Topic: SI Joint Pain/Dysfunction. Anyone have this?
tricia386
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posted
Per my Pysical Therapist I am having a lot of issues with my SI Joint on my right side. I am also expercing IC like symptoms. I dont know what was first the chicken or the egg.
Could this be a lyme symptom? Could it be caused by an infection?
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
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Razzle
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Yes, this can be caused by infection. Yes, this can be caused by Lyme -- both the IC and the SI joint stuff.
I'm having SI joint issues myself...
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4166 | From WA | Registered: Feb 2011
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Ellen101
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posted
My major issues are SI joint pain
Posts: 1748 | From United States | Registered: Dec 2011
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posted
Yes. I have lots of probs with my SI joint. Lyme and bart+. I looked into HLA-B27 testing for spondylosis. I was negative, but, you may want to look into it.
The klibsiella bacteria shares a similar protein with individuals who have that genotype, and the body attacks itself if the person has klibsiella. This is a good case for evidence that an autoimmune disease is caused by bacteria.
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ukcarry
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posted
This is a problem for me too, along with excruciating coccyx pain that now looks as if it is referred pain.
It's very hard withnthese things to tell how much is Lyme infection/arthritis and how much structural injury or degeneration.
Posts: 1647 | From UK | Registered: Nov 2008
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tricia386
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Ugh, I hate all of this!!! I think I am going to get an MRI to see if I have an degeneration yet.
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
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posted
Yes, I see a chiropractor who's very good with low back/SI joint adjustments, and that's what I recommend.
Posts: 13116 | From San Francisco | Registered: May 2006
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Ellen101
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I have been seeing my chiro for over 20 yrs. When I first started having awful SI pain as well as bursitis symptoms I went to him and after numerous appt I still couldn't get any relief.
This is when I knew there wsas something else wrong as in the past he could fix it every time. Once I found out it was lyme causing the problems my LLNP said alot of times chiro will not help as alot of the pain in the SI joint is coming from the nerve endings as that is where lyme attacks.
Posts: 1748 | From United States | Registered: Dec 2011
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Carol in PA
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I've been able to reduce sacro iliac joint problems significantly in two ways.
I take supplements that will reduce inflammation.
I treat it with either the SOTA magnetic pulser or the SOTA LightWorks.
If you are already taking systemic enzymes, magnesium, pharmaceutical quality fish oil, antioxidants like acetyl l-carnitine and alpha lipoic acid, then consider trying a magnetic pulser.
Pulsed Electro Magnetic Fields influence cell behavior by inducing electrical changes around and within the cell. Improved blood supply increases the oxygen pressure, activating and regenerating cells.
Improved calcium transport increases absorption of calcium in bones and improves the quality of cartilage in joints, decreasing pain dramatically. Acute and even chronic pain -also caused by osteoporosis- may disappear completely.
Posts: 6947 | From Lancaster, PA | Registered: Feb 2004
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lpkayak
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huh-didnt know ir was related to lyme. i did have a major SI problem but it was after a hard fall from a horse a few years ago
the PT worked really well and i am fine-i think
i contiinue to have some lower back pain if i dont do crunches or pelvic tilts. but i have 3 lumbar vertebrae with severe facet arthritis and thought that was from that
something new since the SI problem for me is occasional groin pain. it is very new to me. and i am having bursa problems in other parts of my body with out trauma...so i am wondering about the relationship of bursa to lyme
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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Ellen101
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I think there is a definite relationship between inflamed bursa and lyme. I was diagnosed with bilateral hip bursitis prior to my lyme diagnosis.
Posts: 1748 | From United States | Registered: Dec 2011
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Carol in PA
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quote:Originally posted by lpkayak: something new since the SI problem for me is occasional groin pain.
Groin pain can be caused by a fracture of the head of the thighbone (femur). My mom broke her hip but still has groin pain, many years after it healed.
Any source of inflammation may cause pain. Pain is one of the symptoms of inflammation, along with swelling, warmth, and redness; together these are signals that a problem may exist.
You can take antioxidants to reduce inflammation. Treating with LED light therapy or pulsed magnetic therapy will reduce inflammation and pain.
