This is topic POLL.......babesiosis in forum Medical Questions at LymeNet Flash.


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Posted by Lymetoo (Member # 743) on :
 
If you have or had Babesiosis, in which state do you think you contracted it??

Me....Texas

------------------
oops!
Lymetutu

 


Posted by Houston Lyme Pie (Member # 2578) on :
 
bit in Maryland, diagnosed with Babesiosis both clinically and with blood test

(But was that bite my first exposure to babs? mmmmnnn, I wish I knew....)
 


Posted by Neil M Martin (Member # 2357) on :
 
VT
 
Posted by Kira (Member # 2676) on :
 
Can't say for sure I have it, but I respond to the treatment it seems...so if I do have it...got it right here in the suburbs of Chicago, Illinois

Kira
 


Posted by Tincup (Member # 5829) on :
 
Merry Land
 
Posted by erinsmom (Member # 2100) on :
 
Maryland

 
Posted by ShelleyA (Member # 49) on :
 
Michigan
 
Posted by charlie (Member # 25) on :
 
CT
 
Posted by cbb (Member # 788) on :
 
South Carolina
Columbia or Lake Murray (15 miles from Columbia)
 
Posted by troutscout (Member # 3121) on :
 
Gotz myself a gazillion different times I couldz of done been EX-posed here young lady... and Ah couldn't tell ya'll wun way or a tuther.

Trout Scout

(Lived in 5 states...camped in 10...fished in 15...lived in 1 foreign country...3 week trip to another....and, well I'm confused cuz I had so MANY different ticks at so MANY different times.)

------------------
Now is the time in your life to find the "tiger" within.
Let the claws be bared,
and Lyme BEWARE!!!
 


Posted by rosesisland2000 (Member # 2001) on :
 
Who knows, TX, LA, IL, DC, FL, or VI. But, could've been on a vacation, been to all 48 cont. states and Canada and Mexico.

Maybe the trade winds off of Africa brought it to me while I lived in the VI's.
 


Posted by ArtistDi (Member # 2297) on :
 
Have only been treated for Babs clinically,
never tested +. But I am quessing Massachusetts, from either my dog which traveled in our woods, or during vacation at
good ole Cape Cod.
 
Posted by lla2 (Member # 2364) on :
 
Rhode island ...Rhode Island....Rhode Island
 
Posted by HaplyCarlessdave (Member # 413) on :
 
Yes-I got babs in southern New Jersey.

 
Posted by nhmom (Member # 2495) on :
 
Martha's Vineyard, MA
 
Posted by GP (Member # 2318) on :
 

Never diagnosed but very bad herx when I started Quinine. I got it in Missouri.

GP
 


Posted by Theresa (Member # 421) on :
 
Definitely got it in New Jersey (Morris County)
 
Posted by nan (Member # 63) on :
 
Cape Cod, USA!
 
Posted by Kathy Boss (Member # 3062) on :
 
Texas

[This message has been edited by Kathy Boss (edited 07 May 2005).]
 


Posted by Lyma Bean (Member # 1914) on :
 

 
Posted by pab (Member # 904) on :
 
Jake - Minnesota (Western Blot positive)

Jordan - Minnesota (PCR positive)

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Posted by lou (Member # 81) on :
 
California. PCR positive. Blood smear positive. Antibody test positive for WA-1, negative for B. microti.
 
Posted by crappydiem (Member # 888) on :
 
Four in my family.

All eastern MA or perhaps central NH where we vacation
 


Posted by Lymiegirl (Member # 3082) on :
 
Good question; could've been AZ, Western Canada, NJ, or via blood transfusion...don't think I'll ever know for sure. LG
 
Posted by dharmacleaning (Member # 2114) on :
 
Wellfleet, Massachusetts (Cape Cod)
It was horrible.
 
Posted by Lymetoo (Member # 743) on :
 
Oh, dear! That shoots BIG HOLES in the theory you can only get it on or near Nantucket Island! Gee whiz!! DUH!!!!

Good one, Lyma Bean!!

Trout, you're a mess!

