Anything besides constipation that I should know....
Anyone had a bad experience with it?
Only great ones?
Just hesitant to take another pharmaceutical, if I don't really have to....
Does it make you feel weird?
Can you just stop or do you taper off it?
lots of questions...I always want to know it all before I take something new...
Been googlin' and the search on here, and read lots about it....
from what I understand it's used for high cholesterol and is not supposed to be absorbed into out bodies....it binds to bile acids and is excreted in our feces...right?
so bile acids = toxins and waste?
so people with high cholesterol have lots of toxins (from their poor diet?)
sorry if this is really elementary....just trying to understand why a cholesterol medication is used for us to bind toxins....think i get it...but maybe not...???
many mahalos~
hugs and smiles~ Fawne
Posted by 0624sm (Member # 15591) on :
KG, My husband takes a double dose of Questran every night, and it's been a life safer. He was prone to constipation already, but the Questran hasn't made it any worse than it already was. There has been quite alot of discussion of cholestyramine on cpnhelp.org, if you care to check there too.
Posted by randibear (Member # 11290) on :
can you take it if you have chronic diahhrea??
Posted by Nebula2005 (Member # 8244) on :
It pushed my unbearable nerve pain past unbearable. I have read different explanations for this.
Everyone is different. For most people, the worst side effect is constipation. However, since constipation is a bad thing if you're trying to get rid of toxins, this would seem to be counter-productive.
I was taking it four times a day. Perhaps it's a dosing issue, I don't know. I've been too scared to try it again.
Posted by sparkle7 (Member # 10397) on :
Does anyone know if there are major differences between chlorestramine & just using other mopping up products like clay, charcoal, psylium seeds, chlorella, zeolites, etc.?
I was taking Welchol for a while but it did make me constipated. My doctor said it was OK to take around other drugs but I now have some doubts...
Do these drugs absorb the effects of other drugs, herb, supplements you may be taking?
Posted by Lymetoo (Member # 743) on :
quote:Originally posted by sparkle7: Do these drugs absorb the effects of other drugs, herb, supplements you may be taking?
Yes, they do. You have to take them at least 2 hrs away from other meds.
Scheduling is a nightmare with this stuff.
I took CSM and it cleared my brain fog for about 10 days. Then it began making my stomach hurt terribly. I think it may have affected my gallbladder.
I finally had to give it up after several months. I also struggled with constipation the whole time.
Randi.. It would probably help your diarrhea!
Posted by LittleLymie19 (Member # 15610) on :
Are any of these NOT constipating?
My digestive system barely moves (no peristaltic action) so I don't want to add anything that is going to make that worse.
BUT...my body isn't detoxing what we're killing off. So I'm pretty toxic. So I DO need something...
I'll be waiting and reading the responses here too Posted by TerryK (Member # 8552) on :
Cholestyramine must be taken away from meds and foods or it will absorb them.
It can deplete vitamin K.
Many lyme patients have a reaction to cholestyramine. Actos is given to down regulate pro-inflammatory cytokines making it much easier to tolerate cholestyramine.
Are you taking cholestryamine for mold-related neurotoxins, lyme-related, or both? if you've tested for mold, I don't think any bile binders will mean squat of a difference if you don't remove yourself from the mold.
I've spoken with a few LLMDs about possibly taking the CSM, and they all advised me to move out ASAP, and then start plugging away with natural binders (chlorella, IV glutathione, activated charcoal, pectasol, modifilan/LIMU-brown seaweed extract) I think CSM works for some but doesn't work so well with others...but I am considering using it ONCE i move out only if constipation isn't an issue for me.
-joey
Posted by sparkle7 (Member # 10397) on :
Cascara sagrada is very good to relieve constipation. The green part of the aloe is good, too.
Posted by Lymetoo (Member # 743) on :
quote:Originally posted by sparkle7: Cascara sagrada is very good to relieve constipation.
I found out the hard way that it will stain the colon like laxatives will. My GI dr accused me of laxative abuse, when it was the cascara sagrada I had taken years prior!
Posted by randibear (Member # 11290) on :
oops i think i screwed up. i bought the charcoal in capsules and it said to take with meals, so i take the probiotics at 6 a.m., then about 10 take the antibiotics, then about 12 or so, take all the vitamins with lymph node capsules, the charcoal and milk thistle.
am i supposed to take the charcoal separate?
this is so confusing!! i agree, i'm scheduing pills all day long!!!
Posted by TerryK (Member # 8552) on :
Activated charcoal does bind toxins but not mold or lyme biotoxins according to a naturopathic doctor that I talked to. I don't know about the other items that are listed. I know they remove some toxins but I would check with your doctor or Dr. S (mold warriors author) via his website to see if he knows if they are successful for the type of toxins that you re trying to get rid of.
randibear, yes, you must take charcoal away from other substances.
Terry
Posted by LittleLymie19 (Member # 15610) on :
Hmm...after a quick search I found some positive things about IV glutathione. Does that have the same benefit? I've had it before and it didn't seem to help me, maybe I even had some icky detox symptoms after...but I know that could also very well mean that it was in fact helping. You're right, this IS kind of confusing.
