posted
Hello, everyone! I haven't been here in a long time. I have overcome Bart, Babs and Brucellosis but still fighting lyme. I am much better and functioning fairly normal about 5 days per week. I have done everything but attribute most of my healing to Colloidal silver, treating parasites, yeast, diet and exercise.
I think I have a Mast cell disorder or at least a histamine intolerance. I live on Benedryl and herbal supplements for allergies. I am just learning about HI and MC. I can't find too much on it. Where do I begin?
Where can I find diet info or sample diets? Thank you all! Be well!
Posts: 143 | From Pittsburgh | Registered: Jan 2014
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posted
I'm very sorry to hear this, mvdr.. but at least now you know what to avoid and how to treat it. There is another VERY LONG thread I posted last year. You can search for it under my member #743.
posted
thank you all! I am learning a lot about this and already feeling better after identifying trigger foods.
Posts: 143 | From Pittsburgh | Registered: Jan 2014
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posted
Hello, Lymetoo! I do not have a good doctor, sadly! I have a good herbalist and essentially treating myself at this point. I live in Pittsburgh and there is no one here!
I cannot tolerate traditional medicine and the doctors I've been to for Lyme just want to give me antibiotics which I feel have caused more harm than good.
I am pretty much on my own, like so many of us! Trying to find a traditional doctor to do MCAD testing but that is challenging, too.
Be Well, M
(breaking up the post for easier reading for many here)
quote:Originally posted by Mvdr: Hello, Lymetoo! I do not have a good doctor, sadly! I have a good herbalist and essentially treating myself at this point. I live in Pittsburgh and there is no one here!
I cannot tolerate traditional medicine and the doctors I've been to for Lyme just want to give me antibiotics which I feel have caused more harm than good.
I am pretty much on my own, like so many of us! Trying to find a traditional doctor to do MCAD testing but that is challenging, too.
Be Well, M
Without antibiotics I dont think you have a chance against Lyme. I am in cycles of many antibiotics all the time and that is the only thing that has reduced symptoms and knocked down Lyme to a manageable state.
When you first start taking them, it always seems very dark and you have a worsening of symptoms. But you should absolutely NOT use that as a justification to stop. Infact it means its working.
Over the years, the ABs will have less and less of a dramatic impact and you can pop them without thinking about it. This means the Lyme is under control.
There are so many times early on that I wanted to stop, but thats the Lyme telling your brain to ease up on the killing
(breaking up the post for easier reading for many here)
[ 04-20-2017, 01:24 AM: Message edited by: Robin123 ]
Posts: 173 | From USA | Registered: Aug 2015
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GretaM
Frequent Contributor (1K+ posts)
Member # 40917
posted
Some good info on here. Also some links not working yet, but this is run by volunteers
posted
Want to chime in here - there is no one-size-fits-all when it comes to treatment - we're all unique in our responses.
For some, longterm antibiotics is the answer. For others, not, like me, I'm allergic to antibiotics, and I go a natural treatment route.
Many are treating with herbs, like the Buhner herbs, Cowden protocol, Zhang herbs, etc. It's a matter of finding out what we respond to best.
I have elevated mast cells too and I have not figured it out for myself yet. I know there's many triggers for it. Hope to have more understanding some day about it.
Posts: 13117 | From San Francisco | Registered: May 2006
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