Folks who don't know all the nitty gritty politics of this situation we are in can easily get lost trying to figure out stuff.
I'd like to have a VERY short.. 3-4 words.. slogan we can use to help patients.. especially those not bitten or "involved" with Lyme yet.
Since there are 2 standards of care for Lyme.. we need to make it easy for people to remember to tell their doctors and insurance companies they want to follow the ILADS guidelines.. and NOT the IDSA ones. Since the initials are close.. many get confused... including me on a rare ocassion.
Sooooooooooooo..
Any ideas?
International is best?
International guidelines for Lyme are best?
See.. I need help!
Posted by Silverwolf (Member # 9196) on :
For LD Protocols and Info: "ILADs not Medical Fads" ...? Or Somethin' simular?
Not sure if thats any help?
Silverwolf a wanderin'
Posted by Jill E. (Member # 9121) on :
ILADs has the word Lyme in it, IDSA does not.
Maybe there is a thought there. I'll try to think it over.
Jill
Posted by robi (Member # 5547) on :
International thrives.................. Infectious dies........................
Posted by Vermont_Lymie (Member # 9780) on :
ILADS: Let the Real Experts Treat Lyme Patients --
Treatment, not (IDSA's) Wishful Thinking
or
Remembering Act Up's powerful slogan, SILENCE = DEATH
We could do something similar....
Posted by trueblue (Member # 7348) on :
Lyme Literates NOT Infectious Idiots
(ok, admittedly it needs work)
Posted by northstar (Member # 7911) on :
ILADS: An international standard of care committed to the patient.
ILADS: An international standard of care that supports the patient
An international standard of care for a global problem.
ILADS: an international standard committed to the individual.
(I cant get it down to 2 words, if international is one of them!)
ILADS: global standards for a global problem
ILADS: Where the Individual and International Are One (unite?)(meet?)
ILADS: International Platform for a Global Disease n/
Posted by Tincup (Member # 5829) on :
Interesting. HA!
Not sure we'd win any awards with this stuff.. but it is a good start!
At least you are thinking about it!!! This is a HARD one for sure! It's got me stumped!
Keep thinking about it if you will and here is what I pictured...
A patient heads to the ducks office with a recent tick bite and needs help.
What "jingle" would stick in their mind so they could immediately tell the duck they want ILADS guidelines... NOT IDSA.
Anyone?
Posted by robi (Member # 5547) on :
Oh yeah ............ TB has got it! It is catchy AND you can dance to it!!!!!!!!!!!
Posted by northstar (Member # 7911) on :
duh.....I see, something so they can remember the initials!
Slick grace here. N/
actually, ilads is easier to pronounce. It rolls.
The other one mechanically causes my tonque to get stuck in my teeth and spew droplets of spittle...!
Yee gads, I want ILADS
I'll be sad without ILADS
I'll not be sad with ILADS
(rhyming words with ilads)...must look up
scads, glads pads ballad be glad ilad
anyone can run with these....just ideas
n/
[ 21. January 2007, 07:21 PM: Message edited by: northstar ]
Posted by Vermont_Lymie (Member # 9780) on :
Trueblue -- that is great! The best slogan I have seen, I would proudly carry that on a poster...
Posted by wiserforit (Member # 9732) on :
How about "Once Bitten; Twice Shy"
Or "ILADS = patient CARE"
Or "We don't need no stinkin' ELISAs..."
I'm trying, I'm trying... this is hard!
Tori
Posted by groovy2 (Member # 6304) on :
Ht All
-- Just One Bite and You Are Me ---
--- Jay ---
Posted by trueblue (Member # 7348) on :
I'd Like A Doxy Script
Posted by trueblue (Member # 7348) on :
quote:Originally posted by robi: Oh yeah ............ It is catchy AND you can dance to it!!!!!!!!!!!
(especially since I got the idea from yours)
Posted by humanbeing (Member # 8572) on :
Demand Care, Demand ILADS Guidelines
Don't Undertreat- Request ILADS Guidelines
Posted by Jill E. (Member # 9121) on :
Hi Cave,
You bring up very valid points.
Most people think Lyme is not in their area. Even my neighbors, who know I was bitten one mile from my house, won't take any precautions.
Even one neighbor, who is from Connecticut, thinks Lyme is just a bout of arthritis.
Most people don't know it's systemic, progresses from one stage to another like cancer, and can cause disability and death - basically, it's not taken seriously.
I hate to use scare tactics, but the reality is, we are doing two things: increasing awareness of Lyme/educating people about the seriousness of it, and then have them seeking an ILADS practitioner.
