hahaha
There are a lot of people around here that know their stuff but it is hard to go through the many posts every few days. It would also be a bit less discouraging for some of the newly diagnosed. I have talked to a number of people, all who have lyme who do not goto this site because of some of the "bad" stuff they read, ie. persistent infection etc...
Any thoughts????
But somethings wrong with it it broke hahaha
Hi Tree
I agree. I think it be great to have places where all the info that gets constantly repeated can be found in a flash.
My ideas run along the lines of something like:
1) a sub-site specifically for newbies that has all the essential stuff that gets posted and reposted. This would include treatment info for parents re the kiddies.
2) a sub-site that has basics of alternative protocols. (Ie; Marnie, Shoemaker, Klinghardt, Gigi, Skyking, etc)
3) a sub-site for advanced/adjunctive topics
Perhaps if we did that, it would free up the med discussion forum a bit. I would hate to lose any of the above-mentioned topics from "discussion".
Just some thoughts
peace,
andie
quote:
Originally posted by andie-ws:
Dear Dave,Hi Tree
I agree. I think it be great to have places where all the info that gets constantly repeated can be found in a flash.
My ideas run along the lines of something like:
1) a sub-site specifically for newbies that has all the essential stuff that gets posted and reposted. This would include treatment info for parents re the kiddies.
2) a sub-site that has basics of alternative protocols. (Ie; Marnie, Shoemaker, Klinghardt, Gigi, Skyking, etc)
3) a sub-site for advanced/adjunctive topics
Perhaps if we did that, it would free up the med discussion forum a bit. I would hate to lose any of the above-mentioned topics from "discussion".
Just some thoughts
peace,
andie
Hi andie-ws
Come visit us...we have NO TICKS in Canada either!!!
So we all voted for the "Frequently asked questions" so newbies could access that info readily and the rest of us wouldn't have to spend quite as much time answering redundant questions.
Every newbie basically has the same questions!
This would also keep other medical questions from going to page 2 too quickly where some newbies don't know how to access.
------------------
oops!
Lymetutu
I needed hand holding, comfort and was confused about my disease.
When I first learned about LymeNet I was exited about visiting the site in hope of finding answers.
The last thing on my mind was to be methodical about how to find answers.
I simply went on the main message board and blurted my questions out.
I couldn't care less about flash and advanced search options. I wanted to "hear" people voices and tell me that I had come to the right place and so on.
In addition to what has already been suggested, I suggest we create a message board just for newbies.
To make sure newbies go to that message board when they first register, we could auto-direct them to the newbie message board upon completion of the registration process.
Otherwise, newbies are inclined to go directly to "Medical questions" or whichever happens to be the message board with the most postings.
Michael
I have, literally, hundreds of MS word files of info. all documented.
If persons do not UNDERSTAND what is happening, they will "dismiss" the complementary treatments which are sooooo helpful.
Notice I said, complementary, not "alternative". They go hand in hand. To separate them from medical questions would be a disservice.
If you need "hand holding" (and everyone does from time to time!), general discussion is the place. This is "medical questions" area and hence frequently posts complicated documented research.
Here are the "basics" (which took me 4 years to figure out):
posted 30 May 2004 17:45
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Ten Points regarding Mg and Lyme Disease
1. Bb, the lyme spirochete, uses magnesium (Mg) - our supply - for its enzyme reactions according to microbiologist, Dr. Gary Kaiser.
2. We need enough Mg for MANY functions (!) including making healthy antibodies (our own "antibiotics") to fight ALL bacteria - co infection issues AND viruses - cancer.
3. The % decrease of Mg early on in this disease is astounding! According to the abstract from Romania, we are looking at a 30% reduction off the bat. That is a HUGE decrease! It will require IV doses of Mg given over time and constantly monitored to maintain normal levels until the infection has been eliminated. THERE IS NO OTHER WAY. All lyme symptoms can be traced to Mg deficiency symptoms. We MUST restore the normal level of Mg.
4. Our NK cells (natural killer cells that knock off precancerous cells) also need enough Mg and Ca in the steps they take to kill the precancerous cells...every day (about 4 per day). Cancer is (caused by)a virus that also follows the glycolysis pathway also.
5. If we do not restore to normal the level of magnesium (++ charge), the disease spirals out of control and leads to many other problems (depression, diabetes, hormone levels dropping, etc.). The body will "hunt for" other ++ charges to TRY TO compensate for this missing mineral.
6. A Mg deficiency -> Calcium going into the cells (not good so the body tries to stop this)-> angiotensin is stimulated (a protein, neg. charge) -> TNF alpha rises (positive charge).
7. Correcting the serious Mg deficiency will stop the disease and eliminate all of the symptoms as it did for the 2 Romanians. This will take TIME...esp. if the disease has a foothold.
8. Nonstop powerful antibiotics are acidic (neg. charge). They will make the body too acidic and the body will react by pulling additional minerals (pos. charge) out of storage to compensate, to maintain the pH (acid-base) balance. Furthermore, in the presence of acids, it is known that Bb "dives for cover" ie., sheds its cell wall/goes into cyst formation within minutes. (Please note: heat and frequencies are also neg. charges!)
9. The abx. alone are not what is curing (those lucky enough to have stopped this early on). It is the abx. REACTING WITH THE MINERALS that is doing the trick. Acids, a LOT, react with minerals to produce hydrogen. Hydrogen INactivates PFK, an enzyme that Bb is dependent on. Hydrogen is carried INTO the cells via CoQ10. When the Romanians restored the normal level of Mg in the early onset lyme patients and gave abx. -> cure.
Toxins are acidic too..very (!) + abx. are acidic + Mg is usually combined with an acid (Mg chloride, Mg sulfate, Mg pyrophosphate - the best choice).
Sooooo, once again...a lot of acids react with a little mineral to produce hydrogen which INactivates PFK and shuts down the glycolysis pathway (using sugar for energy). Insulin ACTIVATES PFK...so avoid "sugar rushes".
10. In addition, by restoring the Mg levels, TNF alpha will be reduced, more healthy antibodies will be formed, etc.
Find a way/place to get ACCURATE Mg testing done. Find a doctor willing to give the doses necessary and monitor the level closely until you test negative.
This pathogen choses THE most critical mineral to deplete. Mg is vital to our immune system, controls over 350 enzymes, is needed to make ATP - energy (both routes), and is capable of DNA repair. No other electrolyte is capable of taking over these functions. This is disasterous. Restore the balance.
ALL of the above is DOCUMENTED in my "In a Nutshell" post which is MUCH longer and technical.
[This message has been edited by HaplyCarlessdave (edited 25 January 2005).]