I have late stage neurological Lyme. Probably got it 12 years ago. I was treated for Lyme for two months, then Babesiosis. Now the "babe" reads clear on tests, and I'm in my third month of Lyme antibiotics.
I am raging like crazy. It feels like I'm totally out of control.
Anyone out there with similar symptoms? Any suggestions? Right now I'm doing rage counseling and trying to breathe deep and save my marriage.
posted
Don't worry, you are not alone on this Lulubec!
Rage and anger come from feeling both desperate and frustrated. It is very common to feel all these things and express them.
I learned that keeping a journal and writing down my private thoughts helped me channel some of this rage onto a piece of paper and not onto my loved ones.
And as soon as I realized how lucky I was to be alive I made a point to give thanks to those who helped me. I handed out handwritten notes to doctors, nurses, family and friends. I made a poster with large print that read, I AM BLESSED.
I had to remind myself over and over that each and every breathe I took were a blessing from God and I was determined to make the best to enjoy my time on Earth! I know it seems over the top but it helped me.
And I made it a point to tell those around me a story of a woman I had talked to, so they could understand how BAD I was feeling. This woman went through Lyme Disease in her 20's and was then a Breast Cancer survivor in her 40's. She's now in her 60's and told me that her Lyme days were much tougher to handle than BREAST CANCER! Sometimes people around us don't realize how tough of a disease Lyme is - so don't be afraid and tell them!
Healing wishes, Stella
Posts: 712 | From Ottawa, ON, Canada | Registered: Sep 2002
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lyme_suz
Unregistered
posted
Hi, I have had some problems with rage. It was weird because I don't usually show anger,but I went through about 5 days where I was slamming doors and peeling out of the driveway and fussing at the kids.
It came and went which was strange because I would say our stress level over here with 3 lymies has been consistently high.
I think it might be somewhat related to herxing...
Also, I am a fan of antianxiety and antideppresants. The lyme can cause depression and anxiety. And that is on top of being in a situation that is on one hand depressing and on the other hand like a wild rollarcoaster ride.
Some may not need it, but I am for getting any help that is available by the grace of God. My husband and kids have some idea, but not fully of what I could be like.... Peace, Suz
posted
I think neuro lyme is like being on steroids. I saw a movie about someone who was addicted to steroids and I saw similarities in that behavior and mine since lyme took over my brain.
The worst for me for me is not trusting my reactions anymore. "Is that person a jerk or am I a hyper-rage filled lymie????"
I stay away as well from people and explain to everyone in close contact with me exactly what is going on. I am very careful to tell people whom I am close to, why and when my reactions might seem inappropriate.
HOWEVER, what do you do about so-called friends who know everything about your problems, I mean everything and have watched you suffer and then still don't get it?? I could tolerate these people before I was sick, I simply cannot do it now.
Any ideas? Lymelady
Posts: 484 | From Fredericksburg, Va USA | Registered: Sep 2004
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