LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » Does anyone have spine pain (the whole spine hurts) as a babs symptom?

 - UBBFriend: Email this page to someone!    
Author Topic: Does anyone have spine pain (the whole spine hurts) as a babs symptom?
AZURE WISH
Frequent Contributor (1K+ posts)
Member # 804

Icon 1 posted      Profile for AZURE WISH     Send New Private Message       Edit/Delete Post   Reply With Quote 
Does anyone have spine pain (the whole spine hurts) as a babs symptom?

I was wondering if anyone knose what causes it? Inflamation of the nerves running through spine?

I was wondering if anyone has found anything that brings relief?

My head also hurts alot. between this and my spine I spend most of my time laying flat on heating pads in a ton of pain (plus whole long list of other symptoms). So it would be great if I could find some relief and maybe get to sit up, turn my head ect more.

Thank You [Smile]

--------------------
multiple chemical sensitvity group:
http://www.lymefriends.com/group/multiplechemicalsensitivities

Group for artists. All media welcome:
http://www.lymefriends.com/group/creativecorner


http://groups.yahoo.com/group/Lyme_Artist

Posts: 3860 | From nj,usa | Registered: Mar 2001  |  IP: Logged | Report this post to a Moderator
kelmo
Frequent Contributor (1K+ posts)
Member # 8797

Icon 1 posted      Profile for kelmo     Send New Private Message       Edit/Delete Post   Reply With Quote 
Yes, my daughter has that issue.

MRIs showed nothing. She finds relief with a Thermotex infrared heating pad. (found it on Amazon) It's pricey, but she has said it was worth every penny.

It penetrates deeper and doesn't burn the skin.

Other than that, Tramadol (she was on vicodin and percocet, but started to rebound so she dumped them).

We are now wondering if it's a side affect of an anti-psychotic medication she was given for sleep.

She is weening off it now, the withdrawl symptoms are minor, which means her brain is healthier than it was three years ago.

Hopefully, when she gets off this med, the pain in the back will subside.

Don't know what else to tell you.

Posts: 2903 | From AZ | Registered: Feb 2006  |  IP: Logged | Report this post to a Moderator
paulieinct
LymeNet Contributor
Member # 17514

Icon 1 posted      Profile for paulieinct     Send New Private Message       Edit/Delete Post   Reply With Quote 
How do you know this is Babs and not Lyme? I have spinal pain over 25 years. I know now it was Lyme all along. I am 61 and have the spine of an 85 year-old man. Riddled with bone-spurs, degenerated disks, central and foramenal stenosis. I've already lost 2 1/2 inches in height.

Celebrex made a HUGE difference for me.

Now that I'm treating for Lyme with abx, much of the pain and stiffness (except for herxes) is diminishing. Borrelia loves tendons, ligaments, and cartilage, and all of those tissues run up and down your spine.

Borrelia also loves scar tissue, so if you've ever had surgery, the spirochetes hang out in the post-surgical scar tissue causing alot of the post-op stiffness and pain many people feel.

The more I learn about this disease, the more I am convinced that many of the orthopedic surgeries and joint replacements being done are due to Borrelia-ravaged joints and tissues.

We have a huge orthopedic practice in town with about seven surgeons making money hand over fist doing surgeries on Lyme-ravaged joints. They have absolutely NO INTEREST in finding out if there is an infectious etiology involved in these cases.

After having surgery after surgery after surgery for various orthopedic problems, I finally asked their hand surgeon if he knew of any disease or syndrome that could be causing all my orthopedc problems, most recently a sudden, almost overnite, stiffening of all my fingers

causing them to lock in a clenched position, with trigger-finger in several of my fingers. He replied, "Not really. I'm just a mechanic. I fix the mechanical problem. You need to see a Rheum. doc for that."

It wasn't long after that that I did my own research, realized it had to be Lyme, and finally got the pos. WB thru IGENEX.

--------------------
Sick since at least age 6, now 67. Decades of misdiagnosis. Numerous arthritic, neuro, psych, vision, cardiac symptoms. Been treating for 7 years, incl 8 mos on IV. Bart was missed so now treating that.

Posts: 765 | From nw ct | Registered: Sep 2008  |  IP: Logged | Report this post to a Moderator
AZURE WISH
Frequent Contributor (1K+ posts)
Member # 804

Icon 1 posted      Profile for AZURE WISH     Send New Private Message       Edit/Delete Post   Reply With Quote 
Kelmo - thank you about the info for the thermotex heaintg pad. I will look that up.


paulieinct - I think it is a babs symptom (for me) because when I add or increase a babs med it gets worse.

