We're bleeding financially, all of us beaten down (and winning the Ironic Award, in trying to find out what was making her sick I took her to the east coast for help and I was bitten and infected), and deeply concerned about the long-time use of abx on the immune system of a young person.
Through an almost mystical coincidence, I was put in touch with a local man who used to be a rocket scientist at Rocketdyne. He got interested in health when at 83 his mother became ill. He figured out that oxygen kills pathogens, and so (I am not kidding here) he built her a hyperbaric tank.
He also figured out other ways of oxygenating the body at less expense and trouble, so that is what we are doing, and I wouldn't be posting here if it wasn't close to a miracle at this point. I am doing it as well, and the results are incredible: I'm off the abx, and I feel great. Our daughter is still on the abx and doing incredible. Her life is coming back. It makes me cry to even type it here.
So here's what it is -- ozone therapy.
Ozone is unstable oxygen, O3. It's more therapeutic than O2, if you can get it. But you don't want to breathe it as it damages lung tissue, and that's why it's a problem in air quality. But you can get it through your skin.
The rocket scientist had me get 3 pieces of equipment: a steam sauna tent, an oxygen concentrator, and an ozone generator. All of these items are available on ebay, new or used, and you can get all three of them for 600-1200, depending. For what this does, it is NOTHING in terms of cost.
You set it up this way: the steam sauna tent is a modern version of the old hard-shell steam cabinets where your neck and head stick out. You zip yourself in and the steampot on the outside pumps steam in, and you cook. This on it's own is good-- hypothermia kills bugs. I have ours outside our bedroom, and we get a breeze sometimes (or I point an electric fan in the direction of the steamer's head).
Then, in the bedroom, the oxygen contentrator lives with the ozone generator (which is smaller) sitting on top of it. The output of the concentrator (which is pure oxygen) is fed through a plastic tube into the slightly modified ozone generator (anybody can do it). Now the ozone generator is making it's ozone not from ambient air, but from pure oxygen. The little machine that would have made poor quality O3 is now producing *medical grade ozone*.
With another plastic hose, you feed the ozone from the ozone maker into the tent (we just cut a tiny slit in the tent).
Now you have something really powerful.
You steam, heat up the body, sweat and release toxins and waste, and your open pores suck in the O3. Remember, you are not breathing it. You stuff a towel around the neck opening as a seal.
Michael told me that if our daughter did this every day (no more than a half an hour each day), she'd feel soooo much better in two weeks. He guaranteed it. Not only that, he said it would help her acne. That was all I needed to say in order to have her WANT to steam everyday. And up to that point, nothing at all was making her feel better, so we were excited to give it a try.
We liked the idea of it being a non-drug therapy. And in the big scheme of things, the worst case of losing $635 was nothing. I've got drawers full of meds we've paid for that are useless to us, and I wouldn't want to know what we paid for them. Probably the equivalent a nice cruise trip for three. (Which would have done more good.)
It took about a week for the results to begin to show up. The first sign was that she called one of the friends who hasn't been around and arranged to go to a movie with him. Hmm.
Then, sudden attention to appearance showed up. I came home from an errand to find her wearing a short skirt and high heels while doing homework at the computer. (When the high heels come out, all us girlfriends know someone's feeling better.) The nausea disappeared. The headache softened a little. Energy went up. Dancing and loud music ensued. Interest in "getting in shape" appeared. Sleep got deeper and more refreshing. And yes, as promised, the acne is better! Who knew.
It's been nearly 4 weeks now, and she is a different person. Joy is on the map. Pleasure in life is possible. Excitement is no longer a stranger. Yesterday she jogged/walked a mile in the morning, and a mile in the afternoon. Four weeks ago this young woman could only triangulate from the bedroom -- bathroom -- couch. She could only do homework in small doses because she couldn't concentrate. Now she has created a schedule of what she's going to do everyday to catch up so that **when she goes back to school in September** she'll be caught up. And she's sticking to it. Sometimes in high heels.
As for me, my symptoms are waaaaayy down, I feel so much better, and the very best thing of all: I sleep like a baby. I haven't slept through the night in years, and I just resigned myself to it. But the FIRST TIME I did the ozone therapy, I slept unbeliveably well that night, and it's been that way ever since. I'd do the steaming everyday just for that even if that was all I got out of it.
Now, is this a cure??? No.
What Michael thinks is that once infected, unless you get on the abx right away and really whack it, you may not ever fully get rid of it. However, he thinks that you CAN drive it into its cystic state, and live life just fine. And when it does come out of it's cystic state, and finds itself in a hostile environment (an oxygenated and alkaline body), it cannot survive. Frankly, I'll take it.
