lymetwister
Frequent Contributor (1K+ posts)
Member # 19590
posted
Having trouble getting a f/u with my regular guy and I will get to see him, but I saw another Neuro doc. today who is more local.
He says the 1 WBC in my CSF accounts for the 100% Lymphocytes in my CSF. The range is 1-5, so if I had say 1 Lymphocyte and 1 Monocyte, then the Lymphocyte count would be %50 and be closer to the normal range.
If I had 5 WBC's and each one was a different type of WBC then it would be 20%.
The bottom line is that he says it's normal. He completely dismissed my symptoms and asked why I wasn't working.
When I spoke about Lyme, he chuckled and said we are all exposed to Lyme and there is no such thing as CLD.
I was chuckling inside while at the same time returned to feeling miserable today. He suggested a psychiatrist and to try and get back to work even after I told him all of my horrible symptoms.
I agree, I need to get back to work, but I can hardly make meals for my kids right now more or less go out the door and do any kind of work.
Lyme is not going to light up the way everyone thinks with the IVIG. IVIG are simply the proteins which act as antigens from other people, so the way I understand it, there are no christmas trees and once it's out of me, I should be back to more of a baseline.
I can't believe the break I had yesterday only to feel so bad again today. My body is aching and I'm freezing again. This is a new symptom for me. I can't even go out into the heat and get warm. It went away late in the day yesterday and the sky cleared, but it returned at about 12pm today.
I guess I'll take a percocet like I did yesterday and see what that does.
Sure feels like my body is fighting something.
I may try and get on something from the Psych MD, not an SSRI, as I can't tolerate them, but something to calm down my brain. I need some relief and more than just a few hours.
LT
Posts: 1227 | From District of Columbia | Registered: Mar 2009
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Sorry the neurologist couldn't help. Hopefully your regular guy is better.
Seing a psych can be a good idea. People with Lyme often throw out the suggestion, as it is usually given by a doctor who thinks it is "all in your head"
But dealing with Lyme can be difficult, and seeing a psych can be really beneficial.
Also- if they are any good, they will be able to tell it is not in your head. My naturopath has many people referred to her from psychologists.
You might even be able to get them to write a note in your medical files, saying that your illness is not in your head, and something is physically wrong with you.
Hopefully you find some relief!
Posts: 503 | From Alberta, Canada | Registered: Jun 2009
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AliG
Frequent Contributor (1K+ posts)
Member # 9734
-------------------- Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner. Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006
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posted
Ooh- I just remembered. There is such thing as Lyme-literate psychologists, too. But if they are like LLMD's, and don't take insurance, they could be expensive.
Posts: 503 | From Alberta, Canada | Registered: Jun 2009
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
What's a LL Pysch do worth paying for when out-of-network? Do they primarily give you assurance it's not all in your head? I can't see a reason to pay a premium when they all push meds anyway. I've always wondered. Charging extra seems unfair. It's not like they are under scrutiny by medical boards. Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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bettyg
Unregistered
posted
Twister, thx for posting your update, and good luck to you. hugs
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