I really do not think it is bone/disk issue for me. I have a feeling its an inflamation thing or nerves . unfornately i am allergic to celebrex but I do take somenatural anti inflamitory stuff.

--------------------
multiple chemical sensitvity group:
http://www.lymefriends.com/group/multiplechemicalsensitivities

Group for artists. All media welcome:
http://www.lymefriends.com/group/creativecorner


http://groups.yahoo.com/group/Lyme_Artist

Posts: 3860 | From nj,usa | Registered: Mar 2001  |  IP: Logged | Report this post to a Moderator
AliG
Frequent Contributor (1K+ posts)
Member # 9734

Icon 1 posted      Profile for AliG     Send New Private Message       Edit/Delete Post   Reply With Quote 
If it feels like your spine's on fire, I had that early on. It may have been a Babs thing for me.

It did feel like it might have been a nerve/neuro thing.

Back then I was doing a lot of stretching to counter pain in any joints, perhaps actually cause by inflammation(?).

It would feel worse briefly but the increased blood flow would clear the pain, usually in less than 20 minutes.

It may be better to only apply heat for 15 minutes on then off for 15(or more? fuzzy memory here) because constant heat, I believe, can cause rebound inflammation, as can NSAIDs.

I wonder if the natural anti-inflam can cause rebound inflammation too.

So sorry you're dealing with that. As I recall it was WICKED!

hugs & prayers,
[group hug]
Ali

--------------------
Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner.

Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006  |  IP: Logged | Report this post to a Moderator
asummers
LymeNet Contributor
Member # 18068

Icon 1 posted      Profile for asummers     Send New Private Message       Edit/Delete Post   Reply With Quote 
I was experiencing all over back pain and my acupuncturist suggested that I see a chiro who specializes in

http://www.advbiostructuralcorr.com/

After 6 sessions I have gained 1/2 inch in height back and my pain has decreased by 75%. It is worth the frequent visits to his office for me.

Posts: 379 | From Sydney, Australia | Registered: Nov 2008  |  IP: Logged | Report this post to a Moderator
AliG
Frequent Contributor (1K+ posts)
Member # 9734

Icon 1 posted      Profile for AliG     Send New Private Message       Edit/Delete Post   Reply With Quote 
I also would have had Anaplasmosis at the time, but I think I'd still lean toward suspecting Babs as the culprit.

I don't think I thought to try Mineral Ice or Tiger Balm. Something like that would increase the circulation in the area & might be helpful.

--------------------
Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner.

Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006  |  IP: Logged | Report this post to a Moderator
psano2
LymeNet Contributor
Member # 11711

Icon 1 posted      Profile for psano2     Send New Private Message       Edit/Delete Post   Reply With Quote 
I had spine pain a lot. It got a lot better after I started Babesia treatment. I think Babs was also the cause of my shoulder stiffness and "humping" that had developed.
Posts: 975 | From California | Registered: Apr 2007  |  IP: Logged | Report this post to a Moderator
kareamber
LymeNet Contributor
Member # 20110

Icon 1 posted      Profile for kareamber     Send New Private Message       Edit/Delete Post   Reply With Quote 
I have spine pain, but haven't yet been tested for babs. That is next to do on my "to do list".

--------------------
IgeneX IGG POS 30+ 31++++ 41++
IGM 30+ 31+++ 34IND 41IND 83-93IND
Quest NEG IGG 30 and 41 only

Posts: 538 | From Everywhere | Registered: Apr 2009  |  IP: Logged | Report this post to a Moderator
Cold Feet
LymeNet Contributor
Member # 9882

Icon 1 posted      Profile for Cold Feet   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
Film on Spinal Disease & Arthritis

http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/8/1822?

Paulie, we should catch up some time -- I share your perspective.

--------------------
My biofilm film: www.whyamistillsick.com
2004 Mycoplasma Pneumonia
2006 Positive after 2 years of hell
2006-08 Marshall Protocol. Killed many bug species
2009 - Beating candida, doing better
Lahey Clinic in Mass: what a racquet!