Hmmm, that hardly fits on a bumper sticker.
I wonder if there's a way to combine the ILADS thought with a Lyme seriousness/awareness thought, like "Get an ILADS doctor. Lyme is a ticking time bomb."
Well, there, that will give me worse nightmares than usual - I think I scared myself.
Let's go back to something we can dance to - I love Trueblue's slogan.
Maybe there's a "get believed angle" like "Get believed. Get treated. Get an ILADS doctor for Lyme Disease."
OK, doesn't fit on a bumper sticker, either.
Jill
Posted by Katcon (Member # 9812) on :
I'd Like A Doctor not an idiot Soon
Sorry very tired and cranky. It's not too obvious is it?
Posted by Katcon (Member # 9812) on :
Get serious about Lyme Disease look for ILADS.
Entrust your health to professionals. ILADS
I'd Like A Doctor Seriously
It's the best I can do with the impaired brain I have.
Posted by Tincup (Member # 5829) on :
Well now..
You're catching my drift.. good!
Getting some fun and catchy ideas too!!!
Then along came Cave to spoil it all.
Ok dear Cave..
Let's say we start REALLY pushing our cause to the folks who don't have a clue what is going on. Then some day when they actually finally have that big moment.. and find a tick...
Instead of saying ouuuuu eeeeee and running to the CDC website.. they will think of that little "jingle" we've been plastering all over the place... and get treated.
THAT is what I am trying to do. I know.. my brain only works in bits and pieces.. but I am trying to get on paper what I need!
I noticed, for example, Northstar had something short..
"Yee gads, I want ILADS"
I'm laughing. Not sure ILADS would like to see that slogan on bulletin boards or bumper stickers .. or hear it sung on tv commercials.. but we are getting there.
I think a couple of good ones promoted would be nice. One for if you first are bitten.. then another for promoting the right guidelines.
I've been using.. as the closing to letters.. as appropriate..
"Have a safe summer and don't forget- do a tick check."
Not the most catchy.. but a bit different.
I think all the ideas so far are interesting and can be developed into maybe something useable?
Keep it up... at least I am laughing!!
Posted by FightFireWithWater (Member # 5781) on :
I still like "IDSA's 'Cookbook' Lyme Treatment Guidelines Could Really Cook Your Goose"
or " 'Cookbook' Medicine Could Cook Your Goose"
Maybe people are not familiar with the expression about "cooking one's goose" in all parts of the country?
[ 21. January 2007, 11:54 PM: Message edited by: FightFireWithWater ]
Posted by Beverly (Member # 1271) on :
I love all the suggestions above!!! You guys are rockin"
The only thing I can think of is... I'm glad I have Ilads! or Choose Ilads and be glad!!
Posted by 5dana8 (Member # 7935) on :
Enjoy nature but be aware ticks can hide anywhere.
So play it safe and cover-up and check for ticks so you don't get sick
sorry this ended up to be too long- maybe someone with better gray matter could trim it down...
The ending I really wanted to say" ...
"So play it safe and cover up so you won't have to see a duck"
but don't think everyone knows the other meaning to the word duck Posted by 5dana8 (Member # 7935) on :
Sorry My lyme brain just kicked in- KISS
Lyme Disease ILADS saves lives..IDSA takes lives
Posted by LisaS (Member # 10581) on :
After my name...
Posted by Mo (Member # 2863) on :
it's hard finding something to rhyme with ILADS that works. besides "eee-gads!!" or "gonads"
i'll keep thinking.
in the meantime: i assume from what i've read that this should not be an IDSA bashing slogan, but more an ILADS (Lyme literate) promoting slogan.
"Diagnose and treat Lyme to efficacy: look to ILADS."
"ILADS: efficatious diagnosis and treatment of Lyme disease."
i may well have to think longer.
mo
Posted by 5dana8 (Member # 7935) on :
I like mo's very much. Here's some more of my brain misfires:
"Beaware lyme disease is everywhere"
"check yourself for ticks-lyme disease can make you sick"
Posted by bettyg (Member # 6147) on :
I Love All lyme literate Doctors who SAVE CHRONIC LYME LIVES!
I LIKE ALTERNATIVE DOCTOR SITUATIONS
long-term antibiotics give your life back, short-term antibiotics are deadly!
yep, one very hard assignment
[ 22. January 2007, 02:12 PM: Message edited by: bettyg ]
Posted by northstar (Member # 7911) on :
More rhymes to work with:
chime
prime climb rhyme slime dime mime
sublime
daytime nighttime anytime
please disease appease
ilads ballads clads
Now, how to use them............
