LymeNet Flash: anyone with times of very quite voice

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»	LymeNet Flash » Questions and Discussion » Medical Questions » anyone with times of very quite voice

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Topic: anyone with times of very quite voice

Rob_h
Member
Member # 38104

posted

I have had almost daily over the last six months times of an hour or more when my voice becomes very soft and quiet, without my doing so.

Has anyone had this? Thanks

Posts: 18 | From NH | Registered: Jun 2012 | IP: Logged |

GretaM
Frequent Contributor (1K+ posts)
Member # 40917

posted

Hi Rob! Good to see you [Smile]

Yes! After intense bouts of neurolyme flares, it is almost like I have lost my voice.

But instead of being hoarse, like it is with laryngitis, it is just really quiet, and no matter how hard I try, I can't make it louder.

Other times, my voice is very loud, almost yelling, and I don't understand why this happens either.

Noticed if other "agitation" or stimulation, like music, me laughing too much, or msg, then the loudness is there.

But the voice softness is totally related to the encephalitis/brain swelling I get when I go down with bad neuro lyme flares.

Sometimes on those days I also have a hard time swallowing liquid. They seem to bounce back up and then I inhale them too.

Acetazolamide has helped me with the brain swelling.

Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013 | IP: Logged |

poppy
Frequent Contributor (1K+ posts)
Member # 5355

posted

Yes, I have voice problems too. Gets to the point that sometimes I would rather communicate by email than by phone.

I think this is related to infection in the nervous system.

Posts: 2888 | From USA | Registered: Mar 2004 | IP: Logged |

Lymetoo
Moderator
Member # 743

posted

I used to. Not very often anymore since I got treated.

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96223 | From Texas | Registered: Feb 2001 | IP: Logged |

lpkayak
Honored Contributor (10K+ posts)
Member # 5230

posted

I dont but my aunt who is dx with parkinsons does. Her docs told her it goes with parkinsons

There is a good chance she has undx and ub txed lyme

--------------------
Lyme? Its complicated. Educate yourself.

Posts: 13712 | From new england | Registered: Feb 2004 | IP: Logged |

robbiem
LymeNet Contributor
Member # 32092

posted

Yes -- if I was in a major herx.

It was as if it took too much energy to actually get the words out. My voice would literally be weak.

Posts: 192 | From New England | Registered: May 2011 | IP: Logged |

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