Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
Nothing like buying your allegiance and support.
They should make lobbying illegal in my very humble opinion.
A million dollars plus wouldn't change my view on Lyme, but then wait....
I suffe with it daily as do many people I love and care about.
I wish I lived closer and could participate physically in protests and such.
I agree. Those who went are wonderful beyond words.
Thank you for helping me and others by being our voice when we can't.
God Bless.
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
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shazdancer
Frequent Contributor (1K+ posts)
Member # 1436
posted
Many thanks to those who went to the protest in support of the bill. I know how much it cost, not just in money, but in precious energy, to be there.
-- Shaz
Posts: 1558 | From the Berkshires | Registered: Jul 2001
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posted
Thanks so much to all who went. If I had been feeling even a little better I would have tried to go.
Really, Thank you.
-------------------- "We must be willing to get rid of the life we've planned, so as to have the life that is waiting for us" - e.m. forster Posts: 921 | From PA | Registered: Jan 2004
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Melanie Reber
Frequent Contributor (5K+ posts)
Member # 3707
posted
Is it me? I can't get either link above to work.
The first is an error message and the second takes you to tinyURL with the same link as the first.
Posts: 7052 | From Colorado | Registered: Mar 2003
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posted
Try the above link, but in the upper right,where it says search,type in "Lyme disease", in quotes...Joe
Posts: 249 | From Northern NJ | Registered: Jul 2005
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-------------------- "We must be willing to get rid of the life we've planned, so as to have the life that is waiting for us" - e.m. forster Posts: 921 | From PA | Registered: Jan 2004
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AliG
Frequent Contributor (1K+ posts)
Member # 9734
posted
I just typed Lyme in the search & they came up. Nice Pics!
I'm glad they didn't get one of me when the wind made me hit myself in the head with my sign. LOL
I hope nobody really saw that, but then again, that's Lyme Disease for ya.
Here's another article from the daily record: Daily Record
A HUGE THANK YOU to whoever was responsible for bringing the extra signs.
I had actually thought about making a sign that said:
Couldn't find the supplies Couldn't make a decision Couldn't find the time Couldn't make my sign Why? I HAVE LYME!!!!
I realized that it would have been a SIGN and therefore totally senseless. Perhaps that would have REALLY conveyed the problems we have and why we need the research. Oh well, maybe next time.
Thanks to everyone who couldn't be there but made the calls! It's great to know that we were hitting them from all angles!!!
Ali
-------------------- Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner. Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006
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posted
I was there (only live 1 town over) and I met many amazing people.
Everyone really banded together to get their voices heard.
Pat Smith rocked the house with her speech and encouragement.
Pallone's statement made me want to throw up. Nothing but the same old he has to see both sides of the story, blah, blah.
No police harassment at all.
My mom, dad and husband came with me.
I felt like we started something yesterday. Just a feeling like we are going to break through.
Remember when the Aids patients closed down the Golden Gate Bridge with the Red Wave of them all? I believe that something like that will be in our future.
I was sad to see some in wheelchairs and infusing their meds while protesting. If that can't touch his heart, then he has no heart.
By the way, I was the one in the big peach hat with the big sunglasses. Doxy, you know! Didn't burn with the ton of sunscreen though.
Thanks to everyone that made it.
And to all that couldn't, we carried you all with us in spirit and with your voices being heard.
-------------------- ...~*Just keep swimming, Just keep swimming*~... Posts: 120 | From New Jersey | Registered: May 2006
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bettyg
Unregistered
posted
..
i'm reading that a professional photographer took them and SELLING them!! price is shown on right and then something illegible.
9 photos; very colorful signs. LOVED THE HUGE PALLONE SIGN.
THANKS TO ALL WHO ATTENDED this on behalf of all of us who couldn't and being out of state! We thought of you all all day long praying for your health and safety doing this!
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Beverly
Frequent Contributor (5K+ posts)
Member # 1271
-------------------- "We must be willing to get rid of the life we've planned, so as to have the life that is waiting for us" - e.m. forster Posts: 921 | From PA | Registered: Jan 2004
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cottonbrain
Frequent Contributor (1K+ posts)
Member # 13769
posted
To all who were there: YOU ARE TERRIFIC!!
to all who were too sick to attend but made phone calls (like me):
you are terrific too!
and to everybody who was too sick to either call or attend:
hang in there. we are behind you.
Posts: 1173 | From USA | Registered: Nov 2007
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bettyg
Unregistered
posted
.. KUDOS LYMEDESIGN for the fantastic FULL SCREEN VIDEO/slide show you had! i really enjoyed it; so PROFESSIONAL.
better photos than the professional photos above!
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
I was so proud to be there. There are so many people who are dedicating countless hours of their time, energy and money on behalf of all of us, that to just attend was an honor.
Posts: 263 | From Georgia | Registered: Feb 2006
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posted
I am so happy I was able to go and experience the community of lymies and sharing stories. Proud, you have beautiful children and I am so glad we got to meet.
Everyone has a story to tell, whether we are healtly looking or too ill to stand and need a wheelchair. We are all fighting to get better.
Pat, you did such a wonderful job with your words and passion towards this disease. Ty for all you do for us. It is not easy (I don't know how you still have your hair, I would have pulled it out by now!)
I am newbie at this and have a lot to learn! Should I still keep on calling?
Posts: 101 | From NJ | Registered: Apr 2008
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daise
Unregistered
posted
Yes Kirsten, keep on calling. You are new to Lymeland, huh? Heck of an introduction! Welcome!
Thank you Pat Smith, Tincup and everyone who went to the protest at Pallone's office and had to spend energy to go there, energy that it will take some time to regenerate.
Thank you everyone who's symptoms got a bit stressed that day.
Thank you to everyone who couldn't afford the gas, yet went anyway.
They got one of my son holding his green umbrella and towards the end one of my son and daughter together. to cool.
didnt realize they had one of me going to be on there. I look much more skinny on camera. YIKES!
-------------------- PROUD : )
Dx: Lyme & Bart April 2008. currently on plaquanil, Roxid and Sulfameth. Posts: 89 | From Manalapan, NJ | Registered: Feb 2008
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bettyg
Unregistered
posted
proud,
thanks for the links and 60 photo slide show!! wonderful, effective signs/photos.
if anyone here is involved with that site, it would be nice to have a statement of how many photo slides there are so they have an idea how much time it takes going thru them and knowing WHEN END is coming! lol
i know who pat smith is; who was other woman with bull horn who apparently spoke??
man in suit was a reporter, correct??
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lou4656
Frequent Contributor (1K+ posts)
Member # 10300
posted
How can Frank Pallone look out his front door and see all these beautiful people whose lives have been changed forever by a tick bite and not realize the impact of this bill?
Why is he so afraid to bring this bill to the hill?
Does Pallone have a heart?
-------------------- LouLou Posts: 1276 | From maryland | Registered: Oct 2006
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daise
Unregistered
posted
Hi everyone,
No heart. Pallone is evil. He is scared. He's guilty as s___. He is so nervous that he's proceeding stupidly. Next, he'll pee his pants in public.
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