nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
I have tingling sensations in my left thigh which are now going down my leg. I had them in the other leg a couple of times too and once all over my left side. It come quickly and then is gone. It reminds me of the feeling of "a cat walking over your grave".
Does anyone know what causes this?
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
| IP: Logged |
Jamers
Frequent Contributor (1K+ posts)
Member # 28016
posted
I think its Bartonella. Been getting those myself since treating with Rifampin for 2 months.
-------------------- Diagnosed Pos. Lyme Nov. 17, 2010, Igx. Pos. Babesia Duncani March 2011, Igx. Clinical diagnosis for Bartonella Posts: 1127 | From North Carolina | Registered: Sep 2010
| IP: Logged |
nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
Thanks Jamers!
I was worried about bart coming back. I have also had mild body aching and yesterday it was in my shins. I will try getting back on bactrim ds until I see the LLND. The only drugs I am taking right now are Malarone and LDN.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
| IP: Logged |
manybites
Frequent Contributor (1K+ posts)
Member # 33750
posted
Yes definitly is bart.Shins scream bartonella.
Posts: 1379 | From disable | Registered: Aug 2011
| IP: Logged |
posted
I have lots of tingling in my shins, especially my right shin. Sometimes it's the weirdest sensation--almost like something is crawling around in there.
I figured it was Lyme. Do those of you with Bart get that?
I also get strange vibrating/twitching/tingling sensations in my feet and shins, especially when I lay down at night. Anybody else have that?
Posts: 227 | From Northeast | Registered: Mar 2010
| IP: Logged |
Jamers
Frequent Contributor (1K+ posts)
Member # 28016
posted
I have a vibrating sensation all over my body all the time. Its like my nerves are trembling. I also get the strange tingling moving up and down or in my toes. I have tingling in my upper thighs by my rear too.
-------------------- Diagnosed Pos. Lyme Nov. 17, 2010, Igx. Pos. Babesia Duncani March 2011, Igx. Clinical diagnosis for Bartonella Posts: 1127 | From North Carolina | Registered: Sep 2010
| IP: Logged |
sammy
Frequent Contributor (5K+ posts)
Member # 13952
posted
Lyme can cause numbness and tingling too.
Posts: 5237 | From here | Registered: Nov 2007
| IP: Logged |
scorpiogirl
Frequent Contributor (1K+ posts)
Member # 31907
posted
For me it's Bart. I have tingling numbness and pain down both legs now.
-------------------- Posts: 1391 | From Lyme Land | Registered: May 2011
| IP: Logged |
karenl
Frequent Contributor (1K+ posts)
Member # 17753
posted
It is parasites and can be treated in very short time, no reason to suffer.
Posts: 1834 | From US | Registered: Oct 2008
| IP: Logged |
glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
Agree with Karen about it being parasites. The parasites are living in the small intestine and along the G.I. track, and can press against nerves that are situated there.
Tx with antiparasitics is the way to tx parasites whether with Pharma drugs or herbs.
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
| IP: Logged |
17hens
Frequent Contributor (1K+ posts)
Member # 23747
posted
I used to think tingling was Bart. Now I believe it's parasites - from experience.
-------------------- "My flesh and my heart may fail, but God is the strength of my heart and my portion forever." Psalms 73:26
bit 4/09, diagnosed 1/10 Posts: 3043 | From PA | Registered: Dec 2009
| IP: Logged |
scorpiogirl
Frequent Contributor (1K+ posts)
Member # 31907
posted
Besides Salt/c what did you girls use to clear your parasites?
I keep hearing Parastroy...
-------------------- Posts: 1391 | From Lyme Land | Registered: May 2011
| IP: Logged |
nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
I tried ivermectrin about 6 months ago - nothing unusual, so I hope parasites are not an issue.
I think it is bart coming back out. I had to quit zithro which was keeping it down and shortly afterward I had some slight burning in my shins so I started bactrim DS. But my eyes started swelling, I was groggy and could not sleep so I quit it.
I have been trying to set up an appointment for a liver/kidney test. I will just start the bactrim tomorrow at half dose. Hope I can tolerate it for two weeks until the LLDN appointment.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
| IP: Logged |
karenl
Frequent Contributor (1K+ posts)
Member # 17753
posted
Gael, the lyme co-infection filarial worms are the tiny parasites which live in the blood vessels not in the GI tract. They are tiny tiny and this is why people think they have bart - they make red marks like varicose and spider veins...
They block veins like the mesentric and aortic veins. The ones in the GI tract are not so dangerous.
Posts: 1834 | From US | Registered: Oct 2008
| IP: Logged |
nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
Just an update since this was brought back up- I started the Bactrim DS at half dose this morning and within hours I was so dizzy I could not stand. Still in bed. I was fine before taking it.
