Received a notice a while ago (I forget which group so I can recheck) saying Brooke Landau (with Lyme) was going to be on Mystery ER tonight (August 25th)8:oo pm.
I can't seem to find it listed in our area. I see Mystery Diagnosis is on tonight at an earlier time but is this the same program as Mystery ER? Does anyone know any more details? Would this be Discovery Health Channel do you think?
Thanks, bf
Posted by mojo (Member # 9309) on :
wondering the same thing.
Posted by scared08 (Member # 14695) on :
Hi, I just looked at listing on Dis. Health channel. Mystery ER in on at 8:00 EST, and then Mystery DX in on afterwards I think.
I read what it supossed to be about though and it says, something about a swimmer and then somethin about a Heart Attack. I'm sorry as there's a lot inbetween all of that, I just can't remember.
Posted by notkrazybrian (Member # 10621) on :
Ok folk just to let you know its not on tonite. ites episode is about A MALE swimmer, with that being said i think thats enough info, to show its not airing tonite. brian
Posted by mojo (Member # 9309) on :
Hello everyone:
According to this website (the acress playing Brooke) it's on tonight and it says the correct name of the episode.
The first part is probably a different case and Brooke's is probably on the second part of the show. (same as when WildCondor's was aired). Just guessin'.
It is on ... right now. I just turned it on and the subject is named Brooke and she is very ill and I heard the word Lyme.
Posted by Lymetoo (Member # 743) on :
Yep, it was on. I thought I had it saved, but messed up! I was watching Under Our Skin instead!
Anybody know when it will be on again? They usually repeat it.
Posted by UnexpectedIlls (Member # 15144) on :
Yep I just watched it... Not sure when it will be on again..
Posted by Clint31 (Member # 16420) on :
if it was on (I dont get discovery health) can you summarize it?
Posted by ConnieMc (Member # 191) on :
It's on again tonight at 11 PM ET.
Posted by Angelica (Member # 15601) on :
Is it the same Brooke who was on Intervention before who had to take lots of pain pills or is that another Brooke? Mine is not on for at least another hour here.
Posted by Lymetoo (Member # 743) on :
quote:Originally posted by ConnieMc: It's on again tonight at 11 PM ET.
Thanks!!!
It's Brooke Landau, newscaster.
Posted by Angelica (Member # 15601) on :
It is not the same Brooke who was on Intervention.
Posted by Curiouser (Member # 14128) on :
The program title was called "Eating Away" and the segment was called "A Model's Malady".
Overall, it wasn't bad. I was shocked (pleasantly surprised) they said lyme was a "dangerous disease".
They even had the doctor say the testing was only about 50% accurate, although they didn't specify which test.
Most shows aren't usually that honest. Maybe they're finally catching on. Posted by mojo (Member # 9309) on :
My favorite line in the show was when the ER doctor said that "Lyme Disease is notoriously difficult to treat."
Take that IDSA!
What a tradgedy that they didn't diagnose her when they first suspected Lyme.
Posted by Lymetoo (Member # 743) on :
quote:Originally posted by Curiouser:
They even had the doctor say the testing was only about 50% accurate, although they didn't specify which test.
I believe she referred to it as a "screening test"... (the ELISA)
I thought the program was GREAT!!!
Posted by lymebytes (Member # 11830) on :
For those who missed it like I did, it will be on again it will be on again:
Sept. 12th 10pm episode name "Eating Away" Posted by Peedie (Member # 15355) on :
Was surprised so much faith was placed in the urine test - said it was accurate? If that's the case - why wouldn't we all just take a simple urine test?
Interesting how symptomatic she was and yet failed all her WB tests. She was very lucky she had a PCP with some awareness and a ID md who was actually willing to treat her long term!
All considered - I thought it was a good program for "Lyme Awareness".
Peedie
Posted by Lymetoo (Member # 743) on :
I'm pretty sure that was the Lyme Dot ( urine test by Igenex ) she had... what used to be known as the Lyme Blot. It's not all that accurate either, so she got lucky.
The ID dr who gave her the IV and HBOT was really an LLMD. ( I think... relying on my bad memory here. )
A few questions...how did Brooke find a LLMD who was willing to do all that expensive treatment for free? That would be an utter miracle.
I think the episode should have discussed her treatment a bit more and progress.
The episode was very good. It made me question my Dx somewhat because I never have had fevers, paralysis, and other symptoms Brooke has.
In the back of my head, I wondered if Lyme is overdiagnosed if these symptoms came on so suddenly for Brooke. There are so many cases you hear where the symptoms are no where near what Brooke experienced. This whole thing is so confusing honestly.
Posted by Lymetoo (Member # 743) on :
Seekhelp...EVERYONE'S Lyme symptoms are different. Anything on the list of symptoms can show up.
You can have ONE symptom or all of them. Ya never know.
Posted by Michele (Member # 13669) on :
One of my friends was telling me about this and a urine test they ran to diagnose.
Unfortunatley, I didn't get to see the show.
Does anyone know what the test is called?
Do you know if it will be ran again or how I might find it on the internet?
Posted by Angelica (Member # 15601) on :
My Igenex urine test was negative and in my mind a waste of money at least for me.
Posted by Peedie (Member # 15355) on :
It is called the Lyme Dot Blot and is $400.00 with Igenex. I ordered it but don't know how I'm going to pay for it.
It would be a BIG dissappointment if it didn't test positive.
Thing is...the tests, treatment - all so expensive and I did not test positive in the WB with Igenix.
How could I stand a chance of reimbursement with my insurance company - if I don't test positive - somewhere?
![[Wink]](wink.gif)
![[Smile]](smile.gif)
That would be an utter miracle.