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» LymeNet Flash » Questions and Discussion » Medical Questions » MS and Lyme and testing

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Author Topic: MS and Lyme and testing
sydli
Junior Member
Member # 23801

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Hi,

Just a quick question that you all might be able to help with. I was diagnosed with MS about 5 years ago. Had an Elisa then, which was negative. My initial MRI showed diffuse white matter lesions, which may be due to MS or lyme, according to the report. Have never had a real flare of MS since diagnosis.

I've had some major chronic achiness/tenderness/ in my arms and shoulders, and headaches, but they've gone away since I started taking Cymbalta for depression.

My husband was diagnosed with chronic Lyme last summer, after years of pain which he thought was due to fibromyalgia. My 2 sons and I were tested with a Western Blot recently, and one son was positive and started antibiotics. My results today showed all the bands to be nonreactive, except for Band 41, which was "reactive".

Does this result indicate that I might possibly have Lyme? I made a doctor's appt, to discuss further but can't see them until March. Should I seek Igenex testing?

Thanks for any help!

Posts: 3 | From Loudoun County, VA | Registered: Dec 2009  |  IP: Logged | Report this post to a Moderator
swedish lyme sufferer
LymeNet Contributor
Member # 14579

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Yes you might have Lyme depending on your symptoms.
Lyme is hard to diagnose, you will have to see an LLMD.

Posts: 347 | From sweden | Registered: Feb 2008  |  IP: Logged | Report this post to a Moderator
Snailhead
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I was initially diagnosed with MS, and later Lyme. BTW, I too only had the "41" band showing on my first WB, then on my Igenex panel I showed CDC positive.

Get an Igenex if you can, ASAP. I was treating for MS for a year, and continued to decline before I did my own research and found I indeed had Lyme. Oh, if you can, check for coinfections as well. They are a huge component in your level of illness. God bless you.

Posts: 374 | From United States | Registered: Nov 2008  |  IP: Logged | Report this post to a Moderator
dmc
Frequent Contributor (1K+ posts)
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17 yrs told MS then found out Lyme, & co-infections. Suggest you get to a Lyme literate MD.

do a search here (that's above, under the "post a poll")

Scroll down this link to the educational DVDs You'll see the llmd who I finally went to & did proper test.

http://www.newhaven.edu/unh/lyme/

"Chronic Lyme Disease: Connection to MS- Facts behind the controversy" (DVD)

Good luck

Posts: 2675 | From ct, usa | Registered: Jan 2004  |  IP: Logged | Report this post to a Moderator
Lymetoo
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Being that VA is full of lyme and you have family members who have it... you're likely infected also.

Get a WB thru Igenex, ASAP!! and start looking for a good LLMD over in Seeking if you don't already have one.

You need test #188 and 189 from www.igenex.com

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96223 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
   

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