Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Folks who don't know all the nitty gritty politics of this situation we are in can easily get lost trying to figure out stuff.
I'd like to have a VERY short.. 3-4 words.. slogan we can use to help patients.. especially those not bitten or "involved" with Lyme yet.
Since there are 2 standards of care for Lyme.. we need to make it easy for people to remember to tell their doctors and insurance companies they want to follow the ILADS guidelines.. and NOT the IDSA ones. Since the initials are close.. many get confused... including me on a rare ocassion.
Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
For LD Protocols and Info: "ILADs not Medical Fads" ...? Or Somethin' simular?
Not sure if thats any help?
Silverwolf a wanderin'
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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Jill E.
Frequent Contributor (1K+ posts)
Member # 9121
posted
ILADs has the word Lyme in it, IDSA does not.
Maybe there is a thought there. I'll try to think it over.
Jill
-------------------- If laughter is the best medicine, why hasn't stand-up comedy cured me? Posts: 1773 | From San Diego | Registered: Apr 2006
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robi
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Member # 5547
posted
International thrives.................. Infectious dies........................
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Vermont_Lymie
Frequent Contributor (1K+ posts)
Member # 9780
posted
ILADS: Let the Real Experts Treat Lyme Patients --
Treatment, not (IDSA's) Wishful Thinking
or
Remembering Act Up's powerful slogan, SILENCE = DEATH
We could do something similar....
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trueblue
Frequent Contributor (1K+ posts)
Member # 7348
posted
Lyme Literates NOT Infectious Idiots
(ok, admittedly it needs work)
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northstar
Frequent Contributor (1K+ posts)
Member # 7911
posted
ILADS: An international standard of care committed to the patient.
ILADS: An international standard of care that supports the patient
An international standard of care for a global problem.
ILADS: an international standard committed to the individual.
(I cant get it down to 2 words, if international is one of them!)
ILADS: global standards for a global problem
ILADS: Where the Individual and International Are One (unite?)(meet?)
ILADS: International Platform for a Global Disease n/
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Interesting. HA!
Not sure we'd win any awards with this stuff.. but it is a good start!
At least you are thinking about it!!! This is a HARD one for sure! It's got me stumped!
Keep thinking about it if you will and here is what I pictured...
A patient heads to the ducks office with a recent tick bite and needs help.
What "jingle" would stick in their mind so they could immediately tell the duck they want ILADS guidelines... NOT IDSA.
robi
Frequent Contributor (1K+ posts)
Member # 5547
posted
Oh yeah ............ TB has got it! It is catchy AND you can dance to it!!!!!!!!!!!
-------------------- Now, since I put reality on the back burner, my days are jam-packed and fun-filled. ..........lily tomlin as 'trudy' Posts: 2503 | From here | Registered: Apr 2004
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northstar
Frequent Contributor (1K+ posts)
Member # 7911
posted
duh.....I see, something so they can remember the initials!
Slick grace here. N/
actually, ilads is easier to pronounce. It rolls.
The other one mechanically causes my tonque to get stuck in my teeth and spew droplets of spittle...!
Yee gads, I want ILADS
I'll be sad without ILADS
I'll not be sad with ILADS
(rhyming words with ilads)...must look up
scads, glads pads ballad be glad ilad
anyone can run with these....just ideas
n/
[ 21. January 2007, 07:21 PM: Message edited by: northstar ]
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Vermont_Lymie
Frequent Contributor (1K+ posts)
Member # 9780
posted
Trueblue -- that is great! The best slogan I have seen, I would proudly carry that on a poster...
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Tori
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groovy2
Frequent Contributor (1K+ posts)
Member # 6304
posted
Ht All
-- Just One Bite and You Are Me ---
--- Jay ---
Posts: 2999 | From Austin tx USA | Registered: Oct 2004
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trueblue
Frequent Contributor (1K+ posts)
Member # 7348
posted
I'd Like A Doxy Script
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trueblue
Frequent Contributor (1K+ posts)
Member # 7348
posted
quote:Originally posted by robi: Oh yeah ............ It is catchy AND you can dance to it!!!!!!!!!!!
