posted
my son is 8. I believe i gave him lyme. though he is not severly impacted like those typically with congential lyme.
Weird symptoms since birth including: low body temperature, difficulty swallowing, panic attacks, palpitations, mood swings, joint locking.
Did 6 months of abx (at 7) and herbs, diet changes, and chiropractic with improvement. Developed problems with frequent urination that hasn't gone away.
Off abx for 8 months and then got reinfected. Got on abx immediately with herbs for two months.
off for 3 weeks now. and seeing an increase in "symptoms": increase in inattention, hyperactivity, joint locking, palpiations.
Could hyperactivity be a symptom? Are any of your kids dealing with these "minor" issues over long periods of time?
What has been more helpful abx or herbs?
Part of me wonders if I automatically attribute every little thing that goes wrong to lyme when its really "growing pains."
But I do see patterns from when he is on and off medication.
I don't know, i'm just rambling. I feel bad for him. I know how if feels to have "weird things" wrong with you that no one can explain or understand. How you can go from crap to good over the course of a few hours.
I know he's scared knowing that he has the same thing as me, and he has seen me bad.
Well, i'm not sure what i'm askig. Just want to hear from others in similar situations. thanks
Posts: 368 | From freehold, nj | Registered: May 2007
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glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
Sorry, Your little guy is sick. I think parasites and worms are always a concern in humans especially with Lyme disease.
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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tickbattler
Unregistered
posted
Hi there,
Sorry to hear you are dealing with this. My three young children are all being treated for lyme and coinfections (twins age 4 and 2 year old). Based on my research and what I have seen with my kids, I would say yes, he probably is infected.
One of mine was very hyperactive before treatment and also had anxiety.
Both of my twin boys had attention problems and behavior problems.
Many nightmares and waking up grumpy in the morning.
Two of mine have cried a lot in their sleep.
My twins both have their ears turn bright red throughout the day.
Bed wetting and frequent urination are both lyme or bartonella symptoms too.
My boys also had insomnia and early awakenings.
Lyme is often misdiagnosed as ADHD. I would definitely see a pediatric LLMD. We see Dr. J in CT and he is wonderful.
You will need to treat until symptoms are gone and then for 2 months after that. Trust your instincts. I wish I had started treating my kids earlier but everyone (pediatrician and others) was doubting the lyme thing and I was right all along.
seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
Can you really give a young child salt/C? May be scary.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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2roads
Frequent Contributor (1K+ posts)
Member # 4409
posted
Hey,
Kids are more resilient then we are, so try not to compare.
My daughters symptoms started out urinary. Frequent urination was the issue....going every half hour.
She was a bit hyper, I used to suggest she run around the perimeter of the house ten times. Little did I know we were tick infested.
It progressed to insomnia, hip-joint pain and stomach acid with pain around the naval. She would hobble a little when she walked.
She was CDC pos for lyme. The stomach was biopsied and Bart was pcr'd there. The bart did not show up in her blood.
She was treated for about 1.5 years.
Asside from her sleeping with the light on at night(weird) and 14 year old moodiness, Doc J blessed her off. She is a High school state swimmer in the freestyle and her fly is real close.
Is this the end of her saga...only God knows. But, I'l take it-hang in there
2roads
Posts: 2214 | From West Chester, PA | Registered: Aug 2003
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glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
Seek,
Yes in small doses. I read that some people on lymestrategies are giving their children salt/c in small doses with success.
It's all about amt to body weight. Just like herbs such as humaworm have childrens doses. I remind you also that we give children strong antibiotics according to their weight.
Of course everyone should check with their physician.
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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bettyg
Unregistered
posted
fan, here is geneal's kids symptoms list:
``CHILDREN'S'' LYME SYMPTOMS compiled by Geneal 6-07 From ``GENEAL'' June 2007
I have been doing some research regarding Lyme and signs/symptoms in small children.
I know many of you have small children that you may be concerned about. I believe my youngest child (4yrs old) may have gotten this disease from me.
For All Children
-dizziness -neck pain and stiffness in almost 90% -sore throats -swollen lymph nodes -excessive thirst, -Chest pains in at least 70%, some have palpatations -Sense of air hunger or shortness of breath, dry cough
-abdominal pain in about 50%, can mimic acute appendicitis -sometimes vomiting, heartburn -rashes that come and go, malar rashes, new psoriasis
-migratory arthralgias, joing pain in 50% to 100% -myalgias in over 80%, back ache, morning stiffness, pain at rest, muscle weakness
-frequent illnessses, dark circles under their eyes -intermittent red, hot pinnae of ears -sleep disturbance in over 80%
-Neurological symptoms are protean and can appear AT ANY TIME during the course of infection *hypersensitivity of skin, scalp and hair *Hypersensitivity to noise, light, smell *Alterations of taste *poor balance and coordination *Uncharacteristic behavior outbursts, mood disturbances, depression *social withdrawal *New onset phobias *Oppositional behaviors *Obsessive compulsive disorders *Deterioration in school performance in over 90% *Difficulty with concentration and attention in school with easily distractibility as well as "brain fog" in over 80% *New onset of ADD
*When measured with formal neuropsychiatric testing, children demonstrate defects in auditory and visual sequential processing
Less Commonly:
*Movement disorders-spaticity, ataxia, motor or vocal tics *Cranial neuropathies, e.g. Bell's Palsy or optic nerve neuritis *Peripheral neuropathies-numbness and tingling, distal parathesias, subtle weakness
Pre-Schoolers and toddlers
- Modd swings, sudden emotional outbursts - Irritabiity - Personality changes - Regression of motor and social skills (developmental milestones) - Changes in play behavior, tire easily, less active
- Trouble falling asleep, frequent awakenings - Nightmares, new phobias, recurrence of seperation anxiety - Diaper rash unresponsive to normal treatment - Frequent URI's, ear and throat infections, bronchitis, pneumonia
Congenital Lyme Disease
* Infants can be infected with Borrelia transpacentally in any stage of pregnancy and/or via mother's breast milk.
