posted
Thanks to you guys I was sent a list of Doctors in my area and found a Lyme Literate Doctor In Ohio who tested me for Lyme and my test was positive according to Lab and CDC standards! I have now started treatment and am looking forward to getting my life back. This website saved my life! Does anyone know how long it will take to begin to start feeling better after treatment?
-------------------- "YES I AM FAKING IT, FAKING THIS SMILE, FAKING THAT I FEEL GOOD, & FAKING THAT I BELIEVE IN DOCTORS!" Posts: 2 | From Ohio | Registered: Jun 2012
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posted
Good for you for taking action! Hope you will feel better soon - we're all different when it comes to what we're dealing with and how we respond. Just work closely with your doctor and monitor your responses.
And yes, this is a great bunch of volunteers for us all!!! You can always come here to discuss and ask questions.
Posts: 13117 | From San Francisco | Registered: May 2006
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Ann-OH
Frequent Contributor (5K+ posts)
Member # 2020
posted
No one treatment seems to fit all with this crazy disease. It is a good idea to keep a log of what you are taking and how you feel each day. And - call your doctor if you have questions.
Hopefully, you will start to feel better soon, but it is very important to keep on meds until your doctor advises differently.
posted
I hate to tell you this, but most people feel way worse instead of better and that can last a long time. If you have not been ill very long or if you are one of the lucky ones, you will begin to feel better SOON!!
I'm moving this to General Support for you.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Yes, it can take six months to a couple of years, depending upon how long you've had this and the complexity of your case. Still, you are on track to get this addressed, and that's the first step.
If a brand new exposure and early treatment, you may feel better in a couple months but it treatment should continue for at least seven months, according to some LLMDs. Most will want to treat two month past remission, where you feel really good again.
Be sure you have liver support (Milk Thistle, NAC) and adrenal support (Cordyceps, Ashwagandha) on board. Magnesium and Fish oil are very important supports, among others.
Scroll down to Dr. B's Supplement list here - and get Dr. S's book, too, for what else helps.
** Nutritional Supplements in Disseminated Lyme Disease **
J.J. Burrascano, Jr., MD (2008) - Four pages
==============================
It's very important to have this book as a reference tool for self-care and support measures. It answers so many questions in detail that is impossible here on the forum.
(What ILADS is) . . . WHY you need an ILADS-educated, Lyme Literate Doctor - starting with assessment / evaluation. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- In your "Seeking a Doctor" request, you report that you were treated with:
"IV IMMUNO SUPPRESANTS"
Were they steroids? Your LLMD really needs to know exactly what you were given. Now that you have been diagnosed, remember:
steroids can make lyme much worse and should be avoided until a vision or life-threatening emergency and then, only with prior & continued antibiotic therapy specifically guided by an ILADS-educated LLMD.
Since you became ill two years ago and have had some pretty serious complications, IMO, you should expect treatment to last a couple years, at least.
You need to know what to do to manage a herxheimer reaction as they can make you feel worse long before you feel better. Every good LLMD should instruct you in how to manage a "herx" but liver support is the most important foundation to that.
Best of luck. You are on the way, really. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
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