Posts: 828 | From Mass. | Registered: Aug 2006  |  IP: Logged | Report this post to a Moderator
paulieinct
LymeNet Contributor
Member # 17514

Icon 1 posted      Profile for paulieinct     Send New Private Message       Edit/Delete Post   Reply With Quote 
Coldfeet: Yes, I can see we are of one mind on the issue of Borrelia attacking the spine. I ended up with central spinal stenosis so bad that my spinal cord was being strangled. Symptoms were so bad I had to sleep in a sitting position as

lying down caused extreme cramping and twitching of legs. Had spinal decompression surgery where they removed alot of bone to allow more room for the spinal cord. This was pre-Lyme Dx, but I know now I've had Lyme for at least 15 years.

Interesting that my surgery was done WITHOUT a fusion, as my disks were so degenerated that my vertebra are almost naturally fused anyway.

When the lid finally blows off this Lyme thing, it will be revealed that Borrelia infection is really reponsible for alot of the spine problems that lead to surgical intervention.

--------------------
Sick since at least age 6, now 67. Decades of misdiagnosis. Numerous arthritic, neuro, psych, vision, cardiac symptoms. Been treating for 7 years, incl 8 mos on IV. Bart was missed so now treating that.

Posts: 765 | From nw ct | Registered: Sep 2008  |  IP: Logged | Report this post to a Moderator
greenbow
Member
Member # 21463

Icon 1 posted      Profile for greenbow     Send New Private Message       Edit/Delete Post   Reply With Quote 
severe spinal pain was one of my first symptoms.
Posts: 94 | From ut | Registered: Jul 2009  |  IP: Logged | Report this post to a Moderator
lymetwister
Frequent Contributor (1K+ posts)
Member # 19590

Icon 1 posted      Profile for lymetwister     Send New Private Message       Edit/Delete Post   Reply With Quote 
Not only spine pain, but it goes across my shoulders, like the letter T

What I have found that helps with this is Bengay: Muscle Pain/Ultra Strength contains 30% Methyl Salicylate, 10%' Menthol, and 4% Camphor..

Target brand is called Ultra Strength Pain Relieving Cream 1/2 the cost, same ingrediants.

It works within 5-10 min. of application.

Works better than any hot Epsom salt bath in my case.

So you know, the pain I get is very very deep feeling and it's an aching, nagging, very uncomfortable pain. At times when I'm standing, it feels like my spine could crack in half.

BTW, Camphor which is one of the ingredients is Bacteriacidal.

Hope this helps you...


LT

Posts: 1227 | From District of Columbia | Registered: Mar 2009  |  IP: Logged | Report this post to a Moderator
paulieinct
LymeNet Contributor
Member # 17514

Icon 1 posted      Profile for paulieinct     Send New Private Message       Edit/Delete Post   Reply With Quote 
Careful with the Ben-Gay and similar products. There's been at least one death due to prolonged and extensive (whole-body) use.

--------------------
Sick since at least age 6, now 67. Decades of misdiagnosis. Numerous arthritic, neuro, psych, vision, cardiac symptoms. Been treating for 7 years, incl 8 mos on IV. Bart was missed so now treating that.

Posts: 765 | From nw ct | Registered: Sep 2008  |  IP: Logged | Report this post to a Moderator
Pinelady
Frequent Contributor (5K+ posts)
Member # 18524

Icon 1 posted      Profile for Pinelady     Send New Private Message       Edit/Delete Post   Reply With Quote 
Gotta bring this up cos' I think its related

here. I have had horrible shoulder/arm pain the

last 3 weeks. As well as spine rash. I have also had the burning neck

pain for a long time. I could not make any sudden

movements or I would die in pain. Then yesterday

at Lowes the husband touched a cart loaded top

heavy with something and he went to look at it

and I thought it was going to tip so I reached to

grab it to prevent crash and I hit the first

thing I could find to get stable and keep from

hitting the floor. My head planted in a new door

display. I was screaming in pain. It was complete

agony as if someone had torn my arm off. Now next

day it is so much better than what it has been. I

can even move it to positions I could not

before. And lay on it. Was this a cyst of bone

or ligament that ruptured? That is the only thing

I can deduce that would cause this. If anyone

knows I'd appreciate it. No I am not going to get

it checked out. It is better now than it has

been in a month.

--------------------
Suspected Lyme 07 Test neg One band migrating in IgG region
unable to identify.Igenex Jan.09IFA titer 1:40 IND
IgM neg pos
31 +++ 34 IND 39 IND 41 IND 83-93 +
DX:Neuroborreliosis

Posts: 5850 | From Kentucky | Registered: Dec 2008  |  IP: Logged | Report this post to a Moderator
IMHisda
LymeNet Contributor
Member # 6998

Icon 1 posted      Profile for IMHisda     Send New Private Message       Edit/Delete Post   Reply With Quote 
I have it or had it (thank God) usually not all at

once. Besides heat, TENS unit really helped and

Vicodin. Sitting and standing as needed and

massage/ultrasound help most. No traction- this

only makes the buggers go further in and deeper it

seems! We ultimately had to move someplace warm

for me it was burning and high numbered pain as

soon as the biting cold set in.