Posts: 6947 | From Lancaster, PA | Registered: Feb 2004
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lpkayak
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posted
thx guys...
ellen...bursa near my rotator cuff are involved
also near my knee replacement
these have been identified by PT-doc couldnt figure it out
i did notice that the exact same pain that dx the bursa (in both places) is the pain they use to dx fibromyalgia
so i am wondering---honest, after all this time am i just figuring this out...i have always suspected fibro=lyme...but could it be because lyme causes bursa problem and fibro dx is based on pushing on bursa???
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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Ellen101
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posted
I get groin pain on both sides. My chiro told me that nerves from the SI joint radiate to the groin.
Posts: 1748 | From United States | Registered: Dec 2011
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quote:Originally posted by Ellen101: Once I found out it was lyme causing the problems my LLNP said alot of times chiro will not help as alot of the pain in the SI joint is coming from the nerve endings as that is where lyme attacks.
- I no longer get any relief from a chiro. I had to give up adjustments about a year ago. It just makes me have MORE pain. I know it's inflammation.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
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posted
I have had SI joint pain in the past due to very mild scoliosis and lack of excercise.
My hip expander excercise (Taught to me by a physical therapist)consists of sitting in a chair and placing one arm between my knees-- elbow on the inside of one knee and hand on inside of other and gently pushing knees inward.
(you could also use a child's ball between your knees) Move your torso up or down slowly with each exertion.
After you have done this, put knees together and hands on each side of knee. While pushing in with hands, try to push knees outward and slowly lower torso.
You are trying to get that SI joint to move independently from the spine. When this joint gets stuck, it hurts like heck!
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posted
I used to put TENS unit pads on the area to decrease pain sensation - every little bit of pain management helps -
Posts: 13116 | From San Francisco | Registered: May 2006
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lpkayak
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like tut i havent been able to use chiro ---its been 20 yrs for me
jessie-the easiest cure for lower back pain is keeping your abdominals strong...you have to do it right-but it isnt hard. doesnt take long. i have severe facet arthritis in all lumbar vertebrae and some docs wonder that i can walk...but i have no pain as long as i walk correctly the day b4. if i am in hosp after surgery or something pain is back
you could check with PT or online to get exercises---mostly pelvic tilts at first and later crunches-just s feww---you can do them sitting or standing and they still work
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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desertwind
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posted
I am going through a similar thing.
I have severe Osteitis Pubis along with SI pain, and bad pelvic floor pain. MRI showed severe swelling in my pubic bone/symphisus area. For me I believe it is an over use injurey though it can be caused by an infection.
In PT as well. I am wearing a SI Compression belt which really helps but the Osteitis Pubis pain radiates all over my pelvic area. I had a stress fracture there years ago..
Working on lumbar stabilization and strenghtening.
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daystar1952
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This is something I posted a few years ago that has to do with the SI joints and the adrenal glands. We know Lyme likes cartilage and we know lyme can weaken the adrenal glands. Has anyone had their SI joint dysfunction improve when being treated with antibiotics? Also have you guys heard of prolotherapy. That is very promising. http://lymesentinel.blogspot.com/search/label/ADRENAL%20GLAND%20HEALTHPosts: 1176 | Registered: Oct 2002
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TNT
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quote:Originally posted by tricia386: ... I am having a lot of issues with my SI Joint on my right side. I am also expercing IC like symptoms...
Could this be a lyme symptom? Could it be caused by an infection?
This is an old thread, but since it has been brought back up, I would like to note the STRONG correlation between Brucellosis and SI problems/pain/dysfunction and urinary tract infections/issues....
-these are HALLMARK symptoms of Brucellosis-
You can have a "sub-serology" infection with Brucella...the tests are notoriously insensitive.
I'm not saying every SI issue or UTI issue is caused by Brucella, but I would encourage everyone to look into Brucella and see the correlation.
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daystar1952
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Thanks TNT...what is the drug of choice for Brucella?
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posted
I just finished a 7 week course on SI pain and homeopathic remedies for it. This can be quite helpful along with the body work.