OH.....Mass is winning so far....by one. Tied with Texas if you count Rosesisland.
 


Posted by photogurl on :
 
Positive thru FISH test. Middle Tennessee.
 
Posted by georgi (Member # 1622) on :
 
I got it in East Hampton, New York, where they NEVER talk about it! No more gardening for me, this was the second time no matter how careful I was!
 
Posted by cootiegirl (Member # 3216) on :
 
My best guess is right here in New York State (I live upstate, not Long Island).
 
Posted by KJ (Member # 960) on :
 
toddler daughter positive: TEXAS
 
Posted by Rae (Member # 76) on :
 
Oregon

Doing testing this month but symptoms stopped on Mepron but came back. Stopped again on Quinie/Cly.combo
 


Posted by TX Lyme Mom (Member # 3162) on :
 
There are at least 3 different strains of Babesia which are known, so far. B. microti is found in the Northeast. The WA-1 strain is found on the West Coast, and those folks test negative to the ordinary strain found in the NE. Then there's the MO-1 strain found in Missouri, accoring to Dr. Ed Masters.

When I put the question directly to Julie Rawlings at our TDH (Texas Dept of Health) about how good the tests for Babesia were, she gave me an honest, straight-forward answer: "I haven't the foggiest." So my guess is that there's probably quite a lot of UNdetected Babesia in the South, because we have different kinds of ticks down here, you know.

Our LLMD in Houston told us he wasn't finding much Babesia down here in Texas, but since KJ's daughter is positive and she takes her child to the good pediatric doc in CT, then maybe our LLMD hasn't been using the best lab for doing his Babesia tests.

I'm glad you raised this question because now I know that we need to press this point during our next up-coming office visit. I'll bet you a shiny dime to a dollar, your dime, my dollar, that we DO have Babesia down here in TX -- probably big time.

Thanks for posting this poll. It's been illuminating! Light bulbs are starting to pop for me now. Many, many thanks...and...

Warm regards,
TXLM

PS -- Don't tally our daughter's case as a positive, though, for purposes of your poll. So far, the closest test result she has had on Babesia was "equivocal" for previous infection (IgG, not IgM). We didn't know how to interpret that, in light of another negative test for Babesia, but we concluded that perhaps because she had taken lots and lots of artemesia extract, that she had been "cured" -- if she ever did have it at all. We're certainly going to re-test one more time, with a different lab, this time.

[This message has been edited by TX Lyme Mom (edited 08 November 2002).]
 


Posted by FaithHope (Member # 1487) on :
 
Reading, PENNSYLVANIA.. although I lived in Germany for 4 years.. so who knows...
 
Posted by JRWagner (Member # 3229) on :
 
And the winner is: Drum roll please........
Got my Baby Sciosis is SOUTHAMPTON, NY, right near East Hampton, which is where Dr. Burrescano's office is.

Nice huh??? I wonder how many weekenders from the summer have Lyme or one of the other wonderful co-infections and do not know it???

Peace, love and wellness
JRW
 


Posted by Gemini435 (Member # 849) on :
 
Connecticut here! interesting survey.......
 
Posted by lrtbc (Member # 2477) on :
 
I have babesia and I know I got it in upstate western New York.
 
Posted by Pegasa on :
 
Camden County, New Jersey.

Just across the Delaware River from downtown Philly where a rheumatologist at a major teaching hospital told me, "You don't have Lyme disease. We don't have any deer ticks around here."
 


Posted by Lymetoo (Member # 743) on :
 
From TX mom....
I'll bet you a shiny dime to a dollar, your dime, my dollar, that we DO have Babesia down here in TX -- probably big time.

ABSOLUTELY!
BTW, this LLMD uses LabCorp.....a real joke in my opinion.

My babs test was "borderline"....and I herxed terribly!

[This message has been edited by Lymetoo (edited 08 November 2002).]
 


Posted by pini (Member # 1405) on :
 
I contracted it on Long Island, New York the beautiful island of infected ticks.
 
