Topic: Does anyone have spine pain (the whole spine hurts) as a babs symptom?
AZURE WISH
Frequent Contributor (1K+ posts)
Member # 804
posted
Does anyone have spine pain (the whole spine hurts) as a babs symptom?
I was wondering if anyone knose what causes it? Inflamation of the nerves running through spine?
I was wondering if anyone has found anything that brings relief?
My head also hurts alot. between this and my spine I spend most of my time laying flat on heating pads in a ton of pain (plus whole long list of other symptoms). So it would be great if I could find some relief and maybe get to sit up, turn my head ect more.
kelmo
Frequent Contributor (1K+ posts)
Member # 8797
posted
Yes, my daughter has that issue.
MRIs showed nothing. She finds relief with a Thermotex infrared heating pad. (found it on Amazon) It's pricey, but she has said it was worth every penny.
It penetrates deeper and doesn't burn the skin.
Other than that, Tramadol (she was on vicodin and percocet, but started to rebound so she dumped them).
We are now wondering if it's a side affect of an anti-psychotic medication she was given for sleep.
She is weening off it now, the withdrawl symptoms are minor, which means her brain is healthier than it was three years ago.
Hopefully, when she gets off this med, the pain in the back will subside.
Don't know what else to tell you.
Posts: 2903 | From AZ | Registered: Feb 2006
| IP: Logged |
posted
How do you know this is Babs and not Lyme? I have spinal pain over 25 years. I know now it was Lyme all along. I am 61 and have the spine of an 85 year-old man. Riddled with bone-spurs, degenerated disks, central and foramenal stenosis. I've already lost 2 1/2 inches in height.
Celebrex made a HUGE difference for me.
Now that I'm treating for Lyme with abx, much of the pain and stiffness (except for herxes) is diminishing. Borrelia loves tendons, ligaments, and cartilage, and all of those tissues run up and down your spine.
Borrelia also loves scar tissue, so if you've ever had surgery, the spirochetes hang out in the post-surgical scar tissue causing alot of the post-op stiffness and pain many people feel.
The more I learn about this disease, the more I am convinced that many of the orthopedic surgeries and joint replacements being done are due to Borrelia-ravaged joints and tissues.
We have a huge orthopedic practice in town with about seven surgeons making money hand over fist doing surgeries on Lyme-ravaged joints. They have absolutely NO INTEREST in finding out if there is an infectious etiology involved in these cases.
After having surgery after surgery after surgery for various orthopedic problems, I finally asked their hand surgeon if he knew of any disease or syndrome that could be causing all my orthopedc problems, most recently a sudden, almost overnite, stiffening of all my fingers
causing them to lock in a clenched position, with trigger-finger in several of my fingers. He replied, "Not really. I'm just a mechanic. I fix the mechanical problem. You need to see a Rheum. doc for that."
It wasn't long after that that I did my own research, realized it had to be Lyme, and finally got the pos. WB thru IGENEX.
-------------------- Sick since at least age 6, now 67. Decades of misdiagnosis. Numerous arthritic, neuro, psych, vision, cardiac symptoms. Been treating for 7 years, incl 8 mos on IV. Bart was missed so now treating that. Posts: 765 | From nw ct | Registered: Sep 2008
| IP: Logged |
AZURE WISH
Frequent Contributor (1K+ posts)
Member # 804
posted
Kelmo - thank you about the info for the thermotex heaintg pad. I will look that up.
paulieinct - I think it is a babs symptom (for me) because when I add or increase a babs med it gets worse.
I really do not think it is bone/disk issue for me. I have a feeling its an inflamation thing or nerves . unfornately i am allergic to celebrex but I do take somenatural anti inflamitory stuff.
AliG
Frequent Contributor (1K+ posts)
Member # 9734
posted
If it feels like your spine's on fire, I had that early on. It may have been a Babs thing for me.
It did feel like it might have been a nerve/neuro thing.
