posted
Can't say for sure I have it, but I respond to the treatment it seems...so if I do have it...got it right here in the suburbs of Chicago, Illinois
Kira
Posts: 802 | From Chicago suburbs, Illinois | Registered: Jun 2002
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Merry Land
Posts: 20353 | From The Moon | Registered: Jun 2004
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posted
South Carolina Columbia or Lake Murray (15 miles from Columbia)
Posts: 4638 | From South Carolina | Registered: Mar 2001
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troutscout
Frequent Contributor (5K+ posts)
Member # 3121
posted
Gotz myself a gazillion different times I couldz of done been EX-posed here young lady... and Ah couldn't tell ya'll wun way or a tuther.
Trout Scout
(Lived in 5 states...camped in 10...fished in 15...lived in 1 foreign country...3 week trip to another....and, well I'm confused cuz I had so MANY different ticks at so MANY different times.)
------------------ Now is the time in your life to find the "tiger" within. Let the claws be bared, and Lyme BEWARE!!!
Posts: 5262 | From North East Iowa | Registered: Sep 2002
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rosesisland2000
Frequent Contributor (5K+ posts)
Member # 2001
posted
Who knows, TX, LA, IL, DC, FL, or VI. But, could've been on a vacation, been to all 48 cont. states and Canada and Mexico.
Maybe the trade winds off of Africa brought it to me while I lived in the VI's.
ArtistDi
Frequent Contributor (1K+ posts)
Member # 2297
posted
Have only been treated for Babs clinically, never tested +. But I am quessing Massachusetts, from either my dog which traveled in our woods, or during vacation at good ole Cape Cod.
Posts: 1567 | From Hatfield, MA, USA | Registered: Mar 2002
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lla2
Frequent Contributor (1K+ posts)
Member # 2364
posted
Rhode island ...Rhode Island....Rhode Island
Posts: 4713 | From saunderstown, ri Usa | Registered: Apr 2002
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posted
California. PCR positive. Blood smear positive. Antibody test positive for WA-1, negative for B. microti.
Posts: 8430 | From Not available | Registered: Oct 2000
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posted
Good question; could've been AZ, Western Canada, NJ, or via blood transfusion...don't think I'll ever know for sure. LG
Posts: 396 | Registered: Sep 2002
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posted
I got it in East Hampton, New York, where they NEVER talk about it! No more gardening for me, this was the second time no matter how careful I was!
Posts: 65 | From Verona, nj, us | Registered: Sep 2001
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cootiegirl
Frequent Contributor (1K+ posts)
Member # 3216
posted
My best guess is right here in New York State (I live upstate, not Long Island).
Posts: 1728 | From New York State | Registered: Oct 2002
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Doing testing this month but symptoms stopped on Mepron but came back. Stopped again on Quinie/Cly.combo
Posts: 32 | From Portland, Oregon | Registered: Oct 2000
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TX Lyme Mom
Frequent Contributor (1K+ posts)
Member # 3162
posted
There are at least 3 different strains of Babesia which are known, so far. B. microti is found in the Northeast. The WA-1 strain is found on the West Coast, and those folks test negative to the ordinary strain found in the NE. Then there's the MO-1 strain found in Missouri, accoring to Dr. Ed Masters.
When I put the question directly to Julie Rawlings at our TDH (Texas Dept of Health) about how good the tests for Babesia were, she gave me an honest, straight-forward answer: "I haven't the foggiest." So my guess is that there's probably quite a lot of UNdetected Babesia in the South, because we have different kinds of ticks down here, you know.
Our LLMD in Houston told us he wasn't finding much Babesia down here in Texas, but since KJ's daughter is positive and she takes her child to the good pediatric doc in CT, then maybe our LLMD hasn't been using the best lab for doing his Babesia tests.
I'm glad you raised this question because now I know that we need to press this point during our next up-coming office visit. I'll bet you a shiny dime to a dollar, your dime, my dollar, that we DO have Babesia down here in TX -- probably big time.
Thanks for posting this poll. It's been illuminating! Light bulbs are starting to pop for me now. Many, many thanks...and...
Warm regards, TXLM
PS -- Don't tally our daughter's case as a positive, though, for purposes of your poll. So far, the closest test result she has had on Babesia was "equivocal" for previous infection (IgG, not IgM). We didn't know how to interpret that, in light of another negative test for Babesia, but we concluded that perhaps because she had taken lots and lots of artemesia extract, that she had been "cured" -- if she ever did have it at all. We're certainly going to re-test one more time, with a different lab, this time.
[This message has been edited by TX Lyme Mom (edited 08 November 2002).]
posted
Reading, PENNSYLVANIA.. although I lived in Germany for 4 years.. so who knows...
Posts: 802 | From Reading, PA, USA | Registered: Aug 2001
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JRWagner
Frequent Contributor (1K+ posts)
Member # 3229
posted
And the winner is: Drum roll please........ Got my Baby Sciosis is SOUTHAMPTON, NY, right near East Hampton, which is where Dr. Burrescano's office is.
Nice huh??? I wonder how many weekenders from the summer have Lyme or one of the other wonderful co-infections and do not know it???
posted
I have babesia and I know I got it in upstate western New York.
Posts: 90 | From NC USA | Registered: May 2002
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Pegasa
Unregistered
posted
Camden County, New Jersey.