Daytime, nighttime, anytime: check for ticks that may carry lyme.
Daytime, nighttime, Anytime is prime time To check for ticks that may carry lyme.
Be aware please, Of ticks that carry disease.
(I feel like a Burma Shave sign)
Northstar
Posted by Robin123 (Member # 9197) on :
Hm...Lyme ads say ILADS
playing with the idea of an ad for them...
Posted by zing (Member # 7124) on :
how about:
Treatment for lyme? Use ILADS guidelines every time!!
Posted by Robin123 (Member # 9197) on :
If Lyme sidelines, use ILADS guidelines
Posted by 3greatkids (Member # 3838) on :
TICK BITES DEADLY and DANGEROUS
GET THE FACTS!!!!!!Save A LIFE!!!!!
GO TO www.ilads.org Posted by robi (Member # 5547) on :
How about:
JUST ASK TINCUP!
ok ok don't smack me ......... i can run faster than you ....... on a good day.
Well, it meets the 3 word max, anyway.
hugs, robi
Posted by Areneli (Member # 6740) on :
ILADS cures Lyme disease
Posted by robi (Member # 5547) on :
Ok, on a serious note,there is a saying in the Disability Rights Community: "Nothing about us without us!"
It is succint and to the point. We need something like that. Just throwing this in as part of the brain storming. My brain is currently on vacation. I'll get Minocaut to check this out. She is great with words.
robi
Posted by Lymetoo (Member # 743) on :
quote:Originally posted by Tincup: Instead of saying ouuuuu eeeeee and running to the CDC website.. they will think of that little "jingle" we've been plastering all over the place... and get treated.
Which raises the question: Why don't we have television ads about Lyme disease? Are our associations that strapped for money? [I think I know the answer to that one!]...but asking anyway.
Posted by kelmo (Member # 8797) on :
MS-FMS-CFS-ALS---COULD BE LYME!? See an ILADS physician soon!
That's my try. Kelmo
Posted by northstar (Member # 7911) on :
ILADS, the Answer to Lyme
ILADS, the Path to Lyme Recovery
ILADS, your Guide for Lyme
ILADS, Your Choice for Lyme N/
Posted by Robin123 (Member # 9197) on :
Lyme Disease? Use ILADS, please!
Posted by robi (Member # 5547) on :
up
Posted by bettyg (Member # 6147) on :
interesting suggestions...
Posted by Vermont_Lymie (Member # 9780) on :
IDSA = Ideologically Driven Scientific Assessment
IDSA = Insurance Driven Scientific Analysis
[ 24. January 2007, 04:46 PM: Message edited by: Vermont_Lymie ]
Posted by treepatrol (Member # 4117) on :
ILADS = Lyme Logic
Logic,from Classical Greek λόγος logos (the word), is the study of patterns found in reasoning.
The task of the logician is to set down rules for distinguishing between valid and fallacious inference, between rational and flawed arguments.
Traditionally, logic is studied as a branch of philosophy, one part of the classical trivium, which consisted of grammar, logic, and rhetoric. Since the mid-nineteenth century logic has also been commonly studied in mathematics and law.
More recently logic has been applied to computer science. The parts that make up a computer chip are often called 'logic gates'.
As a formal science, logic investigates and classifies the structure of statements and arguments, both through the study of formal systems of inference and through the study of arguments in natural language.
The scope of logic is therefore large, ranging from core topics such as the study of fallacies and paradoxes, to specialized analyses of reasoning using probability and to arguments involving causality. Logic is also commonly used today in argumentation theory.
ISDA = Informal Fallacy
In Philosophical logic, an informal fallacy is a pattern of reasoning which is false due to the falsity of one or more of its premises.
It is in constrast to a logical or formal fallacy, which is false due to a fundamental flaw in its argument structure.
Thus I give you the difference between ILADS and ISDA. Truth and lies.
Posted by micul (Member # 6314) on :
Got Sick? Think Lyme - Get ILADS Dr Posted by trueblue (Member # 7348) on :
I really like Tree's response a lot! (Logic always wins in my book.)
Although, Robin's slogan has the catchy rhyming thing going for it. Like Robi says it's got a good beat and you can dance to it. Posted by Cassie (Member # 2106) on :
Our Ontario support group gave out bumper stickers
LYME DISEASE A-TICK-ING BOMB
it has a picture of a tick with a bomb beside it.
Take care Cassie
Posted by kelmo (Member # 8797) on :
Whoa...Cassie and Trueblue...I like yours!