Back then I was doing a lot of stretching to counter pain in any joints, perhaps actually cause by inflammation(?).
It would feel worse briefly but the increased blood flow would clear the pain, usually in less than 20 minutes.
It may be better to only apply heat for 15 minutes on then off for 15(or more? fuzzy memory here) because constant heat, I believe, can cause rebound inflammation, as can NSAIDs.
I wonder if the natural anti-inflam can cause rebound inflammation too.
So sorry you're dealing with that. As I recall it was WICKED!
hugs & prayers, Ali
-------------------- Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner. Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006
| IP: Logged |
After 6 sessions I have gained 1/2 inch in height back and my pain has decreased by 75%. It is worth the frequent visits to his office for me.
Posts: 379 | From Sydney, Australia | Registered: Nov 2008
| IP: Logged |
AliG
Frequent Contributor (1K+ posts)
Member # 9734
posted
I also would have had Anaplasmosis at the time, but I think I'd still lean toward suspecting Babs as the culprit.
I don't think I thought to try Mineral Ice or Tiger Balm. Something like that would increase the circulation in the area & might be helpful.
-------------------- Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner. Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006
| IP: Logged |
posted
I had spine pain a lot. It got a lot better after I started Babesia treatment. I think Babs was also the cause of my shoulder stiffness and "humping" that had developed.
Posts: 975 | From California | Registered: Apr 2007
| IP: Logged |
Paulie, we should catch up some time -- I share your perspective.
-------------------- My biofilm film: www.whyamistillsick.com 2004 Mycoplasma Pneumonia 2006 Positive after 2 years of hell 2006-08 Marshall Protocol. Killed many bug species 2009 - Beating candida, doing better Lahey Clinic in Mass: what a racquet! Posts: 830 | From Mass. | Registered: Aug 2006
| IP: Logged |
posted
Coldfeet: Yes, I can see we are of one mind on the issue of Borrelia attacking the spine. I ended up with central spinal stenosis so bad that my spinal cord was being strangled. Symptoms were so bad I had to sleep in a sitting position as
lying down caused extreme cramping and twitching of legs. Had spinal decompression surgery where they removed alot of bone to allow more room for the spinal cord. This was pre-Lyme Dx, but I know now I've had Lyme for at least 15 years.
Interesting that my surgery was done WITHOUT a fusion, as my disks were so degenerated that my vertebra are almost naturally fused anyway.
When the lid finally blows off this Lyme thing, it will be revealed that Borrelia infection is really reponsible for alot of the spine problems that lead to surgical intervention.
-------------------- Sick since at least age 6, now 67. Decades of misdiagnosis. Numerous arthritic, neuro, psych, vision, cardiac symptoms. Been treating for 7 years, incl 8 mos on IV. Bart was missed so now treating that. Posts: 765 | From nw ct | Registered: Sep 2008
| IP: Logged |
posted
severe spinal pain was one of my first symptoms.
Posts: 94 | From ut | Registered: Jul 2009
| IP: Logged |
lymetwister
Frequent Contributor (1K+ posts)
Member # 19590
posted
Not only spine pain, but it goes across my shoulders, like the letter T
What I have found that helps with this is Bengay: Muscle Pain/Ultra Strength contains 30% Methyl Salicylate, 10%' Menthol, and 4% Camphor..
Target brand is called Ultra Strength Pain Relieving Cream 1/2 the cost, same ingrediants.
It works within 5-10 min. of application.
Works better than any hot Epsom salt bath in my case.
So you know, the pain I get is very very deep feeling and it's an aching, nagging, very uncomfortable pain. At times when I'm standing, it feels like my spine could crack in half.
BTW, Camphor which is one of the ingredients is Bacteriacidal.
Hope this helps you...
LT
Posts: 1227 | From District of Columbia | Registered: Mar 2009
| IP: Logged |
posted
Careful with the Ben-Gay and similar products. There's been at least one death due to prolonged and extensive (whole-body) use.