--------------------
RV

Posts: 249 | From Healing in USA | Registered: Mar 2005  |  IP: Logged | Report this post to a Moderator
IMHisda
LymeNet Contributor
Member # 6998

Icon 1 posted      Profile for IMHisda     Send New Private Message       Edit/Delete Post   Reply With Quote 
Azure:

You may want to try Artemesinine too. Some

supplement really helped me- I think it was that

one. Intensive HBOT at 2.4 ATA helped (6 wks 2 sessions a day while I was on Claforin IV).

--------------------
RV

Posts: 249 | From Healing in USA | Registered: Mar 2005  |  IP: Logged | Report this post to a Moderator
Pinelady
Frequent Contributor (5K+ posts)
Member # 18524

Icon 1 posted      Profile for Pinelady     Send New Private Message       Edit/Delete Post   Reply With Quote 
I found this important as I have experianced so much bone pain so please think what you will. I am reasoning we need antibiotics specifically targeted to bone and marrow.

http://www.healthblurbs.com/osteomyelitis-bacteria-bone-infection-causes-bone-pain-symptoms-for-antibiotic-treatment/

Sometimes osteomyelitis causes no symptoms. Or your bone pain symptoms are difficult to distinguish from other concurrent health issues.

Osteomylelitis arises from either an infection traveling around in your bloodstream, spreading from nearby infected tissue, a previous trauma to the infected bone itself or due to poor circulation.

You have an increased risk for a bone infection if you suffer from these conditions or under these circumstances:

http://www.provet.co.uk/health/diseases/antibioticsbone.htm

A mixed infection containing a combination of gram-positive and gram-positive organisms is quite common. Samples should be taken for culture and sensitivity before antibiotics are administered.

http://www.innovations-report.com/html/reports/life_sciences/scientists_discover_bacteria_bone_infections_120140.html

The new pathogen is closely related to Mycobacterium intracellulare and Mycobacterium avium, which cause a lung disease similar to tuberculosis in people, especially those with weak immune systems such as HIV patients that are immunologically suppressed. It is rod-shaped and grows slowly.

"Mycobacterium arosiense can be killed by several antibiotics in the lab, including clarithromycin and rifamycins. However, resistance to fluoroquinolones and isoniazid was observed," said Dr Bang. "Little knowledge is available on performing resistance tests on mycobacteria other than tuberculosis."

"We hope that this discovery will help doctors to diagnose similar diseases in the future and that further investigation may improve the treatment of people with similar infections."

http://www.medhelp.org/posts/Temporomandibular-Joint--Muscle/Bone-infection-in-jaw---antibiotic-suggestions/show/622971


Since then, I've been on a rollercoaster of antibiotics prescribed by an infectiousInfectious endocarditis
Infectious mononucleosis
Infectious mononucleosis #3 disease doctor. AugmentinAugmentin
Augmentin es-600
Augmentin xr 875/125 2x daily made my hands and abdomen swell very badly and didn't seem to fight

the infection that well, but it was also before the 2nd tooth was removed. I was given Augmentin

a 2nd time paired with Levaquin 500s, which seemed to work on the infection together, but I

swelled up again, and my blood pressure which is normally 130 was 185. I was given Levaquin 750s

paired with Flagyl 500s 3x daily, which seemed to work on the infection but the Levaquin made me

panicky and sleepless at night. I had to go off Levaquin because I literally could not sleep. Now

I'm on Augmentin XR (1000/62.5 2pills 2x daily) by itself, and although I'm physically feeling

better each day (I no longer feel as ill as I did before) the infection is starting to spread,

swell and possibly looks like even ooze pus again (from the surgical sites)

I do hope the connections are seen here. And possible choices for treatment are scrutinized in individual cases.

--------------------
Suspected Lyme 07 Test neg One band migrating in IgG region
unable to identify.Igenex Jan.09IFA titer 1:40 IND
IgM neg pos
31 +++ 34 IND 39 IND 41 IND 83-93 +
DX:Neuroborreliosis

Posts: 5850 | From Kentucky | Registered: Dec 2008  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.