But to bring about a cure or something closer to it, he says that rife and blood electrification works. Now, remember this is a scientist speaking, and he's researched rife and even built rife machines (including one that fits in an attache case). He's lending us a rife machine and we'll be adding that to the steam regimen. We're getting a blood electrification unit from him too. Stay tuned.
I just had to post this because I can't keep it to myself. Frankly, our lives have (as my daughter would say) "sucked" the last two years. There has been no let-up. We'ven been in a constant state of crisis or anticipated crisis. I highly recommend considering ozone therapy -- cheap, and an easy commute. If nothing else, you'll sleep better at night.
Bev Feldman
If you want to contact me, best to email me at [email protected]
I have wondered what to add to my Rife lately....besides the minocycline.
Trout
Sent you an e-mail
------------------
Now is the time in your life to find the "tiger" within.
Let the claws be bared,
and Lyme BEWARE!!!
Iowa Lyme Disease Assoc.
www.ildf.info
I have sent an email. lymemomtooo
I had thought about buying such a sauna myself and I own a rife machine, already. And I don't want to swallow abx all my life. This really sounds like an alternative.
I will check right now if I can get the oxygen concentrator and the ozone generator here.
Gabrielle
You need to be careful about the ozone generator... don't get one without getting some information from Michael about which kind to get, and the modification you have to make to it (basically, you have to modify it to accept the input of the oxygen generator rather than sucking in ambient air). I can put you in touch with him.
You can also use oxygen from a tank. We can't here in the states because oxygen is a DRUG (?) needing a prescription from a doctor. But I think that's not the case in Europe.
The tent has a footprint of about 2 1/2 by 3 feet. You could do it in a kitchen (space permitting) as well. Or a porch or balcony or deck. I put a little TV tray next to it with a water bottle, timer, and thermometer on it.
Radio Shack has a $15 indoor/outdoor thermometer. You just dangle the probe into the sauna while it's heating, place a towel over the neckhole and you can see if it's ready for you by the thermometer, and also what temp you're at while you are steaming.
Gives you something to do in there.
Music is great -- musicals you can sing along with are fun. Also, have your friends come over and visit.... steam them up.
A doctor lives next door, and I finally told her what we're doing, and her eyes widened, and the scientific gears were set to grinding. I thought, uh oh, I'm going to hear about it, and then she said, "That's awesome! You're doing all this at HOME? Can I try it?" So we put her in and she loved it. Now she WANTS it anytime she can get it-- reports that she sleeps better than ever.
Also, remember, no romantic candles or open flames of any kind. Oxygen is explosive. So no gas flame heater in the bathroom. And in the kitchen, don't have the gas flame stove going when the ozone is. Don't smoke in the tent -- don't smoke anyway, but if you do, I'll meet your maker faster than you ever intended.
Bev
~ Amanda
Just did a search through posts and found in Medical forum, 74 topic posts where Ozone has been discussed greatly.
If you do not know how to do a search, here's how:
http://flash.lymenet.org/ubb/Forum5/HTML/000464.html
Thanks for posting a positive post where there was actually a good response to the therapy that you are doing. That is what support is all about, the sharing of information.
Best to you both,
Rosemary
The ozone generator can be purchased from www.sotainstruments.com. It's around $260-75, something like that. It does have to be modified... the little aquarium pump on the inside has to be disabled (cut a wire), and the input that it was feeding needs to be replaced with your new tubing, long enough to go out of the case and back to your oxygen concentrator (2 feet?). Then you need to poke a hole in the casing big enough to thread the tubing through so you can close the case. It's really easy. Even a Lymie can do it.
The ozone maker has an output spigot, and you run tubing from that to your steam tent. Slit a little hole in the tent if you have to.
Set the oxygen output from the concentrator to the smallest output. If you are pushing a lot of oxgen through, then you are diluting the ozone. You just need enough to carry the ozone into the tent.
Here's the a good example of a steam tent to get... It's a good price, and the steam pot looks good. The "bad example" steam pot in the picture is the one I have, and I wish it had more capacity. I think the headpiece of the tent is removable. I don't like the idea of it very much. I get a fan and point it towards my head... helps me stay in there longer.
The search term I use on eBay is "steam sauna." http://cgi.ebay.com/ws/eBayISAPI.dll?ViewItem&category=42240&item=4316809119&rd=1 $99 is a good deal.