Posted by TX Lyme Mom (Member # 3162) on :
 
LymeToo,
See the separate topic I posted entitled "To: KJ re: Babesia." I think you'll enjoy that discussion and the reply posted by one of Dr. J.'s patients.

Thanks for this poll because it has really opened my eyes up wide for me.

BTW, are you SURE you don't have the MO-1 strain of Babesia which exists there in Missouri? How can you be sure that you were infected with Babesia in Texas and not in Missouri with still a 3rd strain? Just a thought for you to consider. You don't really need to reply, unless you just want to.
 


Posted by rrecorey (Member # 2571) on :
 
I have Babesia symptoms and I tested somewhat positive to B Microti (1:160 titer). However I am certain that I acquired both my Lyme and my Babesia in California. I tested negative to WA-1 but the test through IGENEX only reports positives for WA-1 at titers above 1:640. Even if I had a titer of 1:160 for WA-1 it would not have been reported. I have read there is no cross-reactivity between WA-1 and B Microti but who knows. I would be very interested in hearing from anyone else in California who has tested positive to B Microti but negative to WA-1.
 
Posted by Lymetoo (Member # 743) on :
 
OK....results so far....[I didn't count those who listed several states]

Mass...8
New York...5
Texas....4
New Jersey..3
Maryland...3
Minnesota..2
CT...2
Calif...2

One each for:

Missouri
Vermont
Illinois
Michigan
Tennessee
Oregon
S. Carolina
PA
RI


 


Posted by Lymetoo (Member # 743) on :
 
To TX Lyme Mom....

I don't believe I got it in MO because I've been sick for 43+ yrs and have only lived in MO for the past 6 years. [dxd 2 yrs ago]

And if it makes any difference, until several months ago I hadn't even SEEN a tick for more than 20 years! And ... until this past summer, I'd only seen about 5 mosquitoes here in MO! So...not much chance of infection here thus far from those sources.
 


Posted by ConnieMc (Member # 191) on :
 
NORTH CAROLINA or coastal VA in the Tidewater area.
 
Posted by Lymetoo (Member # 743) on :
 
up for more responses, and especially to save!

------------------
oops!
Lymetutu

 


Posted by wendy (Member # 2646) on :
 
CALIFORNIA!
 
Posted by witchiewoman on :
 
Rhode Island!!!
 
Posted by Lymelight (Member # 3600) on :
 
Maine, MA, Nantucket, and/or the Cape.
 
Posted by mikken (Member # 2276) on :
 
New Jersey! (Well, that's where mom got it, anyway)
 
Posted by Couch Potato (Member # 3713) on :
 
Southern New Jersey
 
Posted by Angelic_Visions (Member # 3708) on :
 
Pennsylvania, USA

[This message has been edited by Angelic_Visions (edited 12 March 2003).]
 


Posted by swissmoeka (Member # 1577) on :
 
Yes I tested positive for babesia and got it in good ole New Hampshire.

Treated with Mepron and Zithromax.
 


Posted by Caryn (Member # 366) on :
 
nantucket island

may also have been reinfected where i live, Yardley , PA.

roger boy niemans was quoted in the newspaper that he has never seen a case of babesia in PA. that was 6 mos after he saw me with full blown lyme and babesia. in my records he goes after the local dr in newtown who no longer treats aggressively because he has been burned by insurence co's and local ducks. goes after Igenex and writes in my records that the only pos lyme test i have is the "scientifically illegitamite" non FDA approved LUAT (which was highly , highly pos). two weeks after that visit i had a pos pcr of my spinal fluid. last yr i was finnallly tested for babs. robustly pos. taunts me that "no dr has ever seen the rash and she has no photos of it " turns out we unwittinglly took photos of it. says the '96 rash that i got on my foot may or may not have been the lyme rash. i had a recurrent rash on my foot at teh time of teh visit and he knew damned well it was a lyme rash. says if i did have lyme, i no longer have an active infection. i was still gravely ill. have several pos pcr's adn pos Igm western blot. and passed this on to my children.

i'm willing to go public with my photos , records and story.
 