So side effects of bactrim are vertigo and neuropathy including tingling and pain in legs. Who knows what is what.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
| IP: Logged |
glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
Karen,
Willy Burgdorfer found Adult Filarial Worms in the ticks he dissected. There are 9 different species of filarial worms, two of which reside in the abdominal cavity and subcutaneous tissue as well as the mesenteries peritoneum. (I was dx with numerous retroperitoneal lymph nodes yrs ago.)
The adults I had come out of me and have seen pictures of on line look just like the ones pictured on www.lymephotos.com. The babies are very tiny and can reside and disseminate in other parts of the body.
Any disseminated hyperinfection of parasites that has had many yrs to invade the body can be very dangerous and cause secondary infection. Some of these worms also carry the wolbachia bacteria.
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
| IP: Logged |
glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
P.S.
There are many parasites that can reside in the G.I. track, and it's usually the case if ones immune system is not functioning properly.
They can be infected with many different parasites. I had several different parasites including roundworm and tapeworm infecting my G.I. track
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
| IP: Logged |
vibrating, tingling, twitching in feet(soles only), calves, hamstrings, lower back, heart, back of head when I lay down at night
like laying down on a bed of live snakes, drives me nuts
throbbing with heart beat in those areas
doc says it's Bart
the soles of our feet are supposed to be a Bart specific symptom
can't wait to shake this stuff!!!
good luck to you'all!!!
-------------------- Persistence, persistence, persistence!!! "Nothing in the world can take the place of persistence... Persistence and determination are omnipotent." attributed to Calvin Coolidge Posts: 599 | From USA | Registered: Jun 2011
| IP: Logged |
posted
PS: I get temporary relief with deep breathing meditation - in case it drives you nuts, too, it's worth a try
-------------------- Persistence, persistence, persistence!!! "Nothing in the world can take the place of persistence... Persistence and determination are omnipotent." attributed to Calvin Coolidge Posts: 599 | From USA | Registered: Jun 2011
| IP: Logged |
karenl
Frequent Contributor (1K+ posts)
Member # 17753
posted
nefferdun,
it also can be a die-off as the bactrim kills parasites.It has sulphur what they hate. Officially bactrim and doxy do kill parasites.
Very often the side effects are exactly the die-off reactions.
I never had any problem with bactrim, except when I was already sick. Many people take bactrim without problems.
Harmony,
once you decide not to suffer just do a two week parasite program.
The wolbachia is the reason why the add the doxy.
Posts: 1834 | From US | Registered: Oct 2008
| IP: Logged |
TerryK
Frequent Contributor (5K+ posts)
Member # 8552
posted
Tingling and crawling sensations are probably a result of neuropathy. Anything that causes nerve damage can cause neuropathy. Many infections and even diabetes cause neuropathy.
I was told the vibrating was probably associated with lyme. I got the vibrating once I started ceftriaxone. I found that colloidal minerals kept it mostly gone. I was on Nature's Sunshine mineral chi for a few years and they finally left completely. You may have it as long as you are treating and/or mineral depleted.
Minerals get depleted with detox because they are needed for the liver to do it's job. Also, as bugs die they release heavy metals and I think our minerals get depleted with the release of heavy metals too.
This may not be the cause for everyone but it was for me.
Terry I'm not a doctor
Posts: 6286 | From Oregon | Registered: Jan 2006
| IP: Logged |
posted
I have the tingling sensations too mine are in the hands
My Llmd says its bart too. I wonder if its really parasite why do llmd's dont say anything about it?
-------------------- Posts: 215 | From California | Registered: Sep 2011
| IP: Logged |
nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
The tingling was not my major focus today. My focus was twirling today - literally.
I took Bactrim DS for 10 months, no problem. Then I began to have some issues so I was off and on. Today a half dose was like getting hit in the head with a two by four. Major fatigue too. I was fine before I took it - nothing.
Just six days ago I thought I was close to well. What in the *&^$ happened! The tingling is not worms or parasites. It is neuropathy. It could be the return of an infection or it could be my body has just been damaged from all the drugs I have been cramming down myself for the last three years.
If I was close to well with the babesia, why would I have such a sudden and dramatic return of dizziness. It was completely gone. Makes no sense. Maybe it is just drug induced. Maybe the neuropathy is too.
Whenever I get ambitious and try to boost my dose I always get really sick. Every time I tried to add more mepron, or Bactrim or whatever, I just got sicker. And it wasn't just for a day or two. It took weeks to wear off; sometimes a month.
I think my body gets to a place where it just can't tolerate the drug I am taking any more. My biggest improvement always happens when I change drugs, not when I stay on them month after month.
I think I develop an allergy to them. i know I developed an allergy to zithromax. It was sudden. I had hives all over my body and it took four days to go away - which is how long zithro is in your system.
So although I am not well, I have to be careful that the drugs are not contributing to my symptoms. Malarone can cause many of the symptoms of babesia; some side effects are dizziness, weakness, headache, shortness of breath, muscle or back pain, insomnia, depression, anxiety and stomach pain.
