posted
Day sweats or night sweats? I believe day sweats are bart. I also believe bottom of foot pain is bart, even if it's only occasional.
I've been treating for Lyme 7 1/2 years, but just started treating bart about 10 mos. ago. I did Rifampin for the ten mos., and even did 1200mg/day for almost 6 mos. I felt worse and worse the whole time on Rifampin, but just kept pushing.
I had to go on medical marijuana for pain. It did help.
Then when I thought I couldn't stand anymore and was ready to stop treatment, I felt my symptoms start to turn around. I was able to stop the maryjane (CBD oil) with no increase in pain. So instead of stopping the abx, I continued for 2 more mos (was also on Ceftin, and Tindamax).
It's been a week off all abx and I feel better than I have felt in a long time.
I think Bart is the missed infection for many, certainly for me. I think Rifampin kills bart, but it hurts like a mofo the whole time you are on it. Dr. M, the Bart expert, feels you need to work up to the high dose and then stay there for 4 - 6 mos. He does say it will be painful.
BTW, I never tested positive for Bart, but I now know I've had it all along. Developed striking linear lesions while on Rifampin.
-------------------- Sick since at least age 6, now 67. Decades of misdiagnosis. Numerous arthritic, neuro, psych, vision, cardiac symptoms. Been treating for 7 years, incl 8 mos on IV. Bart was missed so now treating that. Posts: 765 | From nw ct | Registered: Sep 2008
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bcb1200
Frequent Contributor (1K+ posts)
Member # 25745
posted
I mostly have night sweats. I can be fine, but then I get a hot flash and start sweating under the covers and then need to throw the covers off. Then I get cold and have to cover up again.
During the day, I get hot flashes. I'm a man and this isn't normal. I'm fine one minute, and the next I have an "attack" of sorts and get all hot and sometimes sweaty. (although sometimes not.)
I hate it.
What I don't get about Rifampin is why I was diong well in the late Sept / Oct time frame. My sweats had stopped. My twitching was nearly gone. THen it all changed and has been down hill ever since then.
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 95% +/- most days. Posts: 3134 | From Massachusetts | Registered: May 2010
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posted
With your night sweats I'm thinking babesia or Borrelia. Have you treated for babesia?
-------------------- Sick since at least age 6, now 67. Decades of misdiagnosis. Numerous arthritic, neuro, psych, vision, cardiac symptoms. Been treating for 7 years, incl 8 mos on IV. Bart was missed so now treating that. Posts: 765 | From nw ct | Registered: Sep 2008
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