posted
Hello, I don't want to make this too long so I'll summarize my story thus far
- June 2012: (110lbs) sudden flu like symptoms, stick neck, migraine, mood swings, bones on fire, inability to move, vomiting, diaherra, dizziness, inability to stand - huge bullseye rash
- diagnosed with Lyme in July 2012 - prescribed antibiotics for 21 days and took a blood test. Results unknown to me
- 2013: Frequent fainting, vomiting, diaherria, memory loss, inability to concentrate, slurred speech, headaches, heat intolerance, loss of appetite, back pain, mood swings, depression, dizziness
- 2014:(104lbs) Fainting, vomiting, heart palpitations, severe chest pain, mood swings, constipation, depression, headaches, memory loss, nausea, dizziness, neck pain, hands not working often
- Dr visit august 2014, did ekg, normal. Recommended to do lung test, declined
- February 2015 went vegan Chest pain mostly stopped - rife machine June 2015
- hands not working/ very clumsy, brain fog, memory loss, getting lost, mood swings, back and neck pain, bleeding gums, slurred speech,sometimes inability to form sentences, forget words, can't stand up sometimes, heat intolerance
- 2015 CBD oil for mood swings and depression - stopped rife machine October 2015 - December 2015 vital plan restore (herbal therapy)
- symptoms getting way worse: (100lbs) severe mood swings, depression, fatigue, confusion, forgetfulness, loss of appetite, light and noise and scent sensitivity, headaches, jaw pain, inability to get up, rashes, can't shower
In October 2015 I took a trip to CO to investigate mmj treatment for lyme. Concluded it is necessary. am trying to apply for mmj license in NJ.
Since I received antibiotics, does that mean in the eyes of whomever, that I do not have lyme any longer? Never had follow up exam to my knowledge
Am interested in some kind of govt assistance as I cannot work now with this herbal therapy.
What options do actually I have? I am lost and confused about my future. Sorry this was long. Hopefully it's spaced out enough so people can read easy
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(broke up the text a little more for easier reading for many here)
posted
What is the vital plan herbal treatment you're doing?
Just because you took a little antibiotics doesn't really mean anything, with all the symptoms you have - you have Lyme symptoms in spades here!
You need to see a Lyme-treating doctor. You can make a request for referrals in the Seeking a Doctor section and folks will send you some private messages.
Re symptom relief, it's a matter of finding out what you're going to respond to. It takes time to do this discovery work, so just have some patience with the process. When we hit our bingos, it's really worth it!
For example, drinking mangosteen juice for me stops all eye symptoms - you mention light sensitivity here. It also can stop constipation, and bleeding gums for me. I drink around an ounce a day. I like the Mango-Xan version, as it is the most tart. It's found in healthfood stores and online.
What I also like to do for my gums is something quite simple - called oil pulling, I simply swish some coconut oil around in my mouth for 15 minutes, then spit out. It really calms down irritated gums.
I stopped being spacy when I had my TSH and T3 thyroid levels checked and found that the T3 was low. When I went on Armour thyroid (there's also Naturethroid), I felt present again, as my metabolism returned to more normal.
Re gov't assistance, are you able to apply for some disability coverage? Probably area support groups could tell you more. Support groups are listed at the left with Support Groups - click on United States, then New Jersey.
[ 12-22-2015, 03:59 PM: Message edited by: Robin123 ]
Posts: 13117 | From San Francisco | Registered: May 2006
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LisaK
Frequent Contributor (1K+ posts)
Member # 41384
posted
I agree with Robin. if I were you I would 'start over'. I have started over many times.
I got most well from herbs and suppliments .. they saved my life, but I had tick diseases for over 15 years untreated and took abx for about 8 months I think and still had troubles until I went the herbal way.
I have no inusurance. ran out of money. this was cheapest way for me and it worked!
I am now working on genetics and it is helping a lot.
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3558 | From Eastern USA | Registered: Jul 2013
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-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
You asked: "Since I received antibiotics, does that mean in the eyes of whomever, that I do not have lyme any longer?"
The answer is that there are "2 camps" when it comes to lyme disease. On one side are the doctors who believe that lyme is RARE and EASILY cured. If you go to a doctor in that camp, yes you will be told that you can't possibly still have lyme since you had a few antibiotics.
These doctors will not help you and they are in the majority due to the miseducation of U.S. doctors about lyme disease.
You have to go to the other camp for help. These are our lyme specialists who believe that lyme is worse than an epidemic and that lyme is very difficult to cure. These doctors will treat you long-term until all of your symptoms go away.
So, ask for a doctor in the Seeking a Doctor forum, contact lyme support groups in your state (see Support Groups on the left side of this page), and familiarize yourself with the Burrascano Lyme Treatment Guidelines found here:
Be sure to get personal recommendations for any doctor you are considering. You can't just go to any doctor, even the names given out by lymediseaseassociation.org
When you are first starting out, it can be difficult to evaluate whether or not a lyme doctor is any good. So, educate yourself by reading Burrascano.
Many doctors treat lyme disease, but not many know enough to cure a person. So, find out from people here and in support groups which doctors are having success. Try to go to a doctor whose practice is majority lyme patients. That doctor has developed expertise in the disease.
A Boston TV station did a show on the lyme disease controversy a few years ago. It explains the "2 camps." Here is the Boston Chronicle video on YouTube:
I suggest you watch this video a few times. It explains the lyme disease controversy and the role the Infectious Diseases Society of America (IDSA) plays in making it difficult for a person to get good lyme treatment.
Posts: 9931 | From Maryland | Registered: Dec 2007
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posted
I sent you info for LLMDs in CT over in "Seeking a Doctor".
The bull's-eye rash is definitive for Lyme and 21 days of antibiotics is nowhere near enough to treat it! You need to be evaluated and treated by a Lyme-literate doctor.
Read about the controversy regarding Lyme Disease and its treatment:
The Lyme Test Access Program (Lyme-TAP) is a nationwide patient assistance program to provide assistance for initial Lyme-related lab tests to patients who demonstrate true financial need. Reimbursement is up to 75%.
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
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