I'm new here.

I have late stage neurological Lyme. Probably got it 12 years ago. I was treated for Lyme for two months, then Babesiosis. Now the "babe" reads clear on tests, and I'm in my third month of Lyme antibiotics.

I am raging like crazy. It feels like I'm totally out of control.

Anyone out there with similar symptoms? Any suggestions? Right now I'm doing rage counseling and trying to breathe deep and save my marriage.

Would love to hear from others.

Thank you.

Lulubec
 

I didn't show much rage but felt a lot of rage. Mostly didn't show it because I avoided people.

It took me about 5 months of tx on high doses of doxy before it went away for the most part. Started getting better about 2 or 3 months into tx.

That sounds like a long time, but it does usually get better.

I found the best things to do were to walk away when I got mad, and to develop a very dark (not mean) sense of humor.
 

Rage and anger come from feeling both desperate and frustrated. It is very common to feel all these things and express them.

I learned that keeping a journal and writing down my private thoughts helped me channel some of this rage onto a piece of paper and not onto my loved ones.

And as soon as I realized how lucky I was to be alive I made a point to give thanks to those who helped me. I handed out handwritten notes to doctors, nurses, family and friends. I made a poster with large print that read, I AM BLESSED.

I had to remind myself over and over that each and every breathe I took were a blessing from God and I was determined to make the best to enjoy my time on Earth! I know it seems over the top but it helped me.

And I made it a point to tell those around me a story of a woman I had talked to, so they could understand how BAD I was feeling. This woman went through Lyme Disease in her 20's and was then a Breast Cancer survivor in her 40's. She's now in her 60's and told me that her Lyme days were much tougher to handle than BREAST CANCER! Sometimes people around us don't realize how tough of a disease Lyme is - so don't be afraid and tell them!

Healing wishes,
Stella

 

It came and went which was strange because I would say our stress level over here with 3 lymies has been consistently high.

I think it might be somewhat related to herxing...

Also, I am a fan of antianxiety and antideppresants. The lyme can cause depression and anxiety. And that is on top of being in a situation that is on one hand depressing and on the other hand like a wild rollarcoaster ride.

Some may not need it, but I am for getting any help that is available by the grace of God. My husband and kids have some idea, but not fully of what I could be like....
Peace,
Suz
 

The worst for me for me is not trusting my reactions anymore. "Is that person a jerk or am I a hyper-rage filled lymie????"

I stay away as well from people and explain to everyone in close contact with me exactly what is going on. I am very careful to tell people whom I am close to, why and when my reactions might seem inappropriate.

HOWEVER, what do you do about so-called friends who know everything about your problems, I mean everything and have watched you suffer and then still don't get it?? I could tolerate these people before I was sick, I simply cannot do it now.

Any ideas?
Lymelady
 

Lyme rage is common in people with the neurological form of lyme. Even people who never have had a "mean bone" in their body will express it.

I believe it's due to chemical imbalance due to either demylination or some unknown process...IMHO

Regards,

Julia