LymeNet Flash: "Post lyme" ?sensory neuropathy Other explanation?

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Posted by BugBarb (Member # 210) on :

I have been off of antibiotics for a long time. I started them 10 years ago, was on them for 6 years. That works out to about 2-3 years before I started having problems...........

I have been tested this time around (over the past 2 years) for everything that 2 doctors can think of.
Nothing blood wise comes back abnormal
(except recent tests showing type 2 diabetes,(under control with diet and exercise?).
(blood glucose levels between 63 and 112 (121 oops)so far).

I think the nerve studies are showing the lingering residual permanent peripheral nerve damage left over from lyme. My current doc seems to believe this is related somehow to the massive nerve damage from 11 years ago.

I don't have the fatigue or motor involvement like before....

1. I have had a slowly progressing neuropathy starting on the skin in my thoracic area,

2. --> to prickling in my thighs, with contact like clothing

3. --> to vibrating in my lower legs

4. --> to contact discomfort from my knees to my neck (not my arms)

5. ----> adding being stabbed randomly anywhere I have skin.

6. All of this was only in the evenings at first.

7. Slowly, it worked its' way backwards in time until I had pain 24/7 (if I didn't take my lyrica)

Question:

1. How can this be related to Lyme without a relapse or a new infection?

2. If not Lyme, then what?

I don't think it is related to diabetes, the pattern of progression is not from hands inward, just the opposite and my hands and feet seem the least affected.

[ 06. July 2008, 04:16 PM: Message edited by: BugBarb ]

Posted by Carol in PA (Member # 5338) on :

Barb,
See this article by Dr. Jacob Teitelbaum:

Effective Treatment for Neuropathic (Nerve) Pain
http://www.endfatigue-dev.com/health_articles_o-q/Pain-effective_treatment_neuropathic.html

He has a whole list of things to use for nerve pain.

Carol

Posted by bettyg (Member # 6147) on :

barb, thanks for editing! xox

have you tested for bart since your feet are so affected?

i have diabetes 2 an much neuopathy. i didn't read the link you were given. best wishes; the pain stinks, doesn't it!! so sorry for you and share what you are going thru [group hug]

Posted by davidx (Member # 8326) on :

Barb-

your symptoms related to contact "discomfort" sound very much like mine. Have you had a skin biopsy done to look at the small nerve fiber density? This test measures the density of the small nerve fibers which is not picked up by large nerve fiber tests (emg, etc.)

Carol- that website did not seem to work!

--David