posted
Anybody have any idea where I can find an excellent LLMD in Texas? I am trying to get tested for mycoplasma & ureaplasma as a possible cause of a chronic fatigue syndrome, UTI, prostatitis, and epididymitis.
Posts: 1 | From Texas | Registered: Apr 2017
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
See this thread on exactly your topic. Read what SickSam and koo had to say:
You can send them a private message for the doc's name if you can't figure it out or want more info. Just click on the envelope icon above their post and write to them privately.
Welcome to LymeNet! We will help you all we can.
Posts: 9931 | From Maryland | Registered: Dec 2007
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You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!
A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.
Read the books written by the top LLMD, Dr. H, titled, "Why Can't I Get Better?" and his new one, "How Can I Get Better?". They are an excellent source of information.
Also read "Cure Unknown" by Pamela Weintraub. Get it at your local library or buy it used on Amazon.
posted
Hi, I have a 7 year old that tested positive for Lyme last October. My pediatrician treated her with 3 antibiotics. However, she's relapsing, sick, and still testing positive. We are near Houston, Texas. I have an appointment at Texas children's pediatric ID doctor tomorrow for her, but in researching I'm seeing I need to see a ILADS Dr. Can one of you please help me? Looking to get my baby healthy again.
-------------------- Christina Posts: 1 | From TX | Registered: May 2017
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You should write a new post instead of adding on to an existing one, because most don't re-read old posts. That way, more people will see it and respond.
Stay away from Infectious Disease Doctors (IDSA). They believe one dose of antibiotics is enough and don't believe in chronic Lyme. Patients end up getting sicker.
Here is a link for you to read about "Two Standards of Care":
University hospitals do not have Lyme-literate doctors on staff. Be careful - sometimes parents have trouble with children's hospitals.
Just because a doctor belongs to ILADS does not make him/her "Lyme-literate". They only refer doctors to people, but don't know anything about them. You need to get names from personal references and by checking the TX Lyme Support Groups I am sending you.
Here are some links for you with good information about Lyme and children:
Btw - I know you are new to Lymenet, but please break up your posts into 2-3 sentence paragraphs, as there are people on Lymenet who cannot read large blocks of text due to neurological problems from Lyme.
To do that, click the pencil/paper icon, make your changes, then click "Edit Post". Thanks.
Posts: 8981 | From Illinois | Registered: May 2006
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
Christina,
I just happened to see your post asking for a doctor for your child. More people will see it and help you if you start your own post. Just go to the top of the screen and hit "Post New Topic." (It has a black oval around it.)
You have VERY few choices with a child this young. There are very few lyme doctors who are good and even fewer children's lyme doctors.
I will send you the name I recommend. (She is the best.) I don't recommend many doctors at all.
Also, don't expect to find anyone in Texas. You want to do the best for your child that you possibly can because this disease is horrible and VERY difficult to get rid of. Only a few docs know enough to get rid of it for a person.
Posts: 9931 | From Maryland | Registered: Dec 2007
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
I am sharing below a large list of Lyme treating health care professionals names and contact info for you to consider.
Narrowing down your choices by contacting their offices and reading their websites in advance may help pick someone more in line with your little ones needs.
Some do take insurance and some charge MUCH less than others and it has nothing to do with their abilities.
If you go to www.MarylandLyme.org and look at the menu to your left you will see "DOCTOR REFERRALS".
Click there to find the names and contact information for health care professionals treating Lyme & TBD's in your state (or any state). You may want to review options in states near-by also.
There is also a page with support group information, one for alternative medical professionals, educational conferences across the country, labs and their contact information, one for mental health providers, MTHFR and Morgellons providers.
There is also a list of TBD with how to diagnose (testing), a list of symptoms for each disease and treatment info with links to the treatment guidelines.
Here is a "Help For You" page that hopefully you can find some cost-saving tips to help you out, if needed.
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
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