posted
I am pretty sure I have this and my son might too. I requested the tilt table test but my cardio dr wouldn't do it. He doesn't agree with the test. I have seen this as a cause of Lyme. Good luck!
-------------------- My lyme disease blog: http://lymetimes3.blogspot.com/ One BIG Lyme family! I tested CDC + 10/08 My mom Igenex + 11/08 & My brother Igenex + 4/09, My 2 boys some + & IND bands, clinical diagnosis 3/09 (youngest has Aspergers too) Posts: 470 | From Painesville, Ohio | Registered: Mar 2009
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LisaS
Frequent Contributor (1K+ posts)
Member # 10581
posted
Why doesnt he agree with the test? Im so nervous to get it done!
posted
I don't know? I didn't like him anyways. But he didn't do that test at his office. I asked to be referred to someone else. He said I was fine of course. That was right before I figured out it was Lyme.
Yeah I would be a little nervous. They do try to make you faint. But I am sure you will be fine. I know people who have had that test done.
Let us know how it goes.
Amy
ps-just curious why you are getting it done?
-------------------- My lyme disease blog: http://lymetimes3.blogspot.com/ One BIG Lyme family! I tested CDC + 10/08 My mom Igenex + 11/08 & My brother Igenex + 4/09, My 2 boys some + & IND bands, clinical diagnosis 3/09 (youngest has Aspergers too) Posts: 470 | From Painesville, Ohio | Registered: Mar 2009
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posted
By the way Lisa. We know each other from other sites including myspace. I am "Amy is ticked at lyme disease" on that site.
-------------------- My lyme disease blog: http://lymetimes3.blogspot.com/ One BIG Lyme family! I tested CDC + 10/08 My mom Igenex + 11/08 & My brother Igenex + 4/09, My 2 boys some + & IND bands, clinical diagnosis 3/09 (youngest has Aspergers too) Posts: 470 | From Painesville, Ohio | Registered: Mar 2009
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posted
I am having the test done due to constant dizziness/lightheadedness coupled with a slow heart rate and dilating veins. I believe they are testing for dysautonomia.
I was just curious as to whether or not it is obvious if you faint during the test? Sometimes I pass out and am only "out" for a few seconds and then come to once again.
-------------------- Lisa D Posts: 103 | From MA | Registered: Jan 2009
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Shosty
Unregistered
posted
What kind of specialist usually tests for POTS and/or dysautonomia?
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Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
Go to Wildcondor.com and scroll down to Neurally Mediated Hypotension (NMH). There is a bunch of links on the subject. Here's one of them:
posted
My cardiologist diagnosed me with POTS without doing a tilt table. He said it was a clinical diagnosis based off the symptoms I have and the test was not necessary.
My heart rate increases and my blood pressure drops when I am vertical or stand.
-------------------- Lyme, Babesia Microti, possible Bart. Posts: 173 | From A little south of sanity - PA | Registered: Jan 2009
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'Kete-tracker
Frequent Contributor (1K+ posts)
Member # 17189
posted
"it was a clinical dx based off the symptoms I have & the test was not neccessary"
EEya kar-EE-ma! These docs have no issue dx'ing something like POTS clinically, but when it comes to Lyme, "Oh, the Lyme panel was negative... You don't have Lyme... You're labs are all fine. You're fine."
Hope they get to the bottom of it, so to speak. (Yes, there IS a known connection between Lyme & these postural heart-rate issues. I had it for awhile.)
Posts: 1233 | From Dover, NH | Registered: Sep 2008
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posted
Good luck, I was dx with pots by the mayo clinic bf lyme dx. I had two tilt table tests and it does make you feel pretty dizzy and awful. Your heart rate goes up and your bp goes down. they will lower the table if you get too sick, just tell them. Yes, pots is very common mis dx and the fludrocortizone, midodrine, etc, they gave me did not help. The thing that cured my symptoms was minocycline and I am also on atelonol for rapid heart rate.
Posts: 63 | From Clarkston, MI | Registered: Sep 2008
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posted
PS- my lme western blot at mayo clinic was negative. the way I was dx with lyme was from the cd-57 test and ONE igM band 41..... the current blood tests for lyme are not all-inclusive. Hopefully science will catch up soon.
Posts: 63 | From Clarkston, MI | Registered: Sep 2008
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LisaS
Frequent Contributor (1K+ posts)
Member # 10581
posted
Hi everyone, Al Ill send you an email! Hi Amy from myspace and hi and thanks to everyone who responded.
Well I survived the test. And as much as I faint or near faint, they could not get me to today. They put as much medicine in the iv as they could and did it for an hour and a half. My heart was punding out of my chest but I still did not faint.
So frustrating. Just another thing for my doctors to blame on anxiety.
On to my next test, which is another EMG (muscle/nerve) test, this time on my legs.
Capa, they have you attached to leads on your chest and a Doctor and nurse sit and watch your blood pressure and heart rate. They tell you to tell them if you get lightheaded or have any weird symptoms. Good luck with your test! Let us know how it goes.
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and hi and thanks to everyone who responded.
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