Posted by JacobyD (Member # 3615) on :
 
Suburban Richmond, Virginia OR at my parent's home on Clark's Hill Lake, South Carolina (about 30 miles NW of Augusta Georgia on the Savannah River).
 
Posted by TEMCOTOM (Member # 3374) on :
 
Hood River, Oregon

aka Tick Heaven
 


Posted by Schultzmamacat on :
 
MICHIGAN
 
Posted by lobee (Member # 3250) on :
 
upstate NY
 
Posted by Lymetoo (Member # 743) on :
 
up for more!
 
Posted by GiGi (Member # 259) on :
 
Big Island of Hawaii.

I then passed it to my husband.
 


Posted by 3greatkids (Member # 3838) on :
 
Falls Lake,Raleigh,N.C. or Umstead State Park. We do not have Lyme in N.C., leading professor at N.C.State claims.Ha.Like to take him for a hike!
 
Posted by HaplyCarlessdave (Member # 413) on :
 
As I said before, I had babs- contracted in Brigantine, NJ, along with lyme &, ehrlichiosis.
To elaborate--
I was really sick, and had trouble making much headway on the lyme until I had taken atovaquone and artimesia for a few months; after that I was back in the land of the living within 3 months. I wonder if it would have helped to go after the babs first? They said the lyme was much higher density infection, though.
DS
 
Posted by SunRa (Member # 3559) on :
 
most likely CT

but possibly MA or New Mexico
 


Posted by mjbucuk (Member # 843) on :
 
We are not sure where my eldest son got infected... North or South New Jersey or the Pocono Mountains in Pennsylvania
 
Posted by Mo (Member # 2863) on :
 
Upstate NY
 
Posted by mikken (Member # 2276) on :
 
NJ (well, mom did, anyway). God, it's a miracle that we didn't get it as kids with all the time we spent in the woods....
 
Posted by aaronkatie on :
 
Maryland


 


Posted by scoutnc (Member # 4200) on :
 
Raleigh, North Carolina
 
Posted by scoutnc (Member # 4200) on :
 
Raleigh, North Carolina
 
Posted by vicki (Member # 2837) on :
 
Ct.
 
Posted by greg (Member # 1250) on :
 
Even though i live in MD. I believe i got bit in AZ, symptoms started when i lived in Scottsdale AZ
 
Posted by bpeck (Member # 3235) on :
 
Blood transfusion (that's my best guess).
Symptoms appeared ACUTELY in mid winter, 6 weeks after the transfusion.
Barb
 
Posted by bel1268 (Member # 4133) on :
 
Maryland (Charles County)
Stacey
 
Posted by MargaretDC (Member # 4158) on :
 
Connecticut

 
Posted by daystar1952 (Member # 3255) on :
 
Connecticut...Just found out today. Bowen Test says positive for lyme and babesiosis
 
Posted by bd (Member # 3426) on :
 
Most likely Norhtern California or Nevada. I spent weekends hikeing around Lake Tahoe. I remember one tick, a star tick, that was real hard to remove (back in those days I burnt them off - a BIG NO NO). Afterwards I had a rash, some (not doctors, never saw a doctor) called it "Rocky mountain spotted fever". Then I developed dizziness, disorientation, etc.
 
Posted by Caryn (Member # 366) on :
 
infected four times that i know of since '91. definately had babs symptoms after trip to nantucket island in '91. capitol of babesiosis. would be nice if they warned the tourists. may have been reinfected on '93 trip to nantucket. got it again where i live - Yardley, PA - in '96 and '98 where i know we have it. but no way to tell if i was infecteds there too.
 
