by my insurance!!!!!! They said that there is no proof that I have Lyme. My Western Blot was negative, and they said that the CD-57 (on which I got a 20 and 50) doesn't just indicate Lyme. I could have those scores because I have thyroiditis. I have definitely herxed on the antibiotics that I've taken, and I think that there is no way that this could be anything other than lyme. Also I live in an area where lyme is fairly common, and can remember being bitten by a tick at least twice.
My dr. wanted me to get a picc line and start Rocephen, and my insurance said that Rocephen is "investigational" and "experimental", and they won't cover it.
I really need to start the picc line, because I am barely able to stay in school, and am constantly feeling awful. This whole experience has been awful, and my poor mom has spent hours and hours on the phone trying to clear this up.
We are filing an appeal, and I need to find creditable sources that prove that Rocephen works on lyme disease. If you know of any, please let me know.
Thanks so much,
Draba
Posted by jamescase20 (Member # 14124) on :
good luck. up
Posted by Sweetpea's Mom (Member # 12817) on :
I am so sorry you are going through this Hell. I am also outraged.
Insurance companies make it thier business to deny as many claims as possible. Most do not pay for this type of treatment because they use outdated information as an excuse to deny.
I was in a similiar place to where you are now. I had to borrow money to pay for my IV abx. I had late stage neuro-lyme and the only thing that seems to have killed it was the 12 weeks of IV ABX.
Find someone to borrow money from. If I had not been able to do that I could have died or been crippled permanently.
My advice to you is to borrow, take a loan out, do whatever you need to do to save yourself because the greedy insurance corporation's beurocratic, paper-pushing drones will not help you. You can bet on that.
Here's the crux of the problem;
Our American healthcare system is corrupt. The CEOs and top investors that run, and profit from insurance companies, are much more concerned about making as much money as possible than for caring for the people who pay to have the "privilage" of being members of thier immoral, money-sucking, beurocracy.
Until "We the People" stop allowing ourselves to be suckered in by the BS in the insurance industry and pharma lobby's propoganda that tells us that universal health care or a single-payer system is bad for us, this is going to keep happening to American men, women and children, over and over and over again.
The fact is that people are dying in this great country of ours because we don't have universal healthcare. People who have insurance don't have it much better than those who don't when you factor in claim denials, co-pays, rising rates, higher treatment costs, etc.
The only people that this corrupt system does not hurt, are very rich people. The middle class and the working poor are being gouged and gutted by these powerful, greedy corporations.
While you take care of your own treatment or find someone who can help you financially, think about what you can do to help make a change for the benefit of friends and loved ones and future generations so they won't have to go through the Hell you and I and some many others did.
Understand that it is our government that props up these thieving insurance companies. The best thing you can do for yourself and others is to make sure you use your right to vote and vote wisely.
End of sermon.
I hope you get better. God helps those that help themselves.
Posted by Cobweb (Member # 10053) on :
I was fortunate to have positive tests for Lyme Disease-but it was a SPECT SCAN that opened the door for insurance to approve IV Rocephin.
Posted by savebabe (Member # 9847) on :
If you can afford it, have an attorney send out the apeal on their letterhead.
I did this when I was denied several MRI's and it worked like a charm.
Good luck.
Posted by Draba (Member # 14589) on :
Yeah. I think we can pay, but It would be really difficult. We managed to talk with someone, and they said that there is no proof that I have lyme. I am thinking of looking into a different test, to see if I get a positive.
Thanks so much for the support,
Draba
Posted by bettyg (Member # 6147) on :
draba,
try this out; timaca's outstanding appeal letter where she was reimbursed thousands of dollars!!!
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