(especially since I got the idea from yours)
-------------------- more light, more love more truth and more innovation Posts: 3783 | From somewhere other than here | Registered: May 2005
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Jill E.
Frequent Contributor (1K+ posts)
Member # 9121
posted
Hi Cave,
You bring up very valid points.
Most people think Lyme is not in their area. Even my neighbors, who know I was bitten one mile from my house, won't take any precautions.
Even one neighbor, who is from Connecticut, thinks Lyme is just a bout of arthritis.
Most people don't know it's systemic, progresses from one stage to another like cancer, and can cause disability and death - basically, it's not taken seriously.
I hate to use scare tactics, but the reality is, we are doing two things: increasing awareness of Lyme/educating people about the seriousness of it, and then have them seeking an ILADS practitioner.
Hmmm, that hardly fits on a bumper sticker.
I wonder if there's a way to combine the ILADS thought with a Lyme seriousness/awareness thought, like "Get an ILADS doctor. Lyme is a ticking time bomb."
Well, there, that will give me worse nightmares than usual - I think I scared myself.
Let's go back to something we can dance to - I love Trueblue's slogan.
Maybe there's a "get believed angle" like "Get believed. Get treated. Get an ILADS doctor for Lyme Disease."
OK, doesn't fit on a bumper sticker, either.
Jill
-------------------- If laughter is the best medicine, why hasn't stand-up comedy cured me? Posts: 1773 | From San Diego | Registered: Apr 2006
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posted
Get serious about Lyme Disease look for ILADS.
Entrust your health to professionals. ILADS
I'd Like A Doctor Seriously
It's the best I can do with the impaired brain I have.
Posts: 175 | From Pa | Registered: Aug 2006
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Well now..
You're catching my drift.. good!
Getting some fun and catchy ideas too!!!
Then along came Cave to spoil it all.
Ok dear Cave..
Let's say we start REALLY pushing our cause to the folks who don't have a clue what is going on. Then some day when they actually finally have that big moment.. and find a tick...
Instead of saying ouuuuu eeeeee and running to the CDC website.. they will think of that little "jingle" we've been plastering all over the place... and get treated.
THAT is what I am trying to do. I know.. my brain only works in bits and pieces.. but I am trying to get on paper what I need!
I noticed, for example, Northstar had something short..
"Yee gads, I want ILADS"
I'm laughing. Not sure ILADS would like to see that slogan on bulletin boards or bumper stickers .. or hear it sung on tv commercials.. but we are getting there.
I think a couple of good ones promoted would be nice. One for if you first are bitten.. then another for promoting the right guidelines.
I've been using.. as the closing to letters.. as appropriate..
"Have a safe summer and don't forget- do a tick check."
Not the most catchy.. but a bit different.
I think all the ideas so far are interesting and can be developed into maybe something useable?
-------------------- "Help Or Be Helpless" Please visit "Activism" board daily. See the threads regarding the IDSA Guidelines crisis and the threads about Dr. Charles Ray Jones and decide how best to help today! Posts: 1265 | From does not list | Registered: Jun 2004
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Beverly
Frequent Contributor (5K+ posts)
Member # 1271
posted
I love all the suggestions above!!! You guys are rockin"
The only thing I can think of is... I'm glad I have Ilads! or Choose Ilads and be glad!!
robi
Frequent Contributor (1K+ posts)
Member # 5547
posted
How about:
JUST ASK TINCUP!
ok ok don't smack me ......... i can run faster than you ....... on a good day.
