Quick question that, after much, much research, I still can't seem to get an answer on.
Long story short - I have Lyme and Bartonella - misdiagnosed as MS. Sound familiar?
I had an MRI - 4 lesions total - brain and cord.
Does anyone know, after treatment, the liklihood of NEW MS-like attacks on the CNS?
i.e. getting more lesions? Not just a "symptom flare" but actually more lesions?
I'm doing great on the ABX, etc and am in it for the long haul.
I just don't know if once the bacteria are gone I'm out of the woods,
or if I'm going to be left "always on gaurd" for another attack b/c of a messed up immune system.
Thanks so much for any input!
Posted by Michelle M (Member # 7200) on :
Well, there's a 50/50 chance that your lesions will diminish/go away, according to research.
I have lyme and babesia and 11 lesions.
Mine have not gone away.
However, repeat MRI has demonstrated that I have not gotten any NEW ones, which I take as good news.
I would continue treating and hope for the best, particularly since you KNOW you have lyme and bart, and consider yourself lucky that you know it and aren't one of those doomed to be misdiagnosed with MS.
Good luck!! You have every reason to believe you'll get better!
Michelle
Posted by bettyg (Member # 6147) on :
up for answers from MS/LYME folks...
Posted by B R H (Member # 12159) on :
Please note this patient used the Marshall Protocol to treat his 'Post Lyme Syndrome," something most lyme literate physicians and patients do not even believe in.
There is no evidence that "Post Lyme Disease Syndrome" even exists. In fact, there is evidence that the bacteria persists after treatment.
Michelle
Posted by B R H (Member # 12159) on :
quote:Originally posted by Michelle M: Please note this patient used the Marshall Protocol to treat his 'Post Lyme Syndrome," something most lyme literate physicians and patients do not even believe in.
There is no evidence that "Post Lyme Disease Syndrome" even exists. In fact, there is evidence that the bacteria persists after treatment.
Michelle
You're funny. Call the illness whatever you want but a different name doesn't change the fact that the Marshall Protocol worked for yet another tick bite victim!
Posted by narrowpath (Member # 15086) on :
Thanks everyone so much for your input. Yes, the Marshall Protocal is just one more point of confusion for me.
There seem to be so many different philosophies about type of antibiotics, rotations, pulsing, diet, supplements, etc. I feel overwhelmed.
Overwhelmed even though my brain fog is gone, and I'm in the medical profession - I'm a physical therapist!
Thank God for forums like this or else I never would have gotten the right diagnosis in the first place.