no I have not been fully diagnosed yet. only 41kd. along with symptoms.
I was on antibiotics for 10d and was finally pain free (well decreased) from this HORRIBLE head pain. this pain is so bad i just want to end it all the worst is i am getting no help!
the anti helps for two weeks I finally was free from pain.
and they tell me i don't have Lyme
then why in then heck do just a short period of time of levaiqun (SP) some of the pain leaves??
after being off of it for 7 day the pain was slowly creeping back....
it never truly went away it just decreased to a level 2 i can live with that.
I have two small kids and have not been able to spend time doing things with them because of this pain.
and for that 2w i was able to be a mom!!!
I truly hate complaining but if i don't get a good cry i will loose it it feels like being shot in the head.
my dam hips hurt so bad the ortho wont treat me because he is waiting to see what the Infectious disease doc will do on thurs
my neruo believes i have Lyme but has not agreed to treat me ?
A cry is allowed!! I am a mom too and having a hard time myself.
Somehow you have got to get to a LLMD. I am sure there are more up north than there are down here. I will drive 17 hours in March to my first LLMD appointment. I am sooo excited that I might finally get well.
Please, get treatment as quickly as possible, if you are feeling better after 2 weeks of antiboitics, you might not me a Lymie Lifer!!!
Good luck. Search the site for a LLMD close to you!!
Shalome
Posts: 893 | From Florida | Registered: Dec 2008
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the head pain was the worst and the main thing i want to go away.
the other problems are still there.
the head pain is so bad he said it is nerve damage from the bells. i have had it 2x
i just cant function with this head pain.
this has been a 1 1/2 yrs and have spent so much money on docs.
yes there are llmd around but its not in the budget to pay out of pocket.
my medical was crazy last yr i had two surgery's and and a bunch of other crap that wasn't needed..
so thats that problem i don't understand why my neruo says I WILL PUT MY MONEY ON LYME
but wont treat me????? he wants to see what the other docs going to do...well i wont rest i will fight.
or it will be the end of me. i have to say doctors SUCK!!!!!!!!!!!!!!!!!!!!!!!!!
i know i should be thankful for my life and not complain but it has taken me away from my family all i want to do it take pain meds and and hide under the covers... and that does not last that long.
i guess i have to wait and see what happens on thurs
Posts: 47 | From maryland | Registered: Jan 2009
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posted
If you have a PPO your insurance may pay out of network. My bills get paid 75%. Also my LLMD understand the headaches so well that he prescribes oxyconton for the headaches and it works within a 1/2 hour. I had one of the worst headaches ever and he game me a shot of demerol and the pain was gone instantly. LLMD's understand the pain and will work with you. I still think that you need to go. If you have Lyme you will just keep getting worse. And the longer that you have it the harder it is to get rid of it. The Lyme bugs grow like fleas and reproduce every 4-6 weeks. Please try to get some antibiotics ASAP.
Posts: 19 | From New Jersey | Registered: Dec 2007
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posted
Oh boy, I can relate. I can have horrible head pain. It's insane!! Plus I would get migraines on top of that.
What helps me is Fiorinal and Oxycodone. Fiorininal is usually easier to get than demerol. It's prescription but I have tried everything!!! Except demerol.
Hang in there.
Posts: 258 | From San Diego, CA USA | Registered: Sep 2002
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bettyg
Unregistered
posted
the infectious dr. is only going to give you 3 WEEKS ONLY OF ANTIBIOTICS MAX!! not good; that's undertreating you, and you will end up with CHRONIC LYME like the rest of us.
i hope you will look thru treepatrol and my newbie links for help right now.
look over the FINANCIAL BURDEN info, pages 74-92; and my package is NOT numbered!
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posted
no one answer my question is the llmd a licensed doc?
why do we have to pay out of pocket why don't they take insurance? i know there are maybe 1or2 that do...
Posts: 47 | From maryland | Registered: Jan 2009
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Ocean
Frequent Contributor (1K+ posts)
Member # 3496
posted
Yes, LLMD's are licensed doctors, some take insuance, some don't. There are also LLND's (Lyme Literate Naturopatic Doctor's), LLNP (Lyme Literate Nurse Practitioners).
But yes, they have gone to state certified Medical School, they are regular Licensed doctors who are willing to risk their license to treat all of us with Lyme Disease.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
My LLMD files my insurance for me. I pay up front and then my insurance company reinburses me 60% since he is out of network.
I think many of them are not in networks since some of them have been sued by the insurance companies for treating us.
Posts: 4035 | From Mississippi | Registered: Jul 2008
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