Just across the Delaware River from downtown Philly where a rheumatologist at a major teaching hospital told me, "You don't have Lyme disease. We don't have any deer ticks around here."
posted
I contracted it on Long Island, New York the beautiful island of infected ticks.
Posts: 260 | From Long Island, New York | Registered: Jul 2001
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TX Lyme Mom
Frequent Contributor (1K+ posts)
Member # 3162
posted
LymeToo, See the separate topic I posted entitled "To: KJ re: Babesia." I think you'll enjoy that discussion and the reply posted by one of Dr. J.'s patients.
Thanks for this poll because it has really opened my eyes up wide for me.
BTW, are you SURE you don't have the MO-1 strain of Babesia which exists there in Missouri? How can you be sure that you were infected with Babesia in Texas and not in Missouri with still a 3rd strain? Just a thought for you to consider. You don't really need to reply, unless you just want to.
posted
I have Babesia symptoms and I tested somewhat positive to B Microti (1:160 titer). However I am certain that I acquired both my Lyme and my Babesia in California. I tested negative to WA-1 but the test through IGENEX only reports positives for WA-1 at titers above 1:640. Even if I had a titer of 1:160 for WA-1 it would not have been reported. I have read there is no cross-reactivity between WA-1 and B Microti but who knows. I would be very interested in hearing from anyone else in California who has tested positive to B Microti but negative to WA-1.
Posts: 13 | From stafford, virginia, usa | Registered: May 2002
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I don't believe I got it in MO because I've been sick for 43+ yrs and have only lived in MO for the past 6 years. [dxd 2 yrs ago]
And if it makes any difference, until several months ago I hadn't even SEEN a tick for more than 20 years! And ... until this past summer, I'd only seen about 5 mosquitoes here in MO! So...not much chance of infection here thus far from those sources.
Caryn
Frequent Contributor (1K+ posts)
Member # 366
posted
nantucket island
may also have been reinfected where i live, Yardley , PA.
roger boy niemans was quoted in the newspaper that he has never seen a case of babesia in PA. that was 6 mos after he saw me with full blown lyme and babesia. in my records he goes after the local dr in newtown who no longer treats aggressively because he has been burned by insurence co's and local ducks. goes after Igenex and writes in my records that the only pos lyme test i have is the "scientifically illegitamite" non FDA approved LUAT (which was highly , highly pos). two weeks after that visit i had a pos pcr of my spinal fluid. last yr i was finnallly tested for babs. robustly pos. taunts me that "no dr has ever seen the rash and she has no photos of it " turns out we unwittinglly took photos of it. says the '96 rash that i got on my foot may or may not have been the lyme rash. i had a recurrent rash on my foot at teh time of teh visit and he knew damned well it was a lyme rash. says if i did have lyme, i no longer have an active infection. i was still gravely ill. have several pos pcr's adn pos Igm western blot. and passed this on to my children.
i'm willing to go public with my photos , records and story.
posted
Suburban Richmond, Virginia OR at my parent's home on Clark's Hill Lake, South Carolina (about 30 miles NW of Augusta Georgia on the Savannah River).
Posts: 28 | From Richmond, VA USA | Registered: Feb 2003
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posted
up for more!
Posts: 96222 | From Texas | Registered: Feb 2001
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GiGi
Frequent Contributor (5K+ posts)
Member # 259
posted
Big Island of Hawaii.
I then passed it to my husband.
Posts: 9834 | From Washington State | Registered: Oct 2000
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3greatkids
Frequent Contributor (1K+ posts)
Member # 3838
posted
Falls Lake,Raleigh,N.C. or Umstead State Park. We do not have Lyme in N.C., leading professor at N.C.State claims.Ha.Like to take him for a hike!
Posts: 1076 | Registered: Apr 2003
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posted
As I said before, I had babs- contracted in Brigantine, NJ, along with lyme &, ehrlichiosis. To elaborate-- I was really sick, and had trouble making much headway on the lyme until I had taken atovaquone and artimesia for a few months; after that I was back in the land of the living within 3 months. I wonder if it would have helped to go after the babs first? They said the lyme was much higher density infection, though. DS
Posts: 4567 | From ithaca, NY, usa | Registered: Nov 2000
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SunRa
Frequent Contributor (1K+ posts)
Member # 3559
posted
We are not sure where my eldest son got infected... North or South New Jersey or the Pocono Mountains in Pennsylvania
Posts: 758 | From now TX | Registered: Mar 2001
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posted
NJ (well, mom did, anyway). God, it's a miracle that we didn't get it as kids with all the time we spent in the woods....
Posts: 369 | From Ohio | Registered: Mar 2002
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posted
Even though i live in MD. I believe i got bit in AZ, symptoms started when i lived in Scottsdale AZ
Posts: 740 | From frederick,md,usa | Registered: Jun 2001
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bpeck
Frequent Contributor (1K+ posts)
Member # 3235
posted
Blood transfusion (that's my best guess). Symptoms appeared ACUTELY in mid winter, 6 weeks after the transfusion. Barb
Posts: 1875 | From VT | Registered: Oct 2002
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posted
Most likely Norhtern California or Nevada. I spent weekends hikeing around Lake Tahoe. I remember one tick, a star tick, that was real hard to remove (back in those days I burnt them off - a BIG NO NO). Afterwards I had a rash, some (not doctors, never saw a doctor) called it "Rocky mountain spotted fever". Then I developed dizziness, disorientation, etc.
Posts: 505 | From Western NY | Registered: Dec 2002
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