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» LymeNet Flash » Questions and Discussion » General Support » PROGRESS AND SUCCESS STORIES

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Author Topic: PROGRESS AND SUCCESS STORIES
Suzy50
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Member # 30466

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I HAVE BEEN READING THE PROGRESS AND SUCCESS STORIES. I WANT TO KNOW IF PEOPLE WITH LATE STAGE/CHRONIC LYME, WITH CNS AND HEART INVOLVEMENT WILL EVER BE BETTER. LOOKS LIKE PROPLE ARE GETTING BETTER, EVEN IF IT TAKES YEARS.
I AM STILL SEARCHING FOR A DOCTOR TO GO TO, IT IS UNFORTUNATE FOR ME THAT I HAVE TO CHOOSE ONE THAT TTAKES INSURANCE. I KNOW THE BEST LLMD'S DON'T.
I LIVE IN UPSTATE NEW YORK, NEAR SYRACUSE. I WOULD LIKE TO HEAR FROM PEOPLE WHAT DOCTORS ARE STICKING WITH THEM, TESTING FOR CO-INFECTIONS AND INTERESTED IN TREATING THEM TO THE END AND DOESN'T GIVE UP ON THEM. I WILL TRAVEL UP TO 6 HOURS TO A DOCTOR. THANK YOU ALL. I DON'T HAVE ANY TIME TO WASTE, I NEED TO FIND THE RIGHT DOCTOR THE FIRST TIME.
Posts: 44 | From New York | Registered: Feb 2011  |  IP: Logged | Report this post to a Moderator
sixgoofykids
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Hi Suzy,

I got completely better from late stage chronic lyme with CNS involvement.

You're lucky you're in NY, there are a lot of good doctors there.

You might want to post in seeking a doctor for a referral.

I know it's hard to type when you're not feeling good, but many here have such bad CNS involvement they can't read posts in all capital letters. [Smile]

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sixgoofykids.blogspot.com
Posts: 13449 | From Ohio | Registered: Feb 2007  |  IP: Logged | Report this post to a Moderator
Lymetoo
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My doctor never gave up on me...but he is a long way from NY.

You CAN get well! I did !

As Sixgoofy said, there are many good drs in NY.

SEEKING A DOCTOR

http://flash.lymenet.org/scripts/ultimatebb.cgi/forum/2?

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--Lymetutu--
Opinions, not medical advice!
Posts: 96223 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
Suzy50
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Thank you very much for your reply. Glad to hear you recovered!!
Posts: 44 | From New York | Registered: Feb 2011  |  IP: Logged | Report this post to a Moderator
steve1906
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Suzy50, have you found a doctor (LLMD)?

Have you posted in seeking a Doctor?

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Everything I say is just my opinion!
Posts: 3529 | From Massachusetts Boston Area | Registered: Jul 2008  |  IP: Logged | Report this post to a Moderator
Suzy50
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Not yet. I need to find one that takes insurance and that is posing a real problem.

There is one 6 hours from me and he sees lyme patients monthly. I am too sick to travel l2 hours plus see a doctor.

I am from Utica, NY, on the Thruway, do you know anyone in my area that takes insurance. The only other doctor I know of is in Morristown, NJ, 4 l/2 hours away. Yes, I have posted.

Thank you.
Posts: 44 | From New York | Registered: Feb 2011  |  IP: Logged | Report this post to a Moderator
momlyme
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Suzy50 - sent you a PM.

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May health be with you!

Toxic mold was suppressing our immune systems, causing extreme pain, brain fog and magnifying symptoms. Four days after moving out, the healing began.
Posts: 2007 | From NY/VT Border | Registered: Aug 2010  |  IP: Logged | Report this post to a Moderator
steve1906
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I hope momlyme has helped you find an LLMD!

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Everything I say is just my opinion!
Posts: 3529 | From Massachusetts Boston Area | Registered: Jul 2008  |  IP: Logged | Report this post to a Moderator
triathletelymie
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up

--------------------
? date of bite/no rash
10/09 symptoms, 4/10 diagnosed, after 6 mos. ER visits, tons of docs/tests
CDC+ 23/39/41/45/58/66/93
currently on oral plaquenil, doryx, rifampin, pyrazinamide, nystatin, numerous supplements
Posts: 718 | From Pennsylvania | Registered: Jun 2010  |  IP: Logged | Report this post to a Moderator
   

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