Topic: Who here is on LDN and what are your experiences?
bcb1200
Frequent Contributor (1K+ posts)
Member # 25745
posted
I'm starting 4.5 mg tonite. I heard I should start slowly but only have 4.5 capsuls from Gideon's.
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 95% +/- most days. Posts: 3134 | From Massachusetts | Registered: May 2010
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dmc
Frequent Contributor (1K+ posts)
Member # 5102
posted
I couldn't take it while doing abxs...herx or reaction but thought I was dying 1 hr. after taking it. Heart, palps, difficulty breathing,sweating, didn't just happen once but everytime.
Note: Prior to Lyme treatment I took LDN for 2 yrs without any troubles for my supposed MS. Just horrid when on abxs.
Do a search here. SEARCH button is above under the "post a poll".
search for LDN or low dose naltrexone. There are lots of comments.
Posts: 2675 | From ct, usa | Registered: Jan 2004
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posted
Can you open the capsule and pour most of it out? Everything I've read says to start low and go slow. I started on 1/2 of one capsule for a week or two, then upped. Can tolerate 3 mg now, no problems, i actually think it helps me sleep.
-------------------- dx: MS in 1998 2007 - Lyme suspected 2009 - Positive Lyme, MS worse. Now: Copaxone shots for MS gall bladder out 7/09 Ceftin, Zith, Septra LDN Acyclovir Monolaurin, DHEA, Pregnonelon, Curcumin Posts: 243 | From New Mexico | Registered: Feb 2007
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posted
I worked up to 4.5mg by starting with 0.5mg and increasing the dose by 0.5mg weekly. I was able to avoid any serious sleep disturbances or strong herx reactions this way (I had such extreme crazy herxing when I tried to start at 4.5mg I had to stop taking it).
Posts: 195 | From Manchester, CT | Registered: Jun 2008
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bcb1200
Frequent Contributor (1K+ posts)
Member # 25745
posted
How did you do this? Did you open the 4.5 mg capsuls and dump some out?
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 95% +/- most days. Posts: 3134 | From Massachusetts | Registered: May 2010
| IP: Logged |
posted
That is what I did: open the capsules and put half in water and stir. I am taking 3 mg and it helps a great deal, but I had to start with tiny amounts and work up to the full capsule
Posts: 360 | From New York | Registered: Oct 2009
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posted
I made my own LDN solution from 50mg tablets with 50ml water, so 1ml water = 1mg naltrexone. Then you can administer whatever dose you'd like with a measuring dropper.
Posts: 195 | From Manchester, CT | Registered: Jun 2008
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bcb1200
Frequent Contributor (1K+ posts)
Member # 25745
posted
Am I supposed to always dissolve in water? I was just taking the 4.5 mg capsule.
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 95% +/- most days. Posts: 3134 | From Massachusetts | Registered: May 2010
| IP: Logged |
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