You may want to wrap or clip a blanket around it for more insulation and to get the temp up higher. That's fine tuning that comes later.
And here's an oxygen concentrator that's similar to mine... http://cgi.ebay.com/ws/eBayISAPI.dll?ViewItem&category=34070&item=4916312958&rd=1
You can't buy oxygen concentrators new. (Remember, oxygen is a DRUG!) But you can buy them used (go figure). This one is typical. It does not have to be expensive. They have to say they are for hobbyists, etc. Remember, you are not breathing the oxygen or the ozone.
orion
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oops!
Lymetutu
But I'm glad you found something that worked for you.
Can you drill a hole, or know someone who could do it for you?
Can you cut a piece of wire with scissors?
If you can do these things, then this is no harder. It might be a challenge if you're not mechanically inclined, but it's not hard. Let me know if there is any way I can assist you.
Bev
I have responded to IV h2o2 but the ongoing cost and the damage to veins, etc concerns me!
This seems like a fantastic way to get the benefits of ozone therapy without the cost.
It does not seem that hard to figure out. And I have the perfect place on my back deck
to put the contraption!
I looked at your links! The George Jetson look is fashionable again! THIS ROCKS!
I am a little afraid of blowing my deck off my house (200 feet to the canyon below!) But my pyro husband can't wait to get his hands on this! We'll let you know how it goes.
The ozone generator company you bought from says they are back ordered until october, so we'll wait till then to try it.
Thanks for the idea!
Pippy (also in Tickafornia)
I do have a question. Does it change the blood pressure of the person with all that heat temporarily?
In getting out of a hot tub, I know blood pressure goes down, so I wondered.
So happy for you and your daughter.
lifeline
Great post!
dq
The oxygen won't be a risk, but the heat, I suppose, could be. You might try going to a sauna at a gym or the Y... it's not the same, because in the steam tent your head is sticking out and that keeps you cooler, but the sauna is a close approximation.
Bev
-greg
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Ti those of you who think that abx are THE only answer...you are wrong.
I haven't met one person who has long term Lyme...that beat it with abx only.
Trout
They are in Canada, and its 51 USD. Its pumpless, so you just connect one tube in (from the oxygen bottle or oxygen generator) and one into the sauna. I have bought one. Im technical, but i dont understand the relative merits of different types of ozone generation - i.e. what makes one a 275 USD ozone maker, and another a 51 USD ozone maker.. but the mg/hour seems to be the only value that is relevant (apart from maybe the amount of Nitrogen dioxide created? - not sure if this is important in a sauna tho).
Anyway, ill let you know how it goes!
Angus
Good for you for putting something together. The $275 model isn't available at this time anyways.
I already had an oxygen concentrator, so I had to buy an ozone generator and the steam tent. Here's where I got my $169 generator
from: http://www.ozonepure.com/stores/showdetl.cfm?&DID=10&ObjectGroup_ID=5&Product_ID=43&CatID=4
The setup is working just fine and the steam tent gets very hot. I can't handle more than 25 minutes so far. I'm reserving from reporting any progress yet because I've only had 4 treatments. So far I have had no bad reactions and over time I will be able to tell if the good things that seem to be happening are due to the ozone. The sweating from this treatment is beneficial in itself and I think the ozone is packing quite the punch. We'll see. Bev and her daughter noticed big improvements in their first month. I recommend starting off slowly. Your body will smell like ozone, so rinse off after the treatment. Don't use soap because your skin pores will be open after the sauna. If you use an oxygen concentrator, you want to make sure it is putting out oxygen at less than 0.5 Liters per minute. The lower, the better and more concentrated the ozone will be. Also, make sure the space between your neck and neckhole is snug with a wrapped towel or something or else you will be smelling a lot of ozone and the heat can escape. There are zippers that you can open for your arms to be outside of the tent, but I keep the zippers closed and have my arms inside to keep the heat and ozone inside. Bev helped me find the tent on Ebay. I purchased the one at this link because it comes with a chair, a good steamer, and delivery is really quick: http://cgi.ebay.com/ws/eBayISAPI.dll?ViewItem&category=42240&item=4318573626&rd=1
I've been off of abx for over 2 months now and I hope to stay off of them if possible.
Tomorrow we are going to Hawaii for a week of Ayurvedic detox recommended by our LLMD. He thinks it will help her headache. When he recommended it a couple of months ago, her headache was at a seven and we didn't know about ozone therapy.
I inquired about the headache an hour ago, and she reported a three. It's been like that for several weeks.
This has given us our daughter back.
