I'm having some issues that will require some sort of surgery. Trying to determine what course of action - dr. is trying Lupron to determine effect on my LD (been in treatment for 2 years). As dr. says, he can't put it back once it's out.

LD is MUCH worse during my cycle.

From my reading some Lymies say do the surgery, some say don't. Seems to be strong feelings both ways.

I'm 42 and found out 16 months ago I have osteoporosis of the lumbar and cervcical spine and ostepenia in the hip.

This obviously is not good and remember my name is snow boarder because I used to ski and snowboard since I was 8.

In the short-term (i.e. while on the drug): intense nausea, dizziness, lightheadedness, blurred vision, double vision, hair loss, melasma (dark spots on face), extreme fatigue, fibromyalgia-like symptoms (muscle pain, for me), joint pain, intense pain in legs, and the list goes on.

I stayed on Lupron for 8 mos (with a 2 month break in the middle), but wish I had not. You can find the patient insert for Lupron online somewhere, and it lists all of these side effects and more.

Some people feel they have had had permanent neurological damage due to Lupron, and some feel that it contributes to developing fms/ms and other conditions later. Given the similarities/connection between these conditions and lyme disease - seems like it could potentially worsen your lyme symptoms?

Surgery, on the other hand, comes with its own pros and cons. Weigh the differences, and pick the best choice for you, obviously.

When I opted for Lupron, it was only after multiple surgeries and many other treatments, as a last resort before a hyst. I felt I needed to have tried everything before the hyst - so I did. Now, I wish I had avoided Lupron like the plague, and if I could do it over again, I would. Just my personal experience/thoughts on this.

look up the thread talking about natural hormone replacement/balancing. It could be that your hormones are out of whack and you may do better with natural hormone replacement. I use a RX progesterone cream which has helped dramatically w/ menses flare up of symptoms...

You may not need lupron to supress excess estrogen (estrogen dominance)....get another opinion before having anyone give you these drugs or a histerectomy!

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Originally posted by janet thomas:
Get some more opinions. Especially female ob/gyn. Surely there is an alternative between lupron and a hyst. Aren't there procedures to surgically remove the fibroids but leave you intact? My girlfriend had that done. When I went thru a natural menopause my Lyme symptoms exploded.

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my endo page talks about my surgeries, usually they gave me relief for a couple years... http://www.trollop.com/people/raven/endo/ it's all from before I knew I had lyme though so if I'd known about the lyme, things might have gone better. Stupid tests from Quest.

GYN who performed laparoscpoy said she'd like to do another one and possibly remove the entire right ovary coz it just keeps being a ding bat.

I will NOT consider lupron.

GYN said she didnt want to do lap due to Lyme and anasthesia causing relapse.

What is a person to do when they must have surgery but also have lyme????

I have been researching the old posts about surgery and lyme and may post my own topic, but trying to be concise.