I was diagnosed with pleuro-pericarditis and heart failure in aug 2004 when I was hospitalized (this was also when I either had a bad relapse or ws reinfected and had meningitis and 4th cranial nerve palsy)
I followed up for a few months later with a cardiologist and he said it was all better, I didn't have heart failure, that maybe it was my kidneys or lupus but all I had now was a mild regurgitation and mitral valve prolapse.
Over the last 3 years I have gotten steadily worse. Since april, I cannot even exercise or walk, I seem to have the conditioning of someone with congestive heart failure. and I know this is typical with lyme, I remember studies saying petients have symptoms consistent with CHF.
My doctor is saying it will get better with treatment. Many of my other symptoms are going away. I am on pulse therapy with 3 diff antibiotic, and about 6 weeks into tx. some days I feel much better, like when I am not on the rifampin. (I feel bad the 2nd and third day on the rifampin, and then get better) but even on the days when I feel better I have really bad shortness of breath. it is still getting worse, although not as bad as it was on april.
the more I try to exert myself the more I feel i can't breath. anyone else have these symptoms and did it get better with tx? is this one of the last symptoms to go? maybe I am just in terrible physical shape from not being able to exercise?
Posted by tailz (Member # 10014) on :
Please buy a gaussmeter. They have inexpensive ones on Amazon for around $40.
But my neighbor had a heart attack last fall, and I measured the electromagnetic fields in her home just recently. The lowest reading I got in her home was 4 milligauss. That's high! The highest was something like 10-15 - where I'd been standing when I almost passed out myself once in her home after feeling palpitations.
EMF exposure can work along with Lyme to cause heart problems. The heart is sensitive to these fields. That's why they can run EKGs and jumpstart your heart.
Posted by shoney (Member # 9925) on :
Ask your cardiologist to refer you to a cardiac rehab program in the hopital. You will be monitored by physical therapists, and will gradually be able to increase your exercise tolerance.
6 weeks into treatment is still relatively new-may want to wait a little longer. I couldn't walk to the mailbox the first 3 months-did 2 miles yesterday
Posted by Lymetoo (Member # 743) on :
Ask your cardiologist to refer you to a cardiac rehab program in the hopital. You will be monitored by physical therapists, and will gradually be able to increase your exercise tolerance.
roro....Have you been treated for babesia??
Posted by char (Member # 8315) on :
roro,
Your symptoms sound a lot like POTS to me.
Postural Orthostatic Hypotension.
Have you been checked for that?
My daughter has a severe case, son moderate and me mild.
I thought we were in bed because of lyme fatigue, which we did have; but the POTS was making us so exhausted, foggy, dizzy. Also asthma and stomach problems.
We are blessed with a cardiologist who specializes in POTS. I don't think all of them are aware of it.
I was diagnosed with POTS and then autonomic dysfunction, my blood pressure would drop 10-40 points upon standing. but that was when I had really low blood pressure.
since the heart failure, my BP has been high. I dont get dizzy or feel faint that much any more. i figured it was just another misdiagnosis (along with the MS, myasthenia, ALS, etc)
I haven't been treated for the babesia yet. I am being treated for the bartonella first, then babs, then lyme.
Posted by Lymetoo (Member # 743) on :
quote:Originally posted by roro: I haven't been treated for the babesia yet. I am being treated for the bartonella first, then babs, then lyme.
You'll get some help when you treat the babs.
Posted by roro (Member # 13383) on :
i don't know what happened to my reply to this before
i guess it must be the babs. i need more patience.
the rehab thing, is that inpatient? i dont think i can handle anymore inpatient thing or even have time for therapy. i am still working full-time.
i am still being treated for the bart. i have really bad swollen glands still sometimes, althought they are getitng better. sometimes when i put my arms down at my side i can feel them under my arms, and i can feel it in my neck when i look down.
Posted by GiGi (Member # 259) on :
With heart problems, etc. you might also have your wisdom teeth sites checked. Whether you still have them, or don't have them any longer, or never grew one or all. Heart problems as well as some others are often related to wisdom teeth. A good oral surgeon (of the holistic type) will be familiar with this.
"Regular" dentists may miss it on the x-ray and/or are not familiar with the interpretation.