It is not lost on us that we are going to be in Hawaii. It's just the two of us girls, and we are sooo excited. Like so many people on this board, we have been through years of hell, so we are going to turn this detox thing into a VACATION (yeesssss!!!) and have a really really good time.
She completed her schoolwork today, finishing up 10th grade. This is a big win for her!
I indulged her in a haircut and a bikini wax (ok, probably too much information) this afternoon. A girl's got to look good while trolling on the beaches of Hawaii, you know.
Until we got into the ozone, she didn't feel well enough to care about her appearance, which is not any 15 year old girl's non-Lyme state of being.
We really didn't think she'd be able to go to school this September, but right now, it's all green lights instead of Lyme lights.
Today she's officially an 11th grader and will have a little more than a week of "freedom" before her Junior year begins. We will do our best to make the week a great one.
Every Lyme kid is a hero.
orion
ive had lyme for 6 years, disabled for 3, im 20 now. anyone with chronic lyme is a hero.
thanks again
Every lyme kid is a hero, BUT...
So are the lyme kids parents.
YOU are a hero too, so dont ever forget that.
She is lucky to have you for a Mother.
Trish
quote:
Originally posted by Kookie:
WOW - this is so interesting to me because I have noticed that I feel SOOOO GOOOOOD RIGHT before a downpour of rain, and I mean RIGHT beforehand, I get this sudden clarity and energy. My husband said that it's probably due to the extra ozone in the air at that time! Has anyone else experienced this? That alone makes me interested in the machine.
Kookie
Kookie, Me too!! I've read it's caused by all the negatively-charged ions generated by the lightning. Positive charges increase bodily tension, makes your hair stand up. Conversely, negative charges(like air ionizers/purifiers) come from ozone. They calm us, and weigh down allergens/pollutants in the air, so they can be vacuumed/mopped up more completely.
Kathy
FYI, my daughter is still doing great.
Life is back to normal.
We're back to sex, drugs, rock and roll, and that's an upstat to us.
orion
- JB
trout
------------------
Now is the time in your life to find the "tiger" within.
Let the claws be bared,
and Lyme BEWARE!!!
Iowa Lyme Disease Assoc.
www.ildf.info
This sounds really very exciting. I'm so happy to hear about your daughter's wonderful progress, and my most sincere wishes for her continued recovery.
I was wondering if this ozone therapy would be effective against coinfections as well, such as babesia and bartonella?
I was also wondering, if you were to use a cyst buster while using the ozone sauna, if it would prevent the lyme from forming cysts to hide and protect itself, and allow it to be killed by the ozone? Would you absorb sufficient ozone in the sauna to be bactericidal?
Could this bring about a cure?
Would you or Michael know, or do you have any ideas about this?
Thank you in advance for your reply!
Now, in regards to my daughter, now 16, I think of management, which we are doing wonderfully, but I ALSO think in terms of a cure for her too. She's got her life ahead. I want her more than managed, I want her cured.
So we are using rife, a Scenar device, and the ozone steam therapy.
I think these keet so-and-so's have a kind of survival intelligence that is incredibly efficient, and that you need to whack them from different places at different times with different things when they come out to torment you.
The ozone appears to be good for Bart, as my daughter has that too. I don't know if I have any coinfections. I suspect not, but I haven't been tested for them since I've basically gone into an almost non-symptomatic state.
I met a NIH researcher who got her PhD in LYME RESEARCH and she said that at Rocky Mountain they can't grow borrelia in an oxygenated environment like they do other bacteria. They have to grow it in an oxygen-DEPRIVED environment or else it dies!
There's a big clue in there.
So for me, that information tells me that being more oxygenated, whether it's by exercise, HBOT, ozone, ozonated water, or whatever, is going to inflict casualties on the little @#$%@!'s.
orion
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------------------
Now is the time in your life to find the "tiger" within.
Let the claws be bared,
and Lyme BEWARE!!!
Iowa Lyme Disease Assoc.
www.ildf.info
You know, if you want to actually SEE what this is doing... If you buy a good darkfield microscope you can see most of the pathogens quite clearly in a drop of live unstained blood.
(Check eBay, you get lucky once in awhile. It doesn't have to cost alot.)
Despite what everybody says they are often quite plentiful. One of the co-infections is so plentiful it looks like a snowstorm sometimes. (Bartonella? Mycoplasma? Something unidentified?) Having them be less plentiful would indicate the treatment is having success.
