posted
Hello, Background: A friend referred me to this site. I am hoping for some advice since this is all very new to me. I have just been diagnosed w/ Lyme's and Bartonella. In September I suffered a second trimester miscarriage at 17 weeks. Around the time of my m/c I was dealing with more fatigue than I had in the first trimester and after my m/c I requested blood work. I had the standard Lyme's testing and it came back negative. I had made an appt w/a holistic dr.'s office and by the time I had my appt (end of Nov) my symptoms had improved. My energy level could be better but I was not as fatigued. My biggest symptom is this hyperpigmentation of my skin -dark spots on the under side of my arms, chest thighs. A dermatologist did 2 skin biopsies that showed inflammation.
I had some weird headaches, but those have pretty much gone away and one day I had blurred vision on/off all morning -was kind of scary but nothing consistent. I just skimmed through some posts and saw something about foot pain. I do have some pain in the ball of my foot that started last May. I saw a podiatrist about that and he explained it as being due to a high arch. Wonder if there are symptoms I just haven't connected.
I did follow up testing through Igenex on Nov 30. 2010 and have my info to post. I was hoping to get some feedback. Here is the info:
Test Results 11/10 Igenex IGM Result Positive CDC/NYS Result Positive 18kDa. ++ 22kDa. - **23-25kDa + 28 kDa - 30kDa - **31kDa. - **34 kDa. - **39kDa. IND **41 kDa. ++ 45 kDa. - 58 kDa. - 66 kDa. - 73 kDa - **83-93 IND
IGENEX IGG-Result Negative CDC/NYS-Result
All the bands were negative except for **41 kDa.+ but it says that presence of only one starred band in a negative report may indicate clin significance and should be retested in 4-6 weeks
B. henselae IgM <1.20 Titer B. henselae IgG 1.80 titer
Treatment plan: Doxycycline, Rifampin, hyroxychloroquine and the following supplements: probiotics, NT factor, andrographins, COq10
Questions: What do you think of my numbers? Is it clear to you that these diagnoses are accurate? The NP diagnosed me immediately w/ the Bartonella last week but wanted to talk to the lab before giving a definite on the Lyme's.
Has anyone heard of or experienced a miscarriage due to either of these diagnoses? I have been trying to make sense of my m/c and wonder if this could be the cause. I know I will never know for sure. I first noticed the dark spots on my legs right around the time of the m/c.
Looking at my test results anyone have any thoughts/advice and does my treatment plan seem reasonable?
They are taking a more aggressive approach w/ me due to the fact that I am considering another baby but at age 39 I am concerned about time, but also worried about whether I can handle the antibiotics. Please know I would not even consider pregnancy unless I can work through these health concerns. My first priority is to address both the Lyme's and Bartonella. I really don't have any awful symptoms- no joint pain maybe some of the emotional stuff and the skin issue. Sorry for such a long post. I look forward to any comments! So scared to start this medication and wonder what it will do to my system, I have never been on 3 antibiotics at a time and haven't been on any antibiotics in years. I was unsure of my diagnosis and would so appreciate your input. Ok...thank you in advance for your time.
Posts: 376 | From New York | Registered: Jan 2011
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posted
Welcome to this site. You will find lots of good, kind help here.
Posts: 342 | From northern california | Registered: Dec 2010
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
It sure looks like Lyme, though the completely negative IgG portion seems weird. Good luck.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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steve1906
Frequent Contributor (1K+ posts)
Member # 16206
posted
miscarriage and lyme - here is a couple of sites to start with...
posted
have you ever been tested for addison's disease? check it out by googling.. the pigmentation stuff and fatigue sounds just like it...
Posts: 341 | From NY/FL | Registered: Apr 2010
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posted
Thank you so much for the feedback. I have checked out the links and they are all filled w/ very useful info. Thank you. Renny1985 I did come across info on Addison's when searching my symptoms several weeks ago. I will mention that to my dr. Started the Rifampin a few days ago (so far so good) but adding the other antibiotics in tomorrow. Hopefully all goes smoothly. Thank you!
Posts: 376 | From New York | Registered: Jan 2011
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