My conclusion is my liver isn't happy...alternative DO feels the same way.

I've been detoxing like crazy and some days no pain. Here's the problem. My LLMD has me taking pulsed low dose Zithromax and I still have pain doing this.

He feels going on IV's is the only option. Will IV's miss the liver area a lot and alleviate these problems? I'm extremely sensitive to meds and have never been able to take a full dose of any ABX.

 

After a year on orals, I had developed burning, inflammation & swelling in my entire intestinal tract. my LLMD thought the solution was IV abx, because it would not go through the GI system. Instead, the intestinal inflammation & pain after a 1-day trial of IV Rocephin on Friday was WORSE. The antibiotic still reached the nerves of the GI tract through the blood stream, and that caused the inflammation. It wasn't caused just by the physical chemical passing inside it.

I don't know what to do now either. If a doc can tell me this pain does NOT mean damage is being done to my intestinal tract, then I'll stay on IV Rocephin & just take something to cover the pain.

But if this pain means damage is being done, I think I have to stop abx for enough months for my GI system to heal, and save IV abx for the relapse.

Others' experiences with this?
 

Looks like the zith doesnt like you or ME!

I too expereinced severe URQ pain while taking it and still sometimes have this pain now 3 weeks after stopping. But not what it used to be by any means.

I also have been posting about it, but havent found many others who have had this on ZITH???

I had IV Rocephin in 2001 and it cause sludge and my first ALL OUT gallbladder attack. It took almost 6 months to get the gallbladder back to pain free levels by taking actigall.
Also I had bad liver panels when I herxed on Rocephin.

Every one is different, but Rocephin is pretty intense stuff for your body to process. It is however a good Lyme Kick butter in my opinion. I had one massive herx, (was on IV for 2 months and orals for 6 months) and then steady improvement until I reached almost 3 years of symptom free without any meds.

(funny thing that we use the same LL clinic and we both have zith problems-eh?)

Hope you can figure out what to do for yourself!
My best,
Trails

My GI pain began with zith also, and continues a full week after stopping.

That's why Dr C said to go to IV, but we were surprised it became worse!

 

Snowboarder....I hope you can find the solution to this. We have to get you well!

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oops!
Lymetutu
 

I will not be doing rocephin. Dr. C wants to start with claforan. Honestly I don't know if it will make a difference but lyme symptoms are creeping back and this does not make me happy!

Has anyone taken a different abx IV besides Rocephin and what were the results?

Lymetoo I'm very frustrated.

Dr. C wants to start with claforan.

Has anyone taken a different abx IV besides Rocephin and what were the results?

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Can anyone answer Snowboarder's question above, especially Dr C;s patients? Dr C also recommended IV claforan or primaxin for me because of greater effectiveness.

My local internist who's agreed to administer IV, though, wants me to do rocephin instead for 2 reasons: (1) says claforan and primaxin are more harsh on the body & people get more c diff and yeast on those; (2) I feel 90% well, and he's afraid the harsher drugs will give me a setback.

I called Dr C's office yesterday, and his nurse said she isn't aware of their patients on primaxin & claforan having more c diff or yeast.

Those who've tried primaxin or claforan, which best describes your experience?

Especially those of you who've tried rocephin and then later either primaxin or claforan, were they really harsher? Did you really have more problems with yeast and c diff than on rocephin?

Thank you!
 

I did 3 months iv zith, then iv clinda now I do clinda and zith.

I have had periodic liver pain on these meds, but I had years of liver pain and jaudice before my LD dx.

Liver detoxing helped alot, but Integrative Manual Therapy(IMT) treatment for my liver relieves the pain each time it surfaces. I believe in my case, that my Lyme infection is so comprehensive, that anytime there is excess dieoff my liver will be aggrivated.

I'm tired today. Am I making any sense?

Anyway, for me I don't think zith is the issue, but LD is...IMT helps the body heal... and it helps keep my liver strong with all of my meds.
 

Good luck
Cigi
 

I'm so sorry that you are going through this difficult time with pain and decisions to make.

I did IVs for 15 months- rocephin, clindamycin, zithromax, and levaquin. Each one helped with different symptoms. But yes, they all are quite powerful...and you should be monitored closely while on any meds, especially IV.

If you do rocephin eventually, be sure to have your doc also prescribe Actigall to help protect your gallbladder. You should also be getting a complete blood work-up every two weeks.

You might want to contact lightfoot re: the liver/gallbladder pain...she went through a similar experience.

Good luck, and let us know how it goes.
Melanie

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C O L O R A D O * S U P P O R T * S Y S T E M
[email protected]
 

Hopefully, someone else will come along with experience with claforan.

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oops!
Lymetutu
 

Jake had to stop for 5 days because his WBC count was too low.

We have seen some improvment in Jordan but not very much with Jake.

We are leaving early Monday morning for an appointment with Dr. C on Monday afternoon.

My understanding is that Claforan is easier on your body and you don't have the gallbladder issues.

The down side of Claforan is it needs to be infused 3 times a day. The kids do theirs at 7:30 am, 3:00 pm and 10:00 pm. Jordan uses the intermate system (which is great) and Jake uses a syringe.

Jake & Jordan have been so ill for so long, that is really too early to tell how it is working for them.

Our home health agency changes the comes once a week to change their dressing and to draw blood.

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