I just mentioned IV glutathione because I think it's the only thing that doesn't cause constipation...
[ 07. August 2008, 02:50 PM: Message edited by: LittleLymie19 ]
Posted by lymeHerx001 (Member # 6215) on :
I removed myself from the moldy environment of my house in connecticut to Colorado and I didnt notice any difference.
If I eat sugar the symptoms come back anyway. That goes for dairy too.
I mean that it didnt make a tremendous difference.
At least Im not getting nightmares where Im being stabbed in a prison yard and my eyes arent burning (this happens from mold and antifungals).
Posted by Angelica (Member # 15601) on :
After taking it and then being cold all the time from it messing with my bile my vote is a giant NO!
I would do apple pectin or something more natural. Lymebytes has a good article she wrote on her website on the subject. If you cannot find her article send her a pm.
If you do end up taking it get it without the fructose in it. The fructose in the brand my LLMD wrote the Rx for pushed my yeast over the edge and I have yet to get back to normal.
I personally wish I had never taken it.
Posted by 0624sm (Member # 15591) on :
It's true that not everyone can tolerate cholestyramine.
But for those who can tolerate it, it is very beneficial at binding endotoxins and porphyrins.
Anyway, it's a prescription drug that is fairly well known to the medical mainstream, so it's something your prescribing doc can provide some helpful information on (unlike LD).
Posted by KauaiGoddess (Member # 11782) on :
Aloha Everyone~
Thank you for all your replies!!! smiles...
I have decided that I am going to hold off on this for now......really just not sure I want to add another pharmaceutical...rather stick to the natural toxin binders for now.....
thank you all!
0624-
I'll check out that site cpnhelp.org- thanks...
raindeer-
I read in my natural medicine book that cholesterol medication is sometimes prescribed to Crohns patients....hence the diarrhea....
sparkle-
one difference is chol. is a pharmaceutical and the others are natural ways...as far as their toxin binding...I was wondering too...
littlelymie19-
have you tried colonics? my LLMD recommend I try them...honestly amazing...really showed me how dehydrating these anti's are to the poor colon...my stools moved fine for 3 months after 3 sessions... now I am going back today...
also, I do glutathione cream which is a prescritpion through a compounding pharmacy- Lee Silsby (sp?) ...it seems to be helping...
Terry-
thanks for the link...
mOjoey-
I was going to take it to help bind more toxins...more Lyme related...just wanted to be all I could to help my body out, but now I put the brakes on cause I do not want to take another pharmaceutical...
havn't had mold test done yet...
MANY MAHALOS~
hugs and smiles!
Fawne
Posted by Gert (Member # 13584) on :
I took this for almost 3 weeks but could never get to full dose due to me taking so much other stuff. Scheduling this really is a nightmare.
HOWEVER, one other thing is that I had to stop this due to chronic diarrhea I got with it. It was really BAD and ran through me.
WHY? I have no clue at all but I am dealing with high levels of both lyme and mold biotoxins according to my labs done through LabCorp.
I sent Dr Shoemaker an email but never heard back from him. I am very curious why I got chronic diarrhea on it.
Anyone else?
Posted by orrn (Member # 6672) on :
I have asked 2 LLMDs about this drug and both didn't even want to consider it. Would hardly even discuss it. Weird!
orrn
Posted by Clarissa (Member # 4715) on :
I've been on CSM for almost a year. I have both the mold and biotoxin gene. I had some constipation but nothing a simple stool softener didn't help.
My LLMD would like me to try Nanochitsan but I'm one of those scared people who think, "if ain't broke, don't try and fix"
CSM has helped my Mother's mold issues tremendously. I think we're both official "fans" of the product.
We prefer the sugar-free capsules that you can have your doc order at Lionville Pharmacy in PA. 600 mg capsules (6 capsules = 1 powder pkg)
Phone Number for those who are interested: 610-363-7474
Best,
Posted by Larkspur (Member # 5131) on :
Oh gosh - I know this protocol has helped so many, but with my particular physiological makeup it messed me up big time!
Increased my imflammation at least twofold - I'm still experiencing some of the changes 3 years later!
So, this was my personal experience.
But for some I realize it's a lifesaver.
Tough call.
Posted by Clarissa (Member # 4715) on :
I'm SO sorry, Larkspur. That's horrible.
It just never ceases to amaze me how one drug can be someone's magic bullet and, at the same time, be someone's total nightmare.
Diabolical!!
Posted by Gert (Member # 13584) on :
quote:Originally posted by Larkspur: Oh gosh - I know this protocol has helped so many, but with my particular physiological makeup it messed me up big time!
Increased my imflammation at least twofold - I'm still experiencing some of the changes 3 years later!
So, this was my personal experience.
But for some I realize it's a lifesaver.
Tough call.
I wonder if this is what happened to me? As soon as I went off it (due to chronic diarrhea) I went into a very bad herx and still in that herx 3 weeks later.
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