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» LymeNet Flash » Questions and Discussion » Medical Questions » Do I have Lyme disease?

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Author Topic: Do I have Lyme disease?
Amir T
Junior Member
Member # 22842

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3 years ago in Malaysia, I was swimming at my friend's place, it was a condo in the woods. A few times i got out the pool and went back inside. When I got out for the last time I realized that my body was red (chest, stomach and back).I didn't see any ticks or bites. I went to see a doctor and got some antihistamine pills. after 3-4 days some red itchy rashes appeared. I had blood test and there was nothing wrong. and I was told that It was an unknown skin allergy. rashes bothered me a lot so I just took antihistamine pills for almost 2 years. It's been a year I stopped taking pills and I still get rashes but much less and not that much bothering. I have fatigue and can't have a good night sleep, muscle weakness, joints are weak but no pain! some nervous problems like sometimes I feel dizzy or memory problems. but none of the problems were severe. well only recently I got to know about Lyme disease and I thought I might have it. But the materials on the internet are very confusing! I don't know the symptoms and problems I have are related to Lyme disease or not. would be happy if someone can help!
Posts: 2 | From KL | Registered: Oct 2009  |  IP: Logged | Report this post to a Moderator
sonee123
LymeNet Contributor
Member # 18632

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Have you got tested for lyme yet?

What exactly are your symptoms?

--------------------
May God Bless you, answer your prayers, relieve you of your pain and make you stronger than what you are today. Ameen.

Posts: 341 | From Columbia, MD | Registered: Jan 2009  |  IP: Logged | Report this post to a Moderator
Amir T
Junior Member
Member # 22842

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No i haven't got tested for lyme.
my symptoms are

1) having itchy red rashes for about 3 years all over the body. It's been a year the rashes are less.

2) fatigue, weak muscles and joints(no pain), shaking muscles.

3) feel dizzy sometimes, and memory problems (forget names and etc), flexibility problems.

that's all! unfortunately doctors here don't believe in Lyme that much, and coz of my job I must stay in here and won't be able to go to US.

Posts: 2 | From KL | Registered: Oct 2009  |  IP: Logged | Report this post to a Moderator
coltman
LymeNet Contributor
Member # 21272

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hey did you check for parasites? they are often transmitted trough ponds in tropical climates. There are many more likely disease for you to catch in Malaysia than lyme
Posts: 856 | From MA | Registered: Jul 2009  |  IP: Logged | Report this post to a Moderator
bettyg
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welcome amir [Smile]

sorry, i'm one of many here with severe neuro lyme and we can't read or comprehend your continuous text above.

would you break it up into MANY, SHORT paragraphs and double space between each paragraph like i'm doing here?

please use my guidelines below, and then folks like me will be able to read and assist you ok. huge thanks [Smile] hugs


Welcome to Lymenet! I'm so glad you found us! You've come to the right place for education and support!

The following is some links that may be helpful to you:

Lyme Disease and Co-Infection Symptoms
http://flash.lymenet.org/ubb/ultimatebb.php/topic/1/81386


Dr. Burrascano's most recent "Diagnostic Hints and 2008 Treatment Guidelines for Lyme and Other Tick Borne Illnesses" http://www.ilads.org/lyme_disease/treatment_guidelines.html


Pages 17-19 discuss Adult and Kids Treatments
http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/1/80440?#000006


Dr. B's Supplement List
http://www.lymepa.org/Nutritional_Supplements.pdf


``Making the most of your LLMD visit''
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic&f=1&t=020605#000005


New Member Learning links:
http://flash.lymenet.org/ubb/ultimatebb.php/topic/1/29917


Link to Turn the Corner Foundation: Good info and contacts for finding a good LLMD. http://turnthecorner.org/lyme-disease-quick-facts.htm


People seeking doctors might be able to get help from their state online information and support group. Nearly 3,400 people belong to state groups. Some of the groups are small but more than 20 of them have 50 or more people and seven have over 100.

The groups are moderated and you have to apply. Most don't allow doctor names, but once on the group, you can ask for doctors in a certain area and ask people to email you privately.

To find your state group, go to
http://health.groups.yahoo.com/group/statenamelyme

Type your state name and lyme as one word, like this -
http://health.groups.yahoo.com/group/newyorklyme

South Carolina is the only state that needs a hyphen between the statename
and lyme, e.g. http://health.groups.yahoo.com/group/southcarolina-lyme

This explains the medical politics around Lyme, and why you need an ILADS-educated or ILADS-member LLMD (and there are also some ILADS-member LL NDs (naturopathic doctors):

www.clinicaladvisor.com/Controversy-continues-to-fuel-the-Lyme-War/article/117160/


You should also be evaluated for coinfections. Not all tests are great in that regard, either, but a good LLMD can evaluate you and then guide you in testing. www.igenex.com http://www.frylabs.com/; http://www.clongen.com/; http://focusdx.com


Dr C's Western Blot explanation is discussed here:
http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic;f=1;t=042077


ILADS
The International Lyme and Associated Diseases Society (ILADS) provides a forum for health science professionals to share their wealth of knowledge regarding the management of Lyme and associated diseases. www.ilads.org

Under Our Skin Lyme Disease documentary www.lymediseasefilm.com

Herxing Reactions: http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic;f=1;t=041517

For the Igenex Western blot IgM and IgG blood test drawn on M, T, or W. Check current $$! Oct. 2008 Price List ... info only. Prices have increased on some! Call 1-800.832.3200 for current prices.
http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/1/78648?#000003

They will also send you a ``test kit'' with their required form, all the test vials, & box to ship it in. Be sure to download Igenex's required form. MD, DO, ND, AC, DC are all fine** must sign, date, and show diagnosis code on there why he's ordering the test.


Optional tests include: co-infection panel for your area of country and PCR whole blood

Igenex is pre-pay/out of network for most insurances. If you are on medicare, Igenex will file the paperwork & it's free to you.

Get copies of all of your special bloodwork.

Overseas instructions for sending to Igenex/Fry Labs (2-23-08)
http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic;f=1;t=063751


Betty's suggested posting guidelines: Many of members have neuro lyme, and it is hard to read long solid block text and be able to comprehend.

For easier reading, please edit your post by clicking the ``paper pencil' icon to right of your user name, which opens up the subject line and body text.

You can break up your longer paragraphs into smaller paragraphs. Please hit ``enter'' key twice after each paragraph, also.

Go to left hand corner and mark box to receive `all replies', and click edit send.

Thank you for posting in a manner that makes it easier for all to read and help others.

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Parisa
LymeNet Contributor
Member # 10526

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I don't know how common Lyme disease (borrelia) is in Malaysia but a quick search shows that Babesia is endemic in Malaysia.

Babesia can cause some of the symptoms you are having and can be transmitted by ticks along with Lyme disease, Bartonella, and other infections.

Posts: 984 | From San Diego | Registered: Nov 2006  |  IP: Logged | Report this post to a Moderator
Robin123
Moderator
Member # 9197

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You can get tested for Lyme, if you want, through the IGeneX lab in Palo Alto lab. www.IGenex.com.

Just know that 60-70& show positive who actually have the illness, so it is treated clinically, based on history and symptoms.

Posts: 13117 | From San Francisco | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
   

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