There are so many ways the SI pain can present itself. Sometimes the pain radiates to the groin. Sometimes, it hurts to raise the thigh from a sitting position, etc. Sometimes the feet want to drag. Sometimes the pain wraps around to the outside of the thighs, etc
Homeopathic remedies are an avenue of relief that might be helpful in alleviating suffering.
Posts: 764 | From Northwest | Registered: Sep 2014
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posted
I also get that a pathogen could be the cause of pain but this is the thing- the homeopathic remedy works by improving the terrain of the body so it can sort itself out more easily.
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Keebler
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- As others mention, anything that helps address inflammation can be of help. Of course, so many Rx such as NSAIDS and such can be terrible.
Better to use herbal / nutrients to address inflammation such as MAGNESIUM, TURMERIC, etc.
Carol's suggestion with Sota, too . . . or other physical therapies that do not push on the spine. Gentle Yoga, etc.
Some homeopathics can also be effective yet they can differ for each individual.
New research suggests that some 40% of chronic lower back pain (CLBP) could be caused by bacteria, and that a significant percentage of people with lower back pain following a herniated disc and swelling in the spine could find relief by taking an antibiotic.
Investigators from the Research Department of the Spine Center of Southern Denmark, University of Southern Denmark, Odense, led by Hanne B. Albert, PhD, conclude that antibiotics may be considered as a treatment option for patients with chronic low back pain, but with caution. . . .
[Full article at link above] -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
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[this type is excellent for those with lyme as there is no sudden twisting of the spine or neck - which should never be done with some who deals with lyme]
FIND A THERAPIST trained in UPLEDGER TECHNIQUE (not all trained in cranial-sacral also have the visceral training so do ask first.)
Some who are trained in this (such as a D.O. or P.T.) may be covered by your insurance. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
I guess we have to play around to see what makes a difference. I've been getting chiro care forever for this and have just started PT for stabilization exercises. Will report in if it makes a difference, as in strengthening muscles that support everything.
Posts: 13116 | From San Francisco | Registered: May 2006
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posted
I have had plenty of back pain issues since being sick with TBD's.
In fact it started when I had moved to the country and was working in the woods cutting firewood .
Back then I had an MRI and discovered L4,L5, L5/S1 were herniated.
It has been a confusing set of symptoms for me as they would move around and change in intensity. I lived with this for years!
I always believed it was solely injury causing the pain.
Fast forward 2012, two years into Lyme treatment I had just returned to work ( Iam a painting contractor) fell off my ladder,messed it up BAD.
Declined the ambulance ride two hours down the coast( had not worked in years $)and drove myself home.
Could not afford an MRI so crawled around the house that entire Summer and self healed no follow up.
It bothered me immensely for the following years until this year I started a new course using Buhner herbs. Low and behold my SI pain started to go away!
I went off treatment early and it returned. Went back on the herbs.
It is now 8 months later and if I watch how I lift etc. it remains basically pain free except for an occasional bad move to aggravate it.
So here is what I have concluded,back pain can and I believe is sometimes related to bacterial infection.
This is huge in my estimation. It begs the question how many back injuries are actually TBD?
Good luck to you Tricia.
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(breaking up the post for easier reading for many here)
[ 09-06-2016, 09:03 PM: Message edited by: Robin123 ]
Posts: 342 | From northern california | Registered: Dec 2010
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That is very interesting, Norcal. Which Buhner herbs did you take, and were you just treating Lyme?
Posts: 13116 | From San Francisco | Registered: May 2006
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Please consider prolotherapy. There are two kinds, prolotherapy with dextrose and another method called Platelet rich Plasma (PRP). My daughter had crippling SI joint issues for years and sometimes couldn't walk. She tried everything. PT made it worse. She was allowed to swim but only a few laps, to keep her strength up.
I'm telling you, this is a miracle cure if your problem fits the profile. It is offered at mainstream rehabs, but is not yet covered by insurance. It costs about $1,000. Best money we ever spent.
For PRP, they take out some blood, concentrate the platelets, and inject it into the joint(s). For the dextrose prolotherapy (sometimes tried first) I believe dextrose is injected. Both treatments tighten and regenerate.
My daughter was treated for Lyme years ago. She has some residual health issues but is thriving. And she can walk anywhere now. Total cure in a few minutes of prolotherapy.
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