Some more 'low tech rocket science'! :-)
orion
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I was able to buy the steam tent thru ebay and was so pleased with myself for the triumph. The stupids are the hardest thing to deal with.
I would also like to know which one....you say is only $43
Sorry I missed your phone call...lets try to get ahold of each other this weekend.
Trout
This is the ozone generator. It is the one without a pump in it. You don't want/need a pump because the oxygen coming from either a tank or a concentrator will have pressure and push itself through the tubing and into the ozone maker and then into the steam tent.
Great price on these.
orion
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It's a little early to say how much I've improved from ozone alone but I just finished my first week of work in 4 months. I do know I look forward to this treatment because it is so relaxing and the sweating is great for detox.
I like to combine treatments. Currently I'm doing rife once a week, salt/c and an ozone sauna every evening and twice a day on the weekends. Sometimes my herxes are pretty tough but the sauna has definitely helped me in that area also.
This is very easy to set up thanks to Bev's help and if you guys can't get a hold of her, email me privately and I'll help ya out.
The only way we are going to beat this is together.
The enaly ozone generators that I bought work very well. You do have to place your order two times on the web site because it would only allow me to order one at a time. Just enter in the remarks to ship them together.
Also they are silent machines. I didn't know this and thought that I received two bad ones and was ready to ship them back but when you add oxygen you will know they work.
All My Best,
Scott
P.S.
I also added the services of a Natural Health Practioner who is guiding me in the right direction as far as supplementation and this has also been a big help.
[This message has been edited by secondtimearound (edited 27 August 2005).]
I am ignorant so will ask: Can you be on abx while using this?
This could benefit my whole family. One has chronic lyme - my other son and I just diagnosed with lyme/co-infections and I suspect my hubby has had it for years. ( Won't test 'cause he needs to continue to work for us). Think it could really help him but what about us on abx?
My feeling is that you have to whack this sucker from more than one modality. Hit it coming and going.
We went off the antibiotics and then did the ozone. We did this because we'd both been on them for so long that we wanted to "see where we were at". Every time prior to doing the ozone that I took a little antibiotic "vacation," I was REAL sorry that I had done it. I was chastened and prayed I could crawl my way back up to where I had been and promised myself and the Universe that I wouldn't do it again.
But neither of us was getting BETTER on antibiotics. We were in a kind of holding-pattern, miserable all of the time. But in my case, MORE miserable when I went off the abx. (We didn't allow our daughter to go off the abx until we decided to do the ozone.)
That being said, I DO NOT recommend going off your antibiotics. That's between you and your doctor.
And Scott-- that's REALLY great news to hear. I know how bad off you were, and to hear that you did a week of work is really great. I applaud you for embracing this and running with it. I think that your get-better array of different modalities is very good and puts these suckers on the run.
And thanks for mentioning the silence of the ozone generators! I had not thought to mention this, as I'm so used to them. And I didn't know you can't order more than one at a time on the website. Thanks for that tip.
orion
Your welcome but the thanks goes to you, thanks for having the guts to put this info out there. I'll send you an updated email concerning my status in a couple of weeks.
I can't believe it but I'm on my way to do some light weight lifting, sit in my sauna and then go watch my son play his first football game today.
I pray that I'm not stating this to early but there is a light at the end of the tunnel and I hope that we all see it soon.
All My Best,
Scott
PMID: 11875947
PMID: 11548286
PMID: 15770062
http://www.altered-states.net/barry/ozone/
www.silvermedicine.org/ed-mccabe-ozone.html (history of ozone use)
http://www.garynull.com/Documents/ozone.htm
http://www.perutechnologies.com/pressmanO3.html#2
http://www.healthpolitics.com/media/ozone/transcript_ozone.pdf
http://oxyplus.net/ozone%20therapy%20in%20treat%20internal%20diseases%20183.pdf.
http://www.ingentaconnect.com/content/ben/cmc/2004/00000011/00000009/art00007
http://www.worldwidehealthcenter.net/article46.htm
www.trio3.com/moldsFungus.htm
www.appliedozone.com/detox.html
GREAT FIND!!!
The botulism toxins also block acetylcholine and trivalent anti-toxins are used, but expensive and not avail. to the masses.
Also, do you recall at what pressure you set the oxygen tank to for flow throught the ozonator?
Thanks, so good to hear you both are doing well.
JavaBeing
Also, you set the oxygen to the lowest output setting. All you want to do is have enough going through the line to have it come out the other end as ozone. If you have it too strong, you dilute the ozone with too much oxygen. Just enough is ideal. That usually means that the ball in the little window is under "zero."