Posted by lpkayak (Member # 5230) on :
i like tureblue's :
"Lyme Literates NOT Infectious Idiots"
or something like the saying that someone here signs off with:
"If camp A was right there wouldn't be a Camp B"
ie:
Lyme has two standards of care: A (IDSA) and B (ILADS). If A worked we wouldn't need B.
uh oh. i'm on a roll. this is for MO-our "Protest Cheerleader"
MO-"Why do we need Camp B (or say ILADS) ?????"
all answer-"Cuz Camp A (the IDSA plan) FAILS"
Posted by sizzled (Member # 1357) on :
I will ALWAYS remember and like the one a dear friend sent me a looooong time ago...
"It's LYME Time You Knew!" Posted by bettyg (Member # 6147) on :
i like cassie's idea!
LYME DISEASE A-TICK-ING BOMB
Posted by kelmo (Member # 8797) on :
We'll never know what delivered the disease to my daughter. No tick bites that we know of.
So, I don't know if we should narrow it to ticks. That would eliminate many other vectors.
Posted by FightFireWithWater (Member # 5781) on :
Persistent Lyme Disease: Another 'Inconvenient Truth'
Posted by FightFireWithWater (Member # 5781) on :
I.njurious D.issembling S.tone-walling A.lliance
[ 24. January 2007, 05:59 PM: Message edited by: FightFireWithWater ]
Posted by FightFireWithWater (Member # 5781) on :
Withdraw I.(calculably) D.(amaging) S.(imply) A.(bominable) Lyme Guidelines Now!
Posted by FightFireWithWater (Member # 5781) on :
Choose I.L.(yme-literate)A.D.S Guidelines Not I.D.S.(simply)A.(wful)Guidelines
Posted by Spotted pony (Member # 4963) on :
ILADS leads!
Posted by Robin123 (Member # 9197) on :
ILADS Leads With Lyme/co Needs!
Posted by Robin123 (Member # 9197) on :
lol fightfire, your adjectives are practically begging for a song. I'm going to try Doe A Deer here, and then, yes, I will transfer it to the CD site where it belongs...
I, oh dear, Injurious here D, Dissembling, Damaging Docs S, they're Simply Stonewalling A, it's Awful and A bomb
I-DSA Guidelines -- NOT! 'cause no Lyme/co's can be caught Only ILADS should be taught -- That will bring us back from woe, oh oh oh.
[ 24. January 2007, 06:38 PM: Message edited by: Robin123 ]
Posted by FightFireWithWater (Member # 5781) on :
Cool, Robin!
Just happen to have my dictionary handy. Here are some more for you to play with:
Please note: I have not had time to consider all the permutations that might result using these words. I ask that nothing using obscenity or profanity be used in conjunction with the words I've assembled nor any names of particular persons be invoked.
[ 24. January 2007, 10:12 PM: Message edited by: FightFireWithWater ]
Posted by Robin123 (Member # 9197) on :
Oh dear, fightfire --
I Do See Alotofpossiblepermutationshere!
I Dare Some AddingAdjectiveAction...
Posted by AliG (Member # 9734) on :
BEEN TICK-BIT?
What % of ppl w/Lyme don't recall bite? What % of infective bites don't result in "bulls-eye"?
If you can't answer these two questions, you may need ILADS.
ILADS BITES BACK!! (IDSA JUST BENDS YOU OVER)
ILADS - takes the bite out of Lyme and offers hope to those infected with tick-borne diseases.
IDSA does not.
Sorry 'bout that, couldn't resist.
TICK-BIT? BITE BACK with ILADS! Don't roll over for IDSA!
Posted by lymedesign (Member # 8791) on :
ILADS...The Truth about Lyme Disease
Treat Me With The TRUTH!!
Posted by AliG (Member # 9734) on :
Two Physician approaches to treatment of Lyme Afflicted Patients:
IDSA = I'll Deny Symptoms Attributable
Posted by AliG (Member # 9734) on :
If IDSA flies - PEOPLE DIE!!
Posted by AliG (Member # 9734) on :
Got TICKS? Get ILADS!
IDSA turns it's back on patients who have diffuculty responding to brief treatments.
Posted by FightFireWithWater (Member # 5781) on :
Enough ABX for Lyme in Time Saves 9 Different Meds On Down the Line!
Posted by AliG (Member # 9734) on :
12-28 days just might not do, Do you want IDSA treating you? Go-o-o-o-o-o ILADS!
Posted by bettyg (Member # 6147) on :
dave, this isn't even funny; please delete your post about envelopes, etc .... anthrax scare all over again; sorry my friend, but this post is in really bad taste! Posted by imanurse (Member # 7022) on :
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You guys are rockin"![[Frown]](frown.gif)
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