why I couldn't drink the beer I had in my hand (1-2 hours after my first dose!)?

Taking oral ABX for Lyme/bart/babs is like pouring a bucket of hot water on top of an iceberg!....takes lots of abx, and lots of time.

Posts: 269 | From Valencia, CA | Registered: Aug 2007 | IP: Logged |

djf2005
Frequent Contributor (1K+ posts)
Member # 11449

posted

ceftin is not a good abx to use for mono therapy. especially for young ones w speech and developmental delays.

high doxy or other intracellular drugs combined w at least one other drug such as a macrolide or perhaps bicillin would do the trick much better IMO.

good luck.

derek

--------------------
"Experience is not what happens to you; it is what you do with what happens to you."

[email protected]

Posts: 2269 | From Lansdowne, Pa | Registered: Mar 2007 | IP: Logged |

jamieL
LymeNet Contributor
Member # 16563

posted

I didn't think doxy was recommended for kids because it was a tetracycline and those stain the developing teeth?

--------------------
Diagnosed with :yme and mycoplasma pneumonia Aug 08.
Treating with Doxy and Ceftin ever since. 15 sessions in hyperbaric o2 chamber

Posts: 183 | From all around | Registered: Jul 2008 | IP: Logged |

WildCondor
Unregistered

posted

Doxy should be 400 mg/day and any IND means there is SOMETHING there..and on a Lyme specific band thats a positive. You have to go by symptoms anyway! [Smile]

IP: Logged |

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