* The co-infections: Babesia, Bartonella, Mycoplasma and perhaps even the Ehrilichias can be transmitted transpacentally to the developing fetus.
* Gestational Borreliosis can be associated with repeated miscarriages, fetal death in utero, still births, hydrocephalus, cardiovascual anomalies,
intrauterine growth retardation, neonatal respiratory distress, and maternal toxemia of pregnancy.
* Infants either infected congenitally or from breast milk can have
- Floppiness with poor muscle tone - Irritability - Frequent fevers and illness early in life - Joint sensitivities and body pain - Skin sensitivity - Gastro esophageal reflux - Developmental delays -Learning disabilities and psychiatric problems
* Infants bitten very early in life will have many of the same symptoms - loss and decline in developmental milestones.
I found this to be a pretty inclusive list of signs/symptoms for small children, infants, and those suspected of congenital Lyme.
Sadly, my two children do exhibit many of these symptoms and both have positive bands for Lyme via Igenex diagnostic lab in PALO ALTO, CALIFORNIA. Geneal, 2007
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From my experience with my own child, behavioral symptoms were a huge component of lyme, particularly in the first 6 months of tx.
For my son, who is about a year younger than your child, there is no question that he had lyme; he had over 20 em rashes, and tested cdc positive three times over the first year of tx.
His symptoms: migratory joint pain, headaches, a stomach ache that literally lasted for over a year, encopresis (he was unable to feel pending bm's, so 3-5 potty accidents a day), for 2 years, mood swings, from very tired/poor energy in the am, to bouncing off the walls, yelling, screaming, physically and verbally aggressive in the afternoons, then back to normal around dinner time. EVERY DAY. OCD-like sxs, scrubbing floors, tantrums that would last for hours because stuff wasn't lined up 'just so,'
Light and sound sensitivity. Dark circles under the eyes, red ears. Unable/unwilling to eat any food with any flavor.
On the school front, he seemed to lose skills, like letter sound recognition and early reading skills. He had night sweats, and the last sx for us to discover (although he probably had it all along) absence seizures (right temporal lobe).
We went the abx route, as our son would throw a major tantrum any time we tried to give him any thing that was mixed in with food, including probiotics. For us, it seemed counter-productive to give him something if he spent an hour or more screaming about it.
His current sxs: he gets sweaty one to two nights a week now. We no longer see any evidence of seizures, but are still waiting for his next eeg to verify that the seizures are over. That's it.
So yes, in my non-medical opinion, it is very possible that what you are seeing with your child is lyme. Perhaps it't time to go back to the llmd, and see what he thinks??
Hope all goes well for you and your little one, kp
Posts: 394 | From tinton falls nj | Registered: Jul 2007
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sometimesdilly
Frequent Contributor (1K+ posts)
Member # 9982
posted
Living in fear that your child has congenital Lyme is an absolute nightmare for any parent.
Not the least part of the nightmare is never knowing what is "normal" physically, mentally or emotionally in a child who might have been sick from the first minute of life.
If your child has even the slightest chance of having Lyme--and yours did for sure, as I understand it--it is entirely rational and completely understandable for you to worry about every sneeze. It is also hugely, unbearably stressful.
Ditto the advice to check back with the doc who has treated the Lyme.
From my own experience I can tell you that hyperactivity was in the past a symptom of Lyme for my congenital Lyme son, and even going on 2 years into treatment, behavioral symptoms still dominate.
A very sudden and drastic decline in my son's emotional well-being at age 4 in fact signalled to us that he had gone from being perhaps somewhat sometimes maybe who knows symptomatic to no doubt about it all cursed with Lyme.
My gut told me he had it all along; even after it was clear to us that he did, though, we had to fight the profound ignorance of his pediatrician who saw nothing abnormal and who refused to believe my son had Lyme.
Trust your gut, and the patterns you are seeing. (and please, please, whatever else you end up throwing into the mix, abx are indispensable and salt "therapy" for an 8 year old...indefensible.
Posts: 2507 | From lost in the maze | Registered: Aug 2006
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