Hello, I am looking for info on how to find a doctor that is knowledgeable about Lyme disease. Myself and four of my five children were infected this past summer. Although we've done the abx for 3-4 weeks, I don't feel that is enough. I'm hoping that it is still early enough that we can get it under control. I feel horrible for my poor kids, who will have to deal with this for their entire life.
I'm also curious as to how to avoid/prevent future exposures. We live in a very high area of Lyme disease, and our yard in particular is covered. We were pulling 5-6 ticks off of each other every day at one point!
TIA for any and all help.
[ 10-04-2009, 08:55 PM: Message edited by: toobeets ]
Posts: 4 | From Chester County, PA | Registered: Oct 2009
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how old are your children? please edit subject line by clicking on pencil, 3rd box to right of your name, and show their ages in subject line. they need KIDS LLMDS in your areas.
check your profile above for adults penn llmds
The following is some links that may be helpful to you:
People seeking doctors might be able to get help from their state online information and support group. Nearly 3,400 people belong to state groups. Some of the groups are small but more than 20 of them have 50 or more people and seven have over 100.
The groups are moderated and you have to apply. Most don't allow doctor names, but once on the group, you can ask for doctors in a certain area and ask people to email you privately.
ILADS The International Lyme and Associated Diseases Society (ILADS) provides a forum for health science professionals to share their wealth of knowledge regarding the management of Lyme and associated diseases. www.ilads.org
They will also send you a ``test kit'' with their required form, all the test vials, & box to ship it in. Be sure to download Igenex's required form. MD, DO, ND, AC, DC are all fine** must sign, date, and show diagnosis code on there why he's ordering the test.
Optional tests include: co-infection panel for your area of country and PCR whole blood
Igenex is pre-pay/out of network for most insurances. If you are on medicare, Igenex will file the paperwork & it's free to you.