Topic: is there a migraine group here? migraine is different than the brain pressure many h
lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
...here experience-right?
I never had either til a week ago when i went to er with pain and numbness on left side of face
They ruled out stroke and dx migraine
If i take full dose of anti inflams, muscle relaxants and neurontin(for me only 600-the pain edge is off and i can function. Itcimesback assoon as it is tume for more meds...i dont like being on si many and for 3 days i am sleepier and sleepier
Tody i feel drugged -dizzy,woozy-like i am outside myself looking at me
Im thinking i might have goofed and taken an extra neurontin-theothets never do anything like this to me
So i am forcing fluids and not doing much...it makrs me mad cuz messes are just piling up all aroundme
Anyway-if there are others with migraine i'd like to talk-or if therealready is a thread please direct me
Im pretty sure this is not the same as that brain pressure but tiday i dint know
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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posted
No, it's not the same as the brain/head pressure. I'm sorry you are still suffering. There are certain foods you may need to stay away from to avoid triggering the migraines.
Next time you see your Dr ask him about meds made specifically for migraines.
I'll move this to Medical Questions for you.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
my doctor recommended a product called "migralief"
I think thats how you spell it. it seemed to help me alot.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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GretaM
Frequent Contributor (1K+ posts)
Member # 40917
posted
I was misdiagnosed with migraines.
That's what they dx you with when they don't know what is causing it but you have serious head pain.
If you read up on migraines, most normally have a trigger. Something that will set it off.
If you can pinpoint something you changed the day before or the day of your migraine, then maybe it is a migraine.
Some migraines have auras before. Weird vision things going on.
Others have numbness or tingling in the extremities for a few minutes, then you get hit with the migraine.
A migraine often causes nausea, and severe light and sound sensitivity.
If you had bells palsy of your face with this pain...it IS NOT a migraine.
I had that plus severe head pain, severe, for 44 days, and the moron ducks told me instead of an aura for 30 minutes, mine was 44 days.
And they actually believe the **** they spout out of their mouths...
Turns out encephalitis.
If the pain hasn't went away-go back. They may give you an IV med cocktail which may help tempporarily. Maybe they will CT you. Make sure you request the CT with dye in it. Then they can see the blood vessels in your head.
Also beware of taking too many meds to stop the pain.
Then you will have an overuse headache afterwards.
Sorry I can't be more positive about it, but it was a major misdiagnisis for years that is going to make getting rid of this neuro lyme even harder.
Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
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posted
I have suffered from migraines for more than 10 years. They are awful!
Mine normally throb behind my right eye, but sometimes they become bilateral. I have also had ocular migraines where they cause blurred vision in one eye with no pain.
I get facial pain with mine too, and they can go on for days, however, if I take sumatriptan, it will help alot and get rid of it.
Sometimes, if sumatriptan doesn't help, I have to take Vicodin as well, but that is not often.
My whole sensory system gets affected by the migraine.
I hope you get some relief soon!
Posts: 187 | From Connecticut | Registered: Jun 2013
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
Oh i replied to the link...and it didnt show up-i'll try to fixit
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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springshowers
Frequent Contributor (1K+ posts)
Member # 19863
posted
quote: What are migraine headaches? Migraine headaches result from a combination of blood vessel enlargement and the release of chemicals from nerve fibers that coil around these blood vessels.
During the headache, an artery enlarges that is located on the outside of the skull just under the skin of the temple (temporal artery). This causes a release of chemicals that cause inflammation, pain, and further enlargement of the artery.
I am having first migraines along with herx after treating veins in my neck which are blocked as I have CCSVI which is vascular blockage of veins.
It makes sense when you read the cause that enlargement and release of chemicals along nerves in that area would be resulting in this.
I am not sure what a person who had chronic migraines body is reacting to to get this affect. But after getting one that lasts for days along with my herx specifically doing this treatment I researched more on migraine causes and bam. I do not normally get them and I now feel for all of you who do. Very painful and debilitating. !
Only waiting out my herx has helped me so far and anti inflammation and detox.
Posts: 2747 | From Unites States Of America | Registered: Apr 2009
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
I have ocular migraines. also have temporal lobe migraines.
some auras but mostly visual impairment. comes and goes.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
I have had migraines since I was 12. Mine were hormonally triggered. I would get it for 3 days on one side of my head. Sometimes it would then shift to the other side and I would be sick for 3 more days.
They are extremely painful, with the pain focused behind one eye. I was light sensitive and noise sensitive. I always had to go to bed in a dark room. If I tried to stand, it made me nauseated.
Imetrex knocks them out. It is important to take it as soon as you get the first twinge. If it gets a chance to take hold, it is much harder to get rid of.
With Lyme and Co's I have had different headaches, more behind both eyes, but the imetrex usually wipes them out too.
Ask your doctor for imetex. It is generic now and pretty cheap. I used to pay $24 a pill but now I can get 9 pills for $20 (with medicare $4!) I get the 100mg so I can bite off about 1/3 of a tablet for each headache.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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posted
I had terrible time with migraines last summer, after tick bite but before being diagnosed. They went away after first round of abx in September.
Mine would wake me up at night, ice pick in the eye pain (right eye). I'd take ibuprofen and put an ice pack on it. Most lasted less than 1 hour.
Can't imagine enduring that type of pain for days at a time!
Head and ear pressure (right ear) was much different. It was constant, but not nearly as intense.
-------------------- One day closer to being cured..... Posts: 104 | From Wisconsin | Registered: Jan 2014
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posted
I've gotten migrraines ever since I was hitin the forehead at thirteen. I never knew I had lyme til 1998, when I figured out that the illness I had at ten, undiagnosed, was classic rheumatic lyme, back in 1956! Anyway, recently I read some stuff about using magnesium to help with migraines, which is logical, since I seem to have been chronically deficient since childhood. I used to crave the blackboard chalk, which was made with mg! Recently, I am getting the headaches more frequently, with the auras somewhat different in pattern. I think this is related to sx like vertigo. Take meclezine and mag.
-------------------- ~*~ Carole ~*~ Young at Heart Grandmother of 4 Posts: 140 | From Morristown, NJ, USA | Registered: Jan 2004
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cottonbrain
Frequent Contributor (1K+ posts)
Member # 13769
posted
migraines have been my most horrific symptoms.
The thing that has helped me most: very careful attention to diet.
Here are some of the foods I avoid or only eat small quantitites of:
gluten soy cheese (except Havarti) beans / legumes tomato sauce (limit) vinegar guar gum / locust gum / xanthum gum anything with dyes or 'natural flavors' anything with 'spices' (could be MSG) sodium phosphate (in a lot of foods) sulfites yeast, yeast extract, msg mushrooms avocado onions almost all prepared foods all fast food lots mre--too long to list
the main thing is to keep a food log until you figure out what you can eat and how much. I was shocked at how gluten affects my headaches -- it took about four weeks of returning to gluten for me to realize -- that is, the gluten seems to accumulate over time so it is not obvious right away that it may be contributing to your brain inflammation
it is a lot of work but I have seen my migraines go form 3-4 a week to 3-4 a month. big improvement.
Posts: 1173 | From USA | Registered: Nov 2007
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
anybody get vomiting or diahrrea with theirs? I do. also the head pain is so horrific I can't lift it off the bed but the stabbing icepick behind the eyes is reaaly bad.
some days I thought I was going to stroke out.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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