LymeNet Flash: Missouri Lyme Disease Network physician search, STL area a PLUS!

LymeNet on Facebook

LymeNet on Twitter

Follow @LymeDiseaseNet

The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive

The Lyme Disease Network is a non-profit organization funded by individual donations.

»	LymeNet Flash » Questions and Discussion » Seeking a Doctor » Missouri Lyme Disease Network physician search, STL area a PLUS!

UBBFriend: Email this page to someone!

Author

Topic: Missouri Lyme Disease Network physician search, STL area a PLUS!

Rob M.
Junior Member
Member # 40082

posted

Had severe tick rash in 2009... but "negative" test. I saved the tick, but to my knowledge it was not tested. Have been diagnosed with multiple (?) illnesses since: SIBO, Myositis, Neuralgia, L5 disc herniation, and muscle atrophy. I have chronic muscle/joint pain and severe lethargy.

Now, I am experiencing, headaches, buzzing/popping ears, short term memory loss and of course, depression. [shake]

A referral would be most welcome.

Rob M.

Posts: 4 | From Saint Louis | Registered: Feb 2013 | IP: Logged |

Lymetoo
Moderator
Member # 743

posted

I will send you info. There aren't any LLMDs in STL at this time.

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96223 | From Texas | Registered: Feb 2001 | IP: Logged |

Lymetoo
Moderator
Member # 743

posted

quote:
Originally posted by Rob M.:

Had severe tick rash in 2009... but "negative" test. I saved the tick, but to my knowledge it was not tested.

-
The bullseye rash is diagnostic of Lyme disease; no test needed. An early test would turn up negative anyway, so no point in it.

Do you still have the tick? You could get it tested but it could still come back negative. That happened to me.

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96223 | From Texas | Registered: Feb 2001 | IP: Logged |

Rob M.
Junior Member
Member # 40082

posted

I have attempted to familiarize myself with testing information and I now realize I should have been re-tested; that the anti-bodies may have been too low, correct?

The PA who examined me diagnosed me with tick-born illness and I, if I'm correctly remembering, was given 14 days of doxy, I'd have to check records to be certain.

Anyway, I have no idea what the clinic did with the tick.

Is it advisable to have the testing now?

Rob M

Posts: 4 | From Saint Louis | Registered: Feb 2013 | IP: Logged |

Lymetoo
Moderator
Member # 743

posted

I would suggest the Western Blot by Igenex Lab. The Dr I gave you info about will be happy to test you. You could get a WB thru LabCorp or Quest, but it is likely to come back negative. (Those lab tests are not as sensitive, but worth a try.)

Sadly, you were under treated and now will have to play catch up.

Here is info on the Western Blot and other Lyme info:

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=088555;p=0

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96223 | From Texas | Registered: Feb 2001 | IP: Logged |

hopingandpraying
Frequent Contributor (5K+ posts)
Member # 9256

posted

PM sent.

Posts: 8981 | From Illinois | Registered: May 2006 | IP: Logged |

Keebler
Honored Contributor (25K+ posts)
Member # 12673

posted

-
You do not need a lyme test if you had the rash and symptoms.

Money might be best used for a proper clinical assessment by a LLMD - and maybe for other tick-borne infections tests (if a LL suggests).

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=015508;p=0

Diagnosing Lyme Disease (&/or whatever else is going on)

Other tick-borne infections and other chronic stealth infections - as well as certain conditions that can hold us back - are discussed here.

http://www.anapsid.org/lyme/lymeseroneg.html

Reasons for False Negative (Seronegative) Test Results in Lyme Disease

=============================

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=013239;p=0

What is a LLMD? LL ND? What is ILADS?

WHY you need an ILADS "educated" or "minded" Lyme Literate doctor (whether MD or ND, or both) - starting with assessment / evaluation.

The Lyme Controversy:

http://www.youtube.com/watch?v=PVPRWiukp_M

http://www.youtube.com/watch?v=8yk0C-uX9cU&feature=related

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=3;t=031097;p=0

Topic: NPR (Nebraska) Radio Interview

See listener comments, too. They show us how very wrong of the ID (Infectious Disease) doctor who was interviewed. Very typical, though, and why ID doctors are not the ones who help those with lyme.

Neurologists & rheumatolgists also follow the same umbrella group (IDSA) that ignores lyme and discounts those who have it.

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic&f=1&t=020605#000000

Making the most of your LLMD visit
-

Posts: 48021 | From Tree House | Registered: Jul 2007 | IP: Logged |

Rob M.
Junior Member
Member # 40082

posted

Yes, yes, thank you so much. Reading and viewing info now. I'm most overwhelmed ;>/

Posts: 4 | From Saint Louis | Registered: Feb 2013 | IP: Logged |

Printer-friendly view of this topic

The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA
http://www.lymenet.org/