posted
Although they are in the same class of meds either levaquin or factive may be options. Or some people seem to think that bactrim DS works.
The combo that finally seems to be working for hubby is Mino, Zith, Factive and Rifampin. He is also taking some new herbs which seem to be doing something -- pau d'arco and arnica.
Personally I think there are some strains of bart or mycoplasma that require a combo of both rifampin and a fluroquinolone.
Here is a link to a list of meds and herbs that one LLMD suggests for bart.
posted
I don't have any suggestions unfortunately but am bringing this back up in the hopes that someone does!
{{{{HUGS}}}}
Posts: 648 | From northeast | Registered: Feb 2009
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tdtid
Frequent Contributor (1K+ posts)
Member # 10276
posted
I have to agree with Bea. Since your daughter is taking Cipro, there aren't a lot of medications for Bartonella.
Levaquin is in the same family as Cipro but you say your doctor won't use that one anyway.
Something I found that worked for me is that if you stick with the Rifampin but mix it with other meds, it seems to have different effects. Perhaps you could play around with combinations with the Rifampin that you do know she tolerates.
I hope that you can get her on the right track soon. Hugs to you both.
Cathy
-------------------- "To Dream The Impossible Dream" Man of La Mancha Posts: 2638 | From New Hampshire | Registered: Oct 2006
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Jane2904
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posted
Thanks Mom and Tdtd Posts: 1357 | From Massachusetts | Registered: Jun 2008
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posted
Bactrim is a sulfa drug, and many people are allergic to sulfa drugs. I couldn't take Bactrim, and I am sensitive to alot of meds like your daughter. Perhaps if your doctor wants to try this one, have him only order two or three day's worth. You'll know by then if she can tolerate it. I reacted with the first dose ...
Posts: 277 | From Pennsylvania | Registered: Apr 2010
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quote:Originally posted by Marrit: Bactrim is a sulfa drug, and many people are allergic to sulfa drugs.
If by many people you mean 3% of the population, then yes.
Posts: 195 | From Manchester, CT | Registered: Jun 2008
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nefferdun
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posted
I am having a lot of improvement with Bactrim DS and either zithro, biaxin or roxythromycin (used all three).
I had a reaction to a sulfa drug when I was young so I was not sure I could take Bactrim but I read you can desensitize yourself to it by starting very slowly. I began with one eighth dose once a day and worked up with no problem.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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posted
My daughter was on Zithromax & Bactrium DS for last 18 months and was tested negative for Bart since last 9 months. Recent blood work showed IgG 1:>256 for Bart and her cognitive, fatigue, irritatibility symptoms have also got aggravated in last 6 weeks.
Doctor swithed to Cipro 3 weeks ago and that gave her shoulder pains, itchy feeling and now he has reverted to Rifampin with Doxy (for lyme).... Hope fully that combo shud help her and i have heard positive experience from others too.
thanks
Posts: 25 | From CT, USA | Registered: Jun 2010
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littlebit27
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posted
So how did the med switch go? Was your daughter able to tolerate it? Hope she is feeling better.
Jane2904
Frequent Contributor (1K+ posts)
Member # 15917
posted
nevagiveup, Hope you daughter does well on Rifampin.
Our daughter improved on Rifampin.
Littebit, thanks for checking in. We were waiting for school to finish. So she will be starting the Bactrim this week. We plan to start on 1/2 the daily dosage to see how she does, before going up to full dose.
Thanks, Jane
Posts: 1357 | From Massachusetts | Registered: Jun 2008
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tickled1
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posted
I didn't do well on Cipro but did well on Factive. Same family of drugs.
Posts: 2541 | From Northeast | Registered: Jan 2008
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