LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » update

 - UBBFriend: Email this page to someone!    
Author Topic: update
lindadanis
LymeNet Contributor
Member # 51204

Icon 1 posted      Profile for lindadanis     Send New Private Message       Edit/Delete Post   Reply With Quote 
So I went to the dermatologist again yesterday because my bottoms of my feet are severely peeling, she gave me an over the counter cream. Said she don't know what it is but its not fungal. First the palms of my hands, now my feet, ugh.

I took three more drops of the ABABS last night and one doxy and woke up horrible. Could barely walk, my head feels like there is a balloon in it going up and down and I am so off balance. Is this a herx?

Saw the neurologist this week and he told me to go see an infectious disease doctor, which I am not doing and didn't know why I am so off balance.
ugh.

I am not getting anywhere for months. Put a call into the llmd, no answer back to phone message or email.

Feeling disgusted, hyper, anxious and mad.

Posts: 468 | From boston, ma | Registered: Feb 2018  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
Personally, I would stop the ABABS and see how you feel in a week.

[shake] [Frown]

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96223 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
lindadanis
LymeNet Contributor
Member # 51204

Icon 1 posted      Profile for lindadanis     Send New Private Message       Edit/Delete Post   Reply With Quote 
thanks Lymetoo: Do you think ABABS is causing all these issues? I just took my nightly dose but no doxy. I am so sick but not sure what is causing all of this. Thanks for any suggestions as I do appreciate it a lot.
Posts: 468 | From boston, ma | Registered: Feb 2018  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
Stop both and then add one at a time. Since you are having babesia symptoms, I suspect the ABABS as the cause. I am not a doctor!

We have to be our own sleuths!

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96223 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
lindadanis
LymeNet Contributor
Member # 51204

Icon 1 posted      Profile for lindadanis     Send New Private Message       Edit/Delete Post   Reply With Quote 
I will Lymetoo. I seriously don't know what is wrong but I am so sick of living like this everyday for the past 20 months. Before I started any lyme treatment this past February, I did not have this terrible off balance stuff, it came once I went on mepron and zith but I am not on either anymore. My head feels like its not functioning right, always in a deep fog. Driving is becoming very hard for me and all I do is cry. My skin feels like its 120 degrees all the time, the sweating is terrible. I know this all sounds like babesia to me., how do I treat it? The llmd want to retest everything through Igenex in another two weeks then wait three more weeks to get results. why retest?
Posts: 468 | From boston, ma | Registered: Feb 2018  |  IP: Logged | Report this post to a Moderator
lindadanis
LymeNet Contributor
Member # 51204

Icon 1 posted      Profile for lindadanis     Send New Private Message       Edit/Delete Post   Reply With Quote 
I take Ativan for anxiety but honestly, it doesn't touch it, my anxiety is getting worse. Any suggestions on how to deal with this? I was on 3mg. Ativan daily and have weaned myself down to 1.5 but seem to be stuck there. Honestly, I don't even know why I take it because it doesn't help anymore.
Posts: 468 | From boston, ma | Registered: Feb 2018  |  IP: Logged | Report this post to a Moderator
bcb1200
Frequent Contributor (1K+ posts)
Member # 25745

Icon 1 posted      Profile for bcb1200     Send New Private Message       Edit/Delete Post   Reply With Quote 
Lindadanis:

So sorry you are going through this. Every single symptom you describe sounds like Babesia to me. Every one.

Babesia flares are miserable. Crying, panic, off balance / rocking boat feelings, head pressure.

Here are a good descriptions of symptoms I've identified with:
http://www.gordonmedical.com/unravelling-complex-chronic-illness/babesia-like-organisms-bablo-consideration-signs-and-symptoms/

https://www.prohealth.com/library/a-deep-look-at-the-symptoms-of-six-major-lyme-related-infections-41139

--------------------
Bite date ?
2/10 symptoms began
5/10 dx'd, after 3 months numerous test and doctors

IgM Igenex +/CDC +
+ 23/25, 30, 31, 34, 41, 83/93

Currently on:

Currently at around 95% +/- most days.

Posts: 3134 | From Massachusetts | Registered: May 2010  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
Perhaps she is retesting because being on the meds will cause the babesia or Lyme to show up???

Were your first tests inconclusive?

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96223 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code� is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.