Posted by KBear on :
 
Long Island, New York
 
Posted by Lymelighter (Member # 5310) on :
 
The deep woods of Maine
 
Posted by Katherine (Member # 2317) on :
 
Maryland

 
Posted by Rene (Member # 4870) on :
 
Maryland
 
Posted by flossie (Member # 3384) on :
 
well, i'm going bit out on a limb here....
but i think i got it .... from my BOYFRIEND. (not sure what state that happened in... )

seriously, we both have WA1, but i've never camped or hiked in the West. i grew up on the east coast, midwest, eastern canada & hawaii, never went to CA or western US. but he grew up in CA, has camped there extensively, had several tickbites there and in midwest...

i did go to grad school in san diego, but was a beach type, not a camper. never saw a tick.

an LLMD told me there is animal research (on horses) where babesia is transmitted via semen.

flossie


 


Posted by dan1ruth (Member # 5237) on :
 
Mexico or North Carolina
 
Posted by solsearcher (Member # 4482) on :
 
Missouri
(It's pronounced Misery if you have Lyme Disease.)
 
Posted by once bitten on :
 
NC and also maybe 2nd dose (just to make sure, those little tix are thorough) in FL
 
Posted by Jandy (Member # 1771) on :
 
Washington State.

Positive for Babesia Microti through Igenex IFA and MDL Western Blot. Negative for WA-1.
 


Posted by Lymiedad on :
 
PA
 
Posted by Lymetoo (Member # 743) on :
 
up for jellybelly
 
Posted by desiree (Member # 7226) on :
 
I got babesia WA1 in San Diego, California.
 
Posted by Walnut (Member # 6585) on :
 
Am positive for both WA1 and microti.

I got WA1 in Montana

and Microti anywhere ????
 


Posted by zing (Member # 7124) on :
 
South Central Pa
 
Posted by Lymeblue (Member # 6897) on :
 
Got bitten in Florida
Positive for babesia.
Huge herxes when on mepron
 
Posted by valymemom (Member # 7076) on :
 
Central PA or Northern VA......nighttime paintball matches in wooded areas of both - thruout the summer - before symptoms
 
Posted by cmichaelo (Member # 5873) on :
 
NY, May 2004.

Never tested positive but respond to treatment.

Michael
 


Posted by JavaBeing (Member # 6321) on :
 
My first guess is Western Oregon ...though I had just returned from Austrailia when I started getting symptoms a month later.
 
Posted by janet thomas (Member # 7122) on :
 
Eastern Pa
 
Posted by duramater (Member # 6480) on :
 
Morris Co. NJ
 
Posted by burnbitter (Member # 7088) on :
 
Not sure when I got it. tested positive for B. microti
I've lived in CA (northern and southern) most of my adult life and used to go hiking a lot. But potentially have been exposed to the great outdoors in:
Hawaii, MT, KS, OR, and Coba, Mexico.
 
Posted by electric (Member # 6572) on :
 
either northern cali, or wisconsin

electric
 


Posted by HEATHERKISS (Member # 6789) on :
 
South Jersey
 
Posted by tickitout (Member # 6982) on :
 
Either Pa. or N.J.
 
Posted by tickitout (Member # 6982) on :
 
Either PA. or NJ
 
Posted by Corgilla (Member # 4066) on :
 
SE PA, Coastal NJ, North Fork of Long Island, NY or panhandle of FL.

 
Posted by pippy (Member # 6005) on :
 
Northern California
 
Posted by daniella (Member # 6753) on :
 
NJ
 
Posted by sweet pea (Member # 6495) on :
 
western MA or southern VT

 
Posted by daystar1952 (Member # 3255) on :
 
I must have gotten it in CT where I live
 
Posted by trailsgrl (Member # 7285) on :
 
South Eastern PA Delaware County
 
Posted by Lymied (Member # 6704) on :
 
Probably Groton, MA or Nantucket - but I did not get severly ill until last May when moving to NC - my husband is ill too and my dog has a condition that one doctor in the world has equated to Babesia -

I grew up in Maryland - so who knows...

Probably Nantucket...
 


Posted by StinkBug (Member # 5191) on :
 
British Columbia or Oregon
Probably the babs is from my home with confirmed bite in 2003.
BTW, My IgeneX results only say B. microti 1:20 titer (IgG&IgM) but not the strain - i.e. WA1)


 


Posted by birdbuddy (Member # 7246) on :
 
Nevada County, California
 
Posted by trueblue (Member # 7348) on :
 
NY state(a few hours north of NYC)
 


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