-------------------- Sick since at least age 6, now 67. Decades of misdiagnosis. Numerous arthritic, neuro, psych, vision, cardiac symptoms. Been treating for 7 years, incl 8 mos on IV. Bart was missed so now treating that. Posts: 765 | From nw ct | Registered: Sep 2008
| IP: Logged |
Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
Gotta bring this up cos' I think its related
here. I have had horrible shoulder/arm pain the
last 3 weeks. As well as spine rash. I have also had the burning neck
pain for a long time. I could not make any sudden
movements or I would die in pain. Then yesterday
at Lowes the husband touched a cart loaded top
heavy with something and he went to look at it
and I thought it was going to tip so I reached to
grab it to prevent crash and I hit the first
thing I could find to get stable and keep from
hitting the floor. My head planted in a new door
display. I was screaming in pain. It was complete
agony as if someone had torn my arm off. Now next
day it is so much better than what it has been. I
can even move it to positions I could not
before. And lay on it. Was this a cyst of bone
or ligament that ruptured? That is the only thing
I can deduce that would cause this. If anyone
knows I'd appreciate it. No I am not going to get
it checked out. It is better now than it has
been in a month.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
| IP: Logged |
one. Intensive HBOT at 2.4 ATA helped (6 wks 2 sessions a day while I was on Claforin IV).
-------------------- RV Posts: 249 | From Healing in USA | Registered: Mar 2005
| IP: Logged |
Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
I found this important as I have experianced so much bone pain so please think what you will. I am reasoning we need antibiotics specifically targeted to bone and marrow.
Sometimes osteomyelitis causes no symptoms. Or your bone pain symptoms are difficult to distinguish from other concurrent health issues.
Osteomylelitis arises from either an infection traveling around in your bloodstream, spreading from nearby infected tissue, a previous trauma to the infected bone itself or due to poor circulation.
You have an increased risk for a bone infection if you suffer from these conditions or under these circumstances:
A mixed infection containing a combination of gram-positive and gram-positive organisms is quite common. Samples should be taken for culture and sensitivity before antibiotics are administered.
The new pathogen is closely related to Mycobacterium intracellulare and Mycobacterium avium, which cause a lung disease similar to tuberculosis in people, especially those with weak immune systems such as HIV patients that are immunologically suppressed. It is rod-shaped and grows slowly.
"Mycobacterium arosiense can be killed by several antibiotics in the lab, including clarithromycin and rifamycins. However, resistance to fluoroquinolones and isoniazid was observed," said Dr Bang. "Little knowledge is available on performing resistance tests on mycobacteria other than tuberculosis."
"We hope that this discovery will help doctors to diagnose similar diseases in the future and that further investigation may improve the treatment of people with similar infections."
Since then, I've been on a rollercoaster of antibiotics prescribed by an infectiousInfectious endocarditis Infectious mononucleosis Infectious mononucleosis #3 disease doctor. AugmentinAugmentin Augmentin es-600 Augmentin xr 875/125 2x daily made my hands and abdomen swell very badly and didn't seem to fight
the infection that well, but it was also before the 2nd tooth was removed. I was given Augmentin
a 2nd time paired with Levaquin 500s, which seemed to work on the infection together, but I
swelled up again, and my blood pressure which is normally 130 was 185. I was given Levaquin 750s
paired with Flagyl 500s 3x daily, which seemed to work on the infection but the Levaquin made me
panicky and sleepless at night. I had to go off Levaquin because I literally could not sleep. Now
I'm on Augmentin XR (1000/62.5 2pills 2x daily) by itself, and although I'm physically feeling
better each day (I no longer feel as ill as I did before) the infection is starting to spread,
swell and possibly looks like even ooze pus again (from the surgical sites)
I do hope the connections are seen here. And possible choices for treatment are scrutinized in individual cases.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[Smile]](smile.gif)
![[group hug]](graemlins/grouphug.gif)
Printer-friendly view of this topic