I think the only way to tell what is happening is to take breaks now and then, at least for a few days but the last time I tried this, it lasted one day because of a return of symptoms. How could this infection take over in just one day?! I just don't understand it.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
| IP: Logged |
karenl
Frequent Contributor (1K+ posts)
Member # 17753
posted
Terry what was the ingredients of this Nature's Sunshine mineral chi? It worked in the long run so maybe it had antiparasitic properties and high zinc.
Posts: 1834 | From US | Registered: Oct 2008
| IP: Logged |
karenl
Frequent Contributor (1K+ posts)
Member # 17753
posted
Kramberry,
most LLMDs have no training in this field.They are specialized in Lyme.
If you would be in a group for animals you would learn this.... Just yesterday I learned from a treatment for a horse how to cure my eye problem. They have these problems every day.
You need to collect information at many places.
Posts: 1834 | From US | Registered: Oct 2008
| IP: Logged |
posted
Magnesium supplements help with tingly/numbness..
Most lyme patients are LOW in Magnesium.
Had tingly and severe numbness in hands at night...within a few weeks taking magnesium..it disappeared!!
Posts: 501 | From Hudson Ticky Valley, NY | Registered: Aug 2009
| IP: Logged |
TerryK
Frequent Contributor (5K+ posts)
Member # 8552
posted
Karenl wrote: Terry what was the ingredients of this Nature's Sunshine mineral chi?
INGREDIENTS:
Chinese Mineral-Chi combines a full spectrum of naturally chelated trace minerals extracted from the plant vegetation of an ancient sea bed. It contains extra potassium to support the adrenal glands and natural grape, cherry and apple flavors. In addition, Chinese Mineral-Chi contains the following tonic herbs: � Gynostemma herb, considered by some to be stronger than ginseng, contains up to 80 saponins that feed the glands, especially the adrenals. � Lycii and schizandra berries support physical, mental and emotional energy, including sexual energy; balance the 12 meridians and energize the five constitutional types. � Siberian ginseng root, an adrenal tonic that acts as an energizer, supports the body in times of stress. � Astragalus root reduces stress, builds the immune system and acts an energizer. � Licorice root (DGL) is an adrenal/pituitary tonic. � Reishi mushroom calms, supports the body when under stress and supports the immune system. � Ginger rhizome is a digestive tonic to help assimilate other herbs. � Ginkgo biloba builds mental energy, alertness, clarity and focus.
Karenl wrote: It worked in the long run so maybe it had antiparasitic properties and high zinc.
Perhaps it does have antiparasitic properties. While I believe parasites are a big issue for many lyme patients I do not believe it was part of the vibration issue for me.
I started with colloidal minerals and that made a big difference in the vibrations but mineral chi helped even more.
karenl wrote: most LLMDs have no training in this field.They are specialized in Lyme.
I don't know about most but my LLMD has been pretty aggressive in treating parasites.
nefferdun - your logic makes sense to me.
ivermectin did nothing for me but albenza did. Many anti-parasitic drugs target only certain parasites. If you have parasites, you may need a different anti-parasitic. Not saying for sure that parasites are an issue for you but it might be worth trying a different medication to see if you have a reaction. Herbal antiparasitics didn't do much for me.
Terry I'm not a doctor
Posts: 6286 | From Oregon | Registered: Jan 2006
| IP: Logged |
posted
Jamers symptoms sound very similar to mine... I get the vibrating sensation all the time to varying degrees. I had a period of a couple of weeks where it decreased, but dont know why.
I also associate it with anxiety. When the vibrating is high, my anxiety is also usually high. It is especially seen in being startled easily. Usually with unexpected noises.
I have been clinically diagnosed with Bartonella & am on Rifampin & ABart.
Posts: 164 | From California | Registered: Aug 2009
| IP: Logged |
gigimac
Frequent Contributor (1K+ posts)
Member # 33353
posted
quote:Originally posted by Jamers: I have a vibrating sensation all over my body all the time. Its like my nerves are trembling. I also get the strange tingling moving up and down or in my toes. I have tingling in my upper thighs by my rear too.
Jamers, what you just described is exactly what I have been experiencing since I got sick. I have never heard anyone else describe this vibrating sensation, I thought I was alone, it is such a strange and unpleasant sensation!! In a way it feels good to know I'm not alone. It does seem to get worse with stress as well as random twitching. I would love to get rid of this, hoping doxy is helping in spite of currently feeling worse!!
Posts: 1534 | From Greensboro NC | Registered: Aug 2011
| IP: Logged |
scorpiogirl
Frequent Contributor (1K+ posts)
Member # 31907
posted
quote:Originally posted by jenn: Magnesium supplements help with tingly/numbness..
Most lyme patients are LOW in Magnesium.
Had tingly and severe numbness in hands at night...within a few weeks taking magnesium..it disappeared!!
Does Epsom salt bath nightly counts? B/c that's not helping my numbness/tingle at all.
-------------------- Posts: 1391 | From Lyme Land | Registered: May 2011
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[Frown]](frown.gif)
Printer-friendly view of this topic