Well, it meets the 3 word max, anyway.
hugs, robi
-------------------- Now, since I put reality on the back burner, my days are jam-packed and fun-filled. ..........lily tomlin as 'trudy' Posts: 2503 | From here | Registered: Apr 2004
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Areneli
Frequent Contributor (1K+ posts)
Member # 6740
posted
ILADS cures Lyme disease
Posts: 1538 | From Planet Earth | Registered: Jan 2005
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robi
Frequent Contributor (1K+ posts)
Member # 5547
posted
Ok, on a serious note,there is a saying in the Disability Rights Community: "Nothing about us without us!"
It is succint and to the point. We need something like that. Just throwing this in as part of the brain storming. My brain is currently on vacation. I'll get Minocaut to check this out. She is great with words.
robi
-------------------- Now, since I put reality on the back burner, my days are jam-packed and fun-filled. ..........lily tomlin as 'trudy' Posts: 2503 | From here | Registered: Apr 2004
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quote:Originally posted by Tincup: Instead of saying ouuuuu eeeeee and running to the CDC website.. they will think of that little "jingle" we've been plastering all over the place... and get treated.
Which raises the question: Why don't we have television ads about Lyme disease? Are our associations that strapped for money? [I think I know the answer to that one!]...but asking anyway.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
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kelmo
Frequent Contributor (1K+ posts)
Member # 8797
posted
MS-FMS-CFS-ALS---COULD BE LYME!? See an ILADS physician soon!
That's my try. Kelmo
Posts: 2903 | From AZ | Registered: Feb 2006
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northstar
Frequent Contributor (1K+ posts)
Member # 7911
posted
ILADS, the Answer to Lyme
ILADS, the Path to Lyme Recovery
ILADS, your Guide for Lyme
ILADS, Your Choice for Lyme N/
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posted
Lyme Disease? Use ILADS, please!
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robi
Frequent Contributor (1K+ posts)
Member # 5547
posted
up
-------------------- Now, since I put reality on the back burner, my days are jam-packed and fun-filled. ..........lily tomlin as 'trudy' Posts: 2503 | From here | Registered: Apr 2004
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[ 24. January 2007, 04:46 PM: Message edited by: Vermont_Lymie ]
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treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
ILADS = Lyme Logic
Logic,from Classical Greek λόγος logos (the word), is the study of patterns found in reasoning.
The task of the logician is to set down rules for distinguishing between valid and fallacious inference, between rational and flawed arguments.
Traditionally, logic is studied as a branch of philosophy, one part of the classical trivium, which consisted of grammar, logic, and rhetoric. Since the mid-nineteenth century logic has also been commonly studied in mathematics and law.
More recently logic has been applied to computer science. The parts that make up a computer chip are often called 'logic gates'.
As a formal science, logic investigates and classifies the structure of statements and arguments, both through the study of formal systems of inference and through the study of arguments in natural language.
The scope of logic is therefore large, ranging from core topics such as the study of fallacies and paradoxes, to specialized analyses of reasoning using probability and to arguments involving causality. Logic is also commonly used today in argumentation theory.
ISDA = Informal Fallacy
In Philosophical logic, an informal fallacy is a pattern of reasoning which is false due to the falsity of one or more of its premises.
It is in constrast to a logical or formal fallacy, which is false due to a fundamental flaw in its argument structure.
Thus I give you the difference between ILADS and ISDA. Truth and lies.
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
-------------------- You're only a failure when you stop trying. Posts: 945 | From U.S | Registered: Oct 2004
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trueblue
Frequent Contributor (1K+ posts)
Member # 7348
posted
I really like Tree's response a lot! (Logic always wins in my book.)
Although, Robin's slogan has the catchy rhyming thing going for it. Like Robi says it's got a good beat and you can dance to it.
-------------------- more light, more love more truth and more innovation Posts: 3783 | From somewhere other than here | Registered: May 2005
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posted
Persistent Lyme Disease: Another 'Inconvenient Truth'
-------------------- "Help Or Be Helpless" Please visit "Activism" board daily. See the threads regarding the IDSA Guidelines crisis and the threads about Dr. Charles Ray Jones and decide how best to help today! Posts: 1265 | From does not list | Registered: Jun 2004
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-------------------- "Help Or Be Helpless" Please visit "Activism" board daily. See the threads regarding the IDSA Guidelines crisis and the threads about Dr. Charles Ray Jones and decide how best to help today! Posts: 1265 | From does not list | Registered: Jun 2004
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-------------------- "Help Or Be Helpless" Please visit "Activism" board daily. See the threads regarding the IDSA Guidelines crisis and the threads about Dr. Charles Ray Jones and decide how best to help today! Posts: 1265 | From does not list | Registered: Jun 2004
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posted
Choose I.L.(yme-literate)A.D.S Guidelines Not I.D.S.(simply)A.(wful)Guidelines
-------------------- "Help Or Be Helpless" Please visit "Activism" board daily. See the threads regarding the IDSA Guidelines crisis and the threads about Dr. Charles Ray Jones and decide how best to help today! Posts: 1265 | From does not list | Registered: Jun 2004
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posted
lol fightfire, your adjectives are practically begging for a song. I'm going to try Doe A Deer here, and then, yes, I will transfer it to the CD site where it belongs...
I, oh dear, Injurious here D, Dissembling, Damaging Docs S, they're Simply Stonewalling A, it's Awful and A bomb
I-DSA Guidelines -- NOT! 'cause no Lyme/co's can be caught Only ILADS should be taught -- That will bring us back from woe, oh oh oh.
[ 24. January 2007, 06:38 PM: Message edited by: Robin123 ]
Posts: 13116 | From San Francisco | Registered: May 2006
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Please note: I have not had time to consider all the permutations that might result using these words. I ask that nothing using obscenity or profanity be used in conjunction with the words I've assembled nor any names of particular persons be invoked.
-------------------- "Help Or Be Helpless" Please visit "Activism" board daily. See the threads regarding the IDSA Guidelines crisis and the threads about Dr. Charles Ray Jones and decide how best to help today! Posts: 1265 | From does not list | Registered: Jun 2004
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I Dare Some AddingAdjectiveAction...
Posts: 13116 | From San Francisco | Registered: May 2006
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AliG
Frequent Contributor (1K+ posts)
Member # 9734
posted
BEEN TICK-BIT?
What % of ppl w/Lyme don't recall bite? What % of infective bites don't result in "bulls-eye"?
If you can't answer these two questions, you may need ILADS.
ILADS BITES BACK!! (IDSA JUST BENDS YOU OVER)
ILADS - takes the bite out of Lyme and offers hope to those infected with tick-borne diseases.
IDSA does not.
Sorry 'bout that, couldn't resist.
TICK-BIT? BITE BACK with ILADS! Don't roll over for IDSA!
-------------------- Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner. Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006
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-------------------- Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner. Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006
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AliG
Frequent Contributor (1K+ posts)
Member # 9734
posted
If IDSA flies - PEOPLE DIE!!
-------------------- Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner. Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006
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AliG
Frequent Contributor (1K+ posts)
Member # 9734
posted
Got TICKS? Get ILADS!
IDSA turns it's back on patients who have diffuculty responding to brief treatments.
-------------------- Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner. Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006
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posted
Enough ABX for Lyme in Time Saves 9 Different Meds On Down the Line!
-------------------- "Help Or Be Helpless" Please visit "Activism" board daily. See the threads regarding the IDSA Guidelines crisis and the threads about Dr. Charles Ray Jones and decide how best to help today! Posts: 1265 | From does not list | Registered: Jun 2004
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AliG
Frequent Contributor (1K+ posts)
Member # 9734
posted
12-28 days just might not do, Do you want IDSA treating you? Go-o-o-o-o-o ILADS!
-------------------- Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner. Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006
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bettyg
Unregistered
posted
dave, this isn't even funny; please delete your post about envelopes, etc .... anthrax scare all over again; sorry my friend, but this post is in really bad taste!
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