no I have not been fully diagnosed yet. only 41kd. along with symptoms.
I was on antibiotics for 10d and was finally pain free (well decreased) from this HORRIBLE head pain. this pain is so bad i just want to end it all the worst is i am getting no help!
the anti helps for two weeks I finally was free from pain.
and they tell me i don't have Lyme
then why in then heck do just a short period of time of levaiqun (SP) some of the pain leaves??
after being off of it for 7 day the pain was slowly creeping back....
it never truly went away it just decreased to a level 2 i can live with that.
I have two small kids and have not been able to spend time doing things with them because of this pain.
and for that 2w i was able to be a mom!!!
I truly hate complaining but if i don't get a good cry i will loose it it feels like being shot in the head.
my dam hips hurt so bad the ortho wont treat me because he is waiting to see what the Infectious disease doc will do on thurs
my neruo believes i have Lyme but has not agreed to treat me ?
what is the big deal? give me and antibiotic.
why is it so hard?
sorry for crying but it needed to come out.
thanks
[ 02-04-2009, 12:15 PM: Message edited by: poohbear74 ]
Posted by Need Lots of Help (Member # 18603) on :
Oh, Pooh, I am soooo sorry.
A cry is allowed!! I am a mom too and having a hard time myself.
Somehow you have got to get to a LLMD. I am sure there are more up north than there are down here. I will drive 17 hours in March to my first LLMD appointment. I am sooo excited that I might finally get well.
Please, get treatment as quickly as possible, if you are feeling better after 2 weeks of antiboitics, you might not me a Lymie Lifer!!!
Good luck. Search the site for a LLMD close to you!!
Shalome
Posted by poohbear74 (Member # 18766) on :
Thanks
the head pain was the worst and the main thing i want to go away.
the other problems are still there.
the head pain is so bad he said it is nerve damage from the bells. i have had it 2x
i just cant function with this head pain.
this has been a 1 1/2 yrs and have spent so much money on docs.
yes there are llmd around but its not in the budget to pay out of pocket.
my medical was crazy last yr i had two surgery's and and a bunch of other crap that wasn't needed..
so thats that problem i don't understand why my neruo says I WILL PUT MY MONEY ON LYME
but wont treat me????? he wants to see what the other docs going to do...well i wont rest i will fight.
or it will be the end of me. i have to say doctors SUCK!!!!!!!!!!!!!!!!!!!!!!!!!
i know i should be thankful for my life and not complain but it has taken me away from my family all i want to do it take pain meds and and hide under the covers... and that does not last that long.
i guess i have to wait and see what happens on thurs
Posted by bestblondemom (Member # 14103) on :
If you have a PPO your insurance may pay out of network. My bills get paid 75%. Also my LLMD understand the headaches so well that he prescribes oxyconton for the headaches and it works within a 1/2 hour. I had one of the worst headaches ever and he game me a shot of demerol and the pain was gone instantly. LLMD's understand the pain and will work with you. I still think that you need to go. If you have Lyme you will just keep getting worse. And the longer that you have it the harder it is to get rid of it. The Lyme bugs grow like fleas and reproduce every 4-6 weeks. Please try to get some antibiotics ASAP.
Posted by poohbear74 (Member # 18766) on :
were is the best place to go and read to inform myself about this wonderful flea?
sometimes i find pages that are to dam hard to read is there any books that are good?
Posted by Lymetoo (Member # 743) on :
Plenty of info right here and on bettyg's links in Medical. See the first 10 links at the top .. lots of info there.
Oh boy, I can relate. I can have horrible head pain. It's insane!! Plus I would get migraines on top of that.
What helps me is Fiorinal and Oxycodone. Fiorininal is usually easier to get than demerol. It's prescription but I have tried everything!!! Except demerol.
Hang in there.
Posted by bettyg (Member # 6147) on :
the infectious dr. is only going to give you 3 WEEKS ONLY OF ANTIBIOTICS MAX!! not good; that's undertreating you, and you will end up with CHRONIC LYME like the rest of us.
i hope you will look thru treepatrol and my newbie links for help right now.
look over the FINANCIAL BURDEN info, pages 74-92; and my package is NOT numbered! Posted by Stacyb (Member # 13084) on :
Poohbear,
Have you ck out the new LLMD that Tracy9 is going to in your state = Dr L. She is new and does accept insurance.
Stacy
Posted by lpkayak (Member # 5230) on :
go to cureunknown.com
get to real llmd
Posted by poohbear74 (Member # 18766) on :
my doc appt is on thurs I guess i will wait and see what happens.
I did get the emails and i am looking into the docs. it sounds like the id doc is not the way to go.
why cant you get treatment from a reg doc is a llmd a licensed doc?
why don't we like the id doc? what is the difference ?
why cant we get treatment from our reg doctors?
wish me luck I posted another page about the 58 band???
my test came back in oct with + on 58 (only)
then in jan my test came back with 41 +(only)
how is it possible to have to test results ??and is the 58 important?
Posted by Schelyne (Member # 18920) on :
Please e-mail me or contact me with a PM for more contact info.
I am newly Dx and from MD (I now live near York, Pa, but close to MD border)
I am a mom of 3 kids under 5 and struggling with Lyme, an unknown, and FM. I think we can relate and cry to each other when we need it.
If you need someone understanding, I am here for you!
Posted by Lymetoo (Member # 743) on :
The difference is that ID drs [99% of them] don't believe in Lyme after 3 wks of treatment. I doubt you'll be well in 3 wks.
An LLMD will treat you until you're well.
So which dr would YOU choose?
Posted by bettyg (Member # 6147) on :
tutu summed it up perfectly! i'd go for the one who was going to be with me until I GET WELL; wouldn't you? best wishes.
Posted by poohbear74 (Member # 18766) on :
no one answer my question is the llmd a licensed doc?
why do we have to pay out of pocket why don't they take insurance? i know there are maybe 1or2 that do...
Posted by Ocean (Member # 3496) on :
Yes, LLMD's are licensed doctors, some take insuance, some don't. There are also LLND's (Lyme Literate Naturopatic Doctor's), LLNP (Lyme Literate Nurse Practitioners).
But yes, they have gone to state certified Medical School, they are regular Licensed doctors who are willing to risk their license to treat all of us with Lyme Disease.
take care, Ocean
Posted by Tracy9 (Member # 7521) on :
Join us on www.lymefriends.com for additional support and to make lots of friends!
Posted by sutherngrl (Member # 16270) on :
My LLMD files my insurance for me. I pay up front and then my insurance company reinburses me 60% since he is out of network.
I think many of them are not in networks since some of them have been sued by the insurance companies for treating us.
Posted by poohbear74 (Member # 18766) on :
Thank you Ocean for answering that!
I really was not sure. why is it a risk to treat? why have they been sued?
i am new and i am just getting into the research and there so much out there it will take a while so it is easier to JUST ASK...
thanks for any input on this i appreciate all the info!
do you call your insurance and ask them about a doc? or is that bad?
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