posted
My daughter was tested and her igg came up positive but her igm negative. Her lyme doctor wanted her to go on Valcyte but I heard this med can be dangerous. What is this virus??? Has anyone been on this med?
[ 05-29-2009, 08:26 AM: Message edited by: dian ]
Posts: 256 | From Boston, mass | Registered: Jan 2008
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timaca
Frequent Contributor (1K+ posts)
Member # 6911
posted
Dian~ Your post appears to be incomplete. I do (did) have HHV-6 and I was on valcyte for it.
Best, Timaca
Posts: 2872 | From above 7,000 ft in a pine forest | Registered: Feb 2005
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SForsgren
Frequent Contributor (1K+ posts)
Member # 7686
posted
Personally, I prefer something like Lauricidin than Valcyte though I have done both.
As for HHV6, I'd argue that almost everyone here has it.
-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
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hiker53
Frequent Contributor (5K+ posts)
Member # 6046
posted
HHV6 is what causes croup in children, so almost everyone is going to have it in their bodies, regardless of whether they have lyme or not. My GP who does not have lyme says he tests positive for it and he is not ill at all.
-------------------- Hiker53
"God is light. In Him there is no darkness." 1John 1:5 Posts: 8956 | From Illinois | Registered: Aug 2004
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timaca
Frequent Contributor (1K+ posts)
Member # 6911
posted
The following is from the HHV-6 website (testing link):
Nearly 100% of us have been infected with the HHV-6 virus by early childhood and have antibodies to it, and at least a 30% of us have small but detectable levels of latent virus in our blood1 2, so the relevant questions are not whether you have the virus, but rather how much virus do you have, and is it active or latent?
Elevated IgG antibody levels can suggest, but not prove active, chronic infection. In a 1996 study of HHV-6 in CFS patients, 89% of the patients with IgG titers of 1:320 and above were found to have active infections by culture. (Wagner, Journal of Chronic Fatigue Syndrome)Stanford infectious disease specialist Jose Montoya believes that the best evidence of smoldering central nervous system (CNS) infection is the IgG antibody to the virus, and not the virus itself. In a pilot study, he found that when patients with high titers of HHV-6 IgG (1:320, 1:640 or higher) and EBV are treated with a potent antiviral; their titers fall substantially along with a significant improvement in symptoms.5 Elevated IgG Antibodies to HHV-6 cannot tell you for certain that the infection is active, but high titers support a clinical diagnosis. Similarly, elevated EBV VCA (late antibody) titers cannot indicate with certainly that an infection is active. However, EBV Early Antigen (EA) antibodies disappear rapidly after an infection is over, so elevated EBV EA antibodies do predict active infection.
Posts: 2872 | From above 7,000 ft in a pine forest | Registered: Feb 2005
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bettyg
Unregistered
posted
breaking up long paragraph of statistics for us neuros to read..betty
quote:Originally posted by timaca:
The following is from the HHV-6 website (testing link):
Nearly 100% of us have been infected with the HHV-6 virus by early childhood and have antibodies to it, and at least a 30% of us have small but detectable levels of latent virus in our blood1 2, so the relevant questions are not whether you have the virus, but rather how much virus do you have, and is it active or latent?
Elevated IgG antibody levels can suggest, but not prove active, chronic infection.
In a 1996 study of HHV-6 in CFS patients, 89% of the patients with IgG titers of 1:320 and above were found to have active infections by culture.
(Wagner, Journal of Chronic Fatigue Syndrome)
Stanford infectious disease specialist Jose Montoya believes that the best evidence of smoldering central nervous system (CNS) infection is the IgG antibody to the virus, and not the virus itself.
In a pilot study, he found that when patients with high titers of HHV-6 IgG (1:320, 1:640 or higher) and EBV are treated with a potent antiviral; their titers fall substantially along with a significant improvement in symptoms.5
Elevated IgG Antibodies to HHV-6 cannot tell you for certain that the infection is active, but high titers support a clinical diagnosis.
Similarly, elevated EBV VCA (late antibody) titers cannot indicate with certainly that an infection is active.
However, EBV Early Antigen (EA) antibodies disappear rapidly after an infection is over, so elevated EBV EA antibodies do predict active infection.
since i have hhv6 too, i wanted to read this...bg
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CherylSue
Frequent Contributor (1K+ posts)
Member # 13077
posted
Ok, then what attacks the HHV6 and EBV the best?
posted
My LLMD says to start treating for Lyme first, then see if the viruses can be kept in check by the body's immune system.
If improvement is slow, then he adds in a natural anti-viral. I take Lauricidin/monolaurin. Way cheaper than Valcyte, and probably easier on the body too.
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