posted
I have been off of antibiotics for a long time. I started them 10 years ago, was on them for 6 years. That works out to about 2-3 years before I started having problems...........
I have been tested this time around (over the past 2 years) for everything that 2 doctors can think of. Nothing blood wise comes back abnormal (except recent tests showing type 2 diabetes,(under control with diet and exercise?). (blood glucose levels between 63 and 112 (121 oops)so far).
I think the nerve studies are showing the lingering residual permanent peripheral nerve damage left over from lyme. My current doc seems to believe this is related somehow to the massive nerve damage from 11 years ago.
I don't have the fatigue or motor involvement like before....
1. I have had a slowly progressing neuropathy starting on the skin in my thoracic area,
2. --> to prickling in my thighs, with contact like clothing
3. --> to vibrating in my lower legs
4. --> to contact discomfort from my knees to my neck (not my arms)
5. ----> adding being stabbed randomly anywhere I have skin.
6. All of this was only in the evenings at first.
7. Slowly, it worked its' way backwards in time until I had pain 24/7 (if I didn't take my lyrica)
Question:
1. How can this be related to Lyme without a relapse or a new infection?
2. If not Lyme, then what?
I don't think it is related to diabetes, the pattern of progression is not from hands inward, just the opposite and my hands and feet seem the least affected.
-------------------- Lyme is like the flu. You can get it and recover, but you can always get it again. Posts: 607 | From (deer tick)Heaven! Angeles National Forest | Registered: Oct 2000
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Carol in PA
Frequent Contributor (5K+ posts)
Member # 5338
posted
Barb, See this article by Dr. Jacob Teitelbaum:
He has a whole list of things to use for nerve pain.
Carol
Posts: 6947 | From Lancaster, PA | Registered: Feb 2004
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bettyg
Unregistered
posted
barb, thanks for editing! xox
have you tested for bart since your feet are so affected?
i have diabetes 2 an much neuopathy. i didn't read the link you were given. best wishes; the pain stinks, doesn't it!! so sorry for you and share what you are going thru
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your symptoms related to contact "discomfort" sound very much like mine. Have you had a skin biopsy done to look at the small nerve fiber density? This test measures the density of the small nerve fibers which is not picked up by large nerve fiber tests (emg, etc.)
Carol- that website did not seem to work!
--David
-------------------- Same nightmare, different day! Posts: 401 | From East Coast | Registered: Nov 2005
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