This is topic No Cipro-What else will work?? in forum Medical Questions at LymeNet Flash.


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Posted by Jane2904 (Member # 15917) on :
 
Daughter took Mino and Rifampin for about 10 months and improved. Not 100% but maybe 75-80%.

Dr stopped Rifampin and started Cipro.Hoping to make more progress.

Well, anxiety increased and many other weird feelings. Well after many phone calls the Dr. had us stop the Cipro.

She cannot take Zith, Cipro, already took Rifampin.

Cannot tolerate Doxy , can only tolerate 50mg 1x a day of Mino.

She seems to be sens. to many meds. Even Claritin, Melatonin, etc.

I have to call back end of the week. Just wondering what other Drugs people have used to treat Bart when unable to tolerate others.

It's not looking too good, any input is appreciated.
 
Posted by seibertneurolyme (Member # 6416) on :
 
Although they are in the same class of meds either levaquin or factive may be options. Or some people seem to think that bactrim DS works.

The combo that finally seems to be working for hubby is Mino, Zith, Factive and Rifampin. He is also taking some new herbs which seem to be doing something -- pau d'arco and arnica.

Personally I think there are some strains of bart or mycoplasma that require a combo of both rifampin and a fluroquinolone.

Here is a link to a list of meds and herbs that one LLMD suggests for bart.

http://tinyurl.com/35ldajy

See comments under the heading -- S.H. MD on Lyme Disease.

Bea Seibert
 
Posted by Jane2904 (Member # 15917) on :
 
Thanks so much Bea.

Her Dr. will not do Levaquin.


Hope your Hubby does well on his current combo. [Smile]

Anyone else, Had more improvements on one more than another?
 
Posted by aMomWithHope (Member # 19255) on :
 
I don't have any suggestions unfortunately but am bringing this back up in the hopes that someone does!

{{{{HUGS}}}}
 
Posted by tdtid (Member # 10276) on :
 
I have to agree with Bea. Since your daughter is taking Cipro, there aren't a lot of medications for Bartonella.

Levaquin is in the same family as Cipro but you say your doctor won't use that one anyway.

Something I found that worked for me is that if you stick with the Rifampin but mix it with other meds, it seems to have different effects. Perhaps you could play around with combinations with the Rifampin that you do know she tolerates.

I hope that you can get her on the right track soon. Hugs to you both.

Cathy
 
Posted by Jane2904 (Member # 15917) on :
 
Thanks Mom and Tdtd [Smile]
 
Posted by txgirl09 (Member # 21612) on :
 
What about Bactrim? It also treats bart.
 
Posted by TF (Member # 14183) on :
 
My now famous lyme doc says Bactrim DS kills bart.
 
Posted by Jane2904 (Member # 15917) on :
 
Thank you for all the replies. [Smile]
 
Posted by Marrit (Member # 25454) on :
 
Bactrim is a sulfa drug, and many people are allergic to sulfa drugs.
I couldn't take Bactrim, and I am sensitive to alot of meds like your daughter.
Perhaps if your doctor wants to try this one, have him only order two or three day's worth.
You'll know by then if she can tolerate it.
I reacted with the first dose ...
 
Posted by jkmom (Member # 14004) on :
 
What did the doctor suggest when you called him back? How is she doing now?
 
Posted by Jane2904 (Member # 15917) on :
 
Well. looks like the replacement will be Bactrim.

Hopefully she will be able to tolerate this antibiotic.
 
Posted by FunkOdyssey (Member # 15855) on :
 
quote:
Originally posted by Marrit:
Bactrim is a sulfa drug, and many people are allergic to sulfa drugs.

If by many people you mean 3% of the population, then yes.
 
Posted by nefferdun (Member # 20157) on :
 
I am having a lot of improvement with Bactrim DS and either zithro, biaxin or roxythromycin (used all three).

I had a reaction to a sulfa drug when I was young so I was not sure I could take Bactrim but I read you can desensitize yourself to it by starting very slowly. I began with one eighth dose once a day and worked up with no problem.
 
Posted by nevagiveup (Member # 26420) on :
 
My daughter was on Zithromax & Bactrium DS for last 18 months and was tested negative for Bart since last 9 months. Recent blood work showed IgG 1:>256 for Bart and her cognitive, fatigue, irritatibility symptoms have also got aggravated in last 6 weeks.

Doctor swithed to Cipro 3 weeks ago and that gave her shoulder pains, itchy feeling and now he has reverted to Rifampin with Doxy (for lyme).... Hope fully that combo shud help her and i have heard positive experience from others too.

thanks
 
Posted by littlebit27 (Member # 24477) on :
 
So how did the med switch go? Was your daughter able to tolerate it? Hope she is feeling better.
 
Posted by Jane2904 (Member # 15917) on :
 
nevagiveup, Hope you daughter does well on Rifampin.

Our daughter improved on Rifampin.

Littebit, thanks for checking in. We were waiting for school to finish. So she will be starting the Bactrim this week. We plan to start on 1/2 the daily dosage to see how she does, before going up to full dose.

Thanks, Jane
 
Posted by laura j (Member # 14257) on :
 
I didn't do well on Cipro but did well on Factive. Same family of drugs.
 


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