posted
So I went to discuss my herniated discs in my neck, and showed her my MRI reports...
She obviously felt that I needed an expert opinion on that, from someone like a Neurosurgeon and such, ofcourse I kinda knew that.
But then I had asked her if she knew anything about Lyme disease...
She replied "Ofcourse and I have treated many"
I smiled and was glad in hopes that someone actually knew...
But when she said that after 21 days of ABX one would be cured,
I almost lost my temper and explained as much as she was willing to hear, about chronic Lyme and the Bull***t 21 day protocol to deal with something that has no Cure for today...
I asked her if she ever did follow up tests with them, she said "What For ?"
So she advised me that I still stick with my so called LLMD and he would obviously know better.
Anyways just wanted to share this with you people...
Posts: 570 | From philadelphia, pa | Registered: Dec 2008
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posted
This post reminded me that I wanted to share a story, rather different than Eric555's.
Last week I had a great experience with my primary care doctor. I'm a new patient, and I chose a practice that emphasizes holistic treatment. They have MDs, NDs, chiros, massage therapists, LAc's, etc, and they all work together.
So I was hopeful that my new MD would be open-minded. I printed out some materials from ILADS to offer her.
She said that she was happy to hear that I was receiving treatment for Lyme, and was *excited* that I'd brought her more information! She said she was very interested in learning more!
So while she doesn't have any experience herself with treating Lyme, she also doesn't automatically buy into the IDSA nonsense.
And she didn't give me any trouble with all the abx and supplements I'm taking.
*And* she sympathized, saying that "these chronic illnesses can really wear you down," and wished me all the best.
All I can say is WOW.
So, don't lose hope! There are good and open-minded primary care docs out there! And if anyone in Seattle wants her name, just PM me.
-AnnaL
Posts: 398 | From By the Salish Sea | Registered: Dec 2008
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
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eric,
Well, it's actually good she does not do follow-up tests as they are not that helpful with lyme and she'd surely not know to look at it from several angles.
You might also ask your LLMD for a referral for your neck. If you do require surgery, it would also be good to have a surgeon familiar as steroids are often involved in surgery and need very special care regarding lyme patients.
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Anna,
Thanks so much for sharing your experience. That's good to hear.
seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
Another PCP who says 'go to the experts.' Wonderful. Why follow-up or re-test patients? The PCP already made money on the office visit. That would make too much sense. Come back if you get an earache or something easy.
I'm sorry about your bad experience. Was your PCP receptive to running any of the labs? I'm guessing she said go see specialists for those too.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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dmc
Frequent Contributor (1K+ posts)
Member # 5102
posted
Be warned cervical chiropractic adjustments can cause strokes. There is a bill being proposed (hearing was the same day as the lyme bill hearing).
People talking about their strokes